@RareStrides profile picture
Rare STRIDES® @RareStrides

Rare STRIDES® is an innovative technology company focused on improving quality of life for patients. Our Mission: Connecting Care to Those with Rare.

Joined February 2019
  • Tweets 23
  • Following 100
  • Followers 44
18 Photos and videos
Children and adults with rare diseases deserve excellence in healthcare. Rare diseases are just as important to recognize as stroke. We look forward to the day when rare info is easily accessible to medical teams to help save lives! #RareDiseaseDay2023 #MakeRareVisible
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We are so thankful for our rare community. We appreciate our compassionate leaders and members of the medical team who are committed to the delivery of exceptional clinical care for rare patients in every medical setting. We are filled with hope as we make strides together!
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We are so thankful for our incredible leaders who serve the rare community. THANK YOU Trena! She was nominated and selected as one of the top 24 finalists recognized by Gwinnett Chamber Moxie Awards in the On the Rise Category! #moxieawards
At Rare STRIDES we are celebrating #rarediseaseday by honoring the patient journey. We are committed to #makerarevisible in every healthcare setting. We are excited about the launch of our new giving program; Rare Wish to grant wishes for children and adults with rare diseases!
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Save the date! May 7 @cityofsuwanee Towne Center for Make Rare Visible Glow in the Dark Concert. Details will be updated on our FB event page. #makerarevisible #rarewish #rarestrides
Rare STRIDES® retweeted
The Rare Disorder Podcast@RareDisorderPod
23 Jan 2022
NEW EPISODE LIVE! Link in bio to listen. This is the episode we have all been waiting for! 🦓🤍 I'm so honored to chat with Beth Nguyen. Beth is the Managing Director; Founding Partner, and President of Rare STRIDES. @RareStrides
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Rare STRIDES is in the news! 2022 is starting out on the right path as we #makerarevisible; our passion is serving the Rare Community. To read the article: voyageatl.com/.../community-…
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From your friends at Rare STRIDES, have a safe and Happy New Year! Together we can #makerarevisible in 2022. #rarestrides #nye #newyear #2022
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Rare STRIDES wishes you and your family a Merry Christmas, Happy New Year, and Happy Holidays. Let's welcome 2022 with great STRIDES! #makerarevisible #rarestrides #merrychristmas #happynewyear
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Code Rare® is an exciting program launched by a paramedic and registered nurse as a vital nationwide call to action: #MakeRareVisible Code Rare® launched to strengthen patient safety and education about rare diseases in all medical settings. Upcoming webinar: 8/1/21
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Meet Beth Nguyen; a compassionate registered #nurse driven to help the rare community while battling her own rare journey. Beth's passion is to pave a path forward for children and adults with rare diseases in healthcare. ow.ly/MM2250DT7sB #InternationalWomensDay
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Today is #RareDiseaseDay and we are committed to the delivery of exceptional clinical care for children and adults impacted by rare diseases. We care and give back though Rare Wish® and RS Nurses Speaker's Bureau® #MakeRareVisible #Healthstrides4rare ow.ly/Z8MA50DM089
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There is a critical need for diagnostic excellence and care coordination for rare diseases in every medical setting. Read our first #whitepaper publication here #RareDiseases #Healthcare #healthstrides4rare #wellness #care #healthreform #digitalhealth ow.ly/Dwnv50DIVrf
Did you know that the rare types of Sickle Cell Disease (SCD) include HbSD, HbSE, and HbSO? Rare STRIDES® offers blogging and preceptorship opportunities for nursing and medical school students! Read the latest blog by a student nurse here: ow.ly/2PQm50Dok9V
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Excited to share our first nonprofit blog submission "Crash & Burn" by the Kawasaki Disease Foundation Youth. Artwork by KDF Youth and our Artist Hailey Edwards in honor of the late Dr. Tomisaku Kawasaki. Join our Make Rare Visible Challenge Now! ow.ly/Nmdl50DcDAX
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Our first nonprofit blog comes from the Kawasaki Disease Foundation Youth (@kdfyouth on instagram). Help us make rare visible! #rarestrides #Healthcare4Rare #Kawasaki ow.ly/lBnm50DcAnT
Please take a moment to click on the link below, sign and share the petition to show your support. Thank you very much! Demand Innovation to Support Patients Battling Rare Diseases and COVID-19! #Rarediseases #COVID19 #Nurse change.org/Healthstrides4Rar…
Today is #WorldHealthDay! Thank you to all healthcare workers...we appreciate you! Rare STRIDES: Passionate Vision of a #Nurse Adapts Rare Innovation to Fight #COVID19 #SupportNursesAndMidwives #healthcare #technologynews buff.ly/2xXmNY5
Rare STRIDES® retweeted
The Daily Show
@TheDailyShow
27 Mar 2020
Dr. Anthony Fauci answers some of the most pressing questions surrounding coronavirus: How is it spread? What makes it so insidious? What are the dangers of self-medicating? Can you get re-infected?
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Rare STRIDES® mission is to empower patients and health teams with innovative tools to successfully navigate rare diseases; and to connect streamlined healthcare to the rare community one step at a time. #Healthstrides4rare #rarediseases #healthcare #patientsafety
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