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Rare Disease Research @RDR_Atlanta

Providing exceptional research through clinical trials.

Joined April 2022
  • Tweets 20
  • Following 7
  • Followers 26
18 Photos and videos
Rare Disease Research (RDR) & Gooseberry Research (GBR) are sponsoring the World Orphan Drug Congress (WODC) in Boston, MA, from April 22-24! šŸŒŸ Visit us at Exhibit #439 to learn more about the groundbreaking work weā€™re doing! #WODC #RareDiseaseResearch #GooseberryResearch
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Now Enrolling: BEACH301 Clinical Trial In partnership with Tyra Biosciences, Rare Disease Research (RDR) is committed to advancing research and providing access to a new clinical trial for eligible children with achondroplasia. Learn more at achondroplasia.bio
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Excited to welcome Dr. Scott Batchelor, MD, to Rare Disease Research LLC! With 16 years of pediatric emergency care experience, heā€™s ready to help us advance research & treatments for rare disease patients. #RareDiseaseResearch #PediatricCare #HealthcareInnovation
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Forget basketball ā€“ March Madness hit the office with an epic Connect Four Tournament! šŸ€šŸŸ”šŸ”“ Brackets were busted, trash talk was real, and the competition was intense. Whoā€™s ready for a rematch? šŸ‘€šŸ† #MarchMadness #OfficeShowdown #ConnectFour
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We are excited to partner with @tyrabiosciences Biosciences to bring the BEACH301 clinical trial for eligible children with achondroplasia to families in the southeastern US, starting in Atlanta. šŸŒ Visit at achondroplasia.bio to learn more. #Achondroplasia
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Counting down to SCRS IncluDE Site Solutions Summitā„¢ on April 7-8, 2025, in Atlanta, GA! RDR, LLC will be at the SCRS IncluDE Site Solutions Summitā„¢ connecting with peers. Be sure to stop by our exhibit booth #4! Letā€™s Partner for Progressā„¢ and work together #SCRS2025
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Rare Disease Research is launching a new clinical trial for MCT8 deficiency called MCT8/ReTRIACT. This trial aims to explore potential treatments of individuals affected by this condition. To learn more about the trial and how to get involved, contact the RDR team today
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Just back from #MDA2025, feeling inspired & energized!āš”ļø Dr. Smith, Dr. Giordano, Dr. Shih, and Alpa had incredible discussions on groundbreaking research & collaborations that put patients first. Huge thanks to the organizers, speakers, & all who made this event a success!
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Counting down to SCRS IncluDE Site Solutions Summitā„¢ on April 7-8, 2025, in Atlanta, GA! Rare Disease Research, LLC will be at the SCRS IncluDE Site Solutions Summitā„¢ Be sure to stop by our exhibit booth #4! Letā€™s Partner for Progressā„¢ and work together #SCRS2025
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Happy Certified Nurses Day to three incredible Nurse Practitioners at RDR, LLC! Emily Murray, Kallie Platt, and Meg Hudspeth! šŸ’™Their dedication to patient care and clinical research makes a real impact in the rare disease community every day. #CertifiedNurses
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Welcome Austin Holland to Rare Disease Research LLC as our new Clinical Site Manager! With a strong background in clinical operations & leadership, plus a runnerā€™s endurance, heā€™s ready to help drive our research forward. šŸ‘šŸƒā€ā™‚ļø #NewHire #ClinicalResearch #RDR
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Looking forward to an interactive Day 2 at the MDA conference! Proud to sponsor the MDA Clinical & Scientific Conference (March 16-19, 2025) in Dallas, TX! Join PI Edward Smith at the Catalyst Pharmaceuticals Forum on March 18, 7-8 a.m. CT. Letā€™s connect! #MDAconference
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At MDA Conference? Stop by our booth! We're talking rare disease research & home health trials. Welcome reception 6 PM EST. See you there! #RareDisease #GooseberryResearch #RDR #WelcomeReception #MDA
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šŸ”¬ Celebrating the scientists whose discoveries drive rare disease treatments! šŸ“·Our principal investigators are grateful to the scientists driving breakthroughs in rare disease research! Your dedication is paving the way for life-changing treatments. #CelebrateScientistsDay
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Welcome Dr. Renata Shih to RDR! šŸŽ‰ A pediatric cardiologist with 10 years of experience, joining our Atlanta team to advance rare disease research. #RareDiseaseResearch #ClinicalTrials
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Exciting news! Weā€™ve installed a new compounding aseptic isolator at our @RareDiseaseResearch site in Atlanta. Meet Gene-ifer, here to support new gene therapy clinical trials and deliver life-changing treatments for rare diseases! šŸ’Ŗ #ResearchInnovation #GeneTherapy
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Proud to be a partner of the 2025 @MDAorg Clinical & Scientific Conference in Dallas, March 16-19. The conference will explore the latest research advancements & clinical achievements in #neuromuscular disease. Please see us at the booth # 525!
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Exciting news from the FDA! New treatments have been approved for babies under two months. Click here to read more and follow the links through. linkedin.com/feed/update/urnā€¦ #fda #clinicaltrials #clinicalresearch #sma #spinalmuscularatrophy #rarediseaseresearch

#fda #clinicaltrials #clinicalresearch #sma #spinalmuscularatrophy #rarediseaseresearch | Rare...

On May 30, 2022, it was announced that the FDA has approved EvrysdiĀ® (risdiplam) for use in babies under two months of age with Spinal Muscular Atrophy (SMA). This is exciting news for not only the...

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RDR was thrilled to attend the first annual Rare Strides Glow in the Dark Concert on May 7, 2022! We are proud to collaborate with @RareStrides as we further a shared goal of making rare visible. #raredisease #rdr
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Huge shoutout to one of our leaders, Dr. Trang Vo. She's an integral part of our team. Click here for more on her: tinyurl.com/mr4dj2u3 #rarediseaseresearch #clinicaltrials #clinicaltrialsatlanta
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