A UK multi-centre study aiming at understanding the optimal nutritional management for people with #ALS #MND who are fed enterally following a #gastrostomy.
Joined October 2018
- Tweets 44
- Following 83
- Followers 70
- Likes 133
6 Photos and videos
PostGas retweeted
28 Feb 2020
mybreathing.mymnd.org.uk People affected by MND have been supported to develop something to help others learn from their experiences. They have taken the best evidence and their personal experiences and come up myBreathing. #ALS #MND #coproduction
28 Feb 2020
Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk/
23
22
PostGas retweeted
29 Feb 2020
A fantastic addition to the ‘myMND’ information resources. Developed in collaboration with people living with MND, helping inform about the option to start non-invasive ventilation (NIV). Check it out and share far and wide @mndassoc @SYMNDA mybreathing.mymnd.org.uk
2
8
8
PostGas retweeted
7 Feb 2020
Really inspiring talk by dietitian Sean White, on the importance of MDT working and how we present information to patients in an accessible and timely fashion to support complex decision making for alternative feeding @UKSRG2 #UKSRG2020 #MND @mndassoc
8
28
PostGas retweeted
10 Feb 2020
The 2019 Hawking Lecture is now available to view online. It features @profcjmcdermott presenting the latest thinking on nutrition in #MND.
Visit bit.ly/RCN2019 and register for a free account. @theRCN
1
12
12
PostGas retweeted
15 Jan 2020
Are you a healthcare professional supporting people with progressive neurological conditions to make decisions about gastrostomy placement? Please follow link below if you wish to complete national survey on current practice. Survey closes in 2 days. scharr.eu.qualtrics.com/jfe/…
7
3
PostGas retweeted
2 Jan 2020
Let's start 2020 the way we mean to carry on, by raising awareness of motor neurone disease.
Please retweet our graphic which highlights some of the key facts about the disease.
Together we can achieve our vision of a world free from #MND 🧡 thank you for your support!
4
183
116
PostGas retweeted
20 Dec 2019
Are you a nurse supporting people with neurological conditions such as motor neuron disease, multiple sclerosis or Huntington’s Disease to making decisions about gastrostomy placement? Please consider completing this survey: scharr.eu.qualtrics.com/jfe/…
8
3
PostGas retweeted
16 Dec 2019
Once again, congratulations to @DoddieWeir5 on being awarded the Helen Rollason Award yesterday, which recognises outstanding achievement in the face of adversity.
It was presented by HRH The Princess Royal at this year's @BBCSport #SPOTY.
Watch here 🏉 bbc.co.uk/sport/sports-perso….
2
19
112
PostGas retweeted
19 Dec 2019
Christmas came early for the @DiAMoNDstudy_! Protocol paper published in the @BMJ_Open today - find it online here: bmjopen.bmj.com/content/9/12… #MND #decisionmaking #decisionaid @mndassoc @mariecurieuk
16
22
19 Dec 2019
Wow, great to see the @PostGas December update on the @LOROSHospice research wall 😍
This tweet is unavailable
29 Nov 2019
University Hospital Southampton @UHSFT is our newest PostGas site. We are delighted to welcome them to the team! 🥳
4
28 Nov 2019
We have reached a significant milestone on the PostGas study recruiting over 100 participants!
And we have crossed the halfway mark to our recruitment target of 200 participants across all sites 🥳👍🎉
3
8
PostGas retweeted
28 Nov 2019
Over 420 posters will be displayed at this year's #alsmndsymp in Perth. These laid end to end would cover the arch span of the Sydney Harbour Bridge! What an amazing amount of #MND research 🤯
1
7
21
PostGas retweeted
25 Nov 2019
Please complete this survey looking at use of water in enteral nutrition @PENGDT qmu.onlinesurveys.ac.uk/wate…
10
4
PostGas retweeted
25 Nov 2019
Congratulations to @neuroshef awarded the #QueensAnniversaryPrize for innovation in neuroscience research - we are proud to be supporting Prof. Bandmann's work with #UDCA - understanding the drug’s potential to slow #Parkinsons
sheffield.ac.uk/news/nr/roya…
9
24
PostGas retweeted
18 Nov 2019
100 HCP’s have already responded to survey about how they support people with progressive neurological conditions to make decision about gastrostomy placement. Doctors, nurses, speech & language therapists, and dietitians: you can complete survey here: scharr.eu.qualtrics.com/jfe/…
9
10
PostGas retweeted
31 Oct 2019
Yesterday we held an #MND equipment roadshow- @ominayasmin had a go on the Neater Eater - sadly no chocolate was available! @mndassoc
1
3
19
