Official Rare Disease UK REOLUT account. Improving lives of people with rare conditions of the lower urinary tract.
Joined May 2024
- Tweets 26
- Following 340
- Followers 30
- Likes 32
9 Photos and videos
Pinned Tweet
23 Jan 2025
📢CALL FOR ABSTRACTS
🚨2nd REOLUT Conference
📅26 March 2025
🏢Hyatt Regency Manchester
Spaces are filling up to present your work! Don't forget to..
✨Register: buytickets.at/rdrukepigenrar…
✨Submit your abstract: forms.office.com/e/Y6SiDDBZm…
@GeneticBill
@drmelaniechan
@RDRUKHub
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25 Mar 2025
The REOLUT node is delighted to attend the @RDRUKHub 2nd Annual Conference at the Hyatt Regency, Manchester. Our Node Lead, @GeneticBill, opened the event with a speech introducing the Manchester nodes and welcoming attendees. Looking forward to an insightful conference! #RDRUK
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21 Mar 2025
🚨1 WEEK TO GO & SPEAKER ANNOUNCEMENT🚨
🎙️Mr. Sebastian Osorio Rico - University of Antioquia
📢“Living with a REOLUT condition"
✨2nd REOLUT Conference
🗓️26th March 2025
🏨 Hyatt Regency, Manchester
🎟️Online registration: buytickets.at/rdrukepigenrar…
@sebas_osorio29
@RDRUKHub
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4 Mar 2025
🚨1 WEEK LEFT TO REGISTER IN-PERSON 🚨
✨2nd REOLUT Conference
🗓️26th March 2025
🏨 Hyatt Regency, Manchester
🎟️Registration: buytickets.at/rdrukepigenrar…
@GeneticBill
@drmelaniechan
@RDRUKHub
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18 Feb 2025
🚨Keynote Speaker Announcement 🚨
🎙️Dr. Sean Gavan - University of Manchester
📢“Health economics of gene therapy for a rare urinary tract disease"
✨2nd REOLUT Conference
🗓️26th March 2025
🏨 Hyatt Regency, Manchester
🎟️Tickets: buytickets.at/rdrukepigenrar…
@sean_gavan
@RDRUKHub
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10 Feb 2025
📢FINAL CALL FOR ABSTRACTS 📢
🚨2nd REOLUT Conference
🏨Hyatt Regency Manchester
1 week to go until the submission deadline! Don't forget to..
✨Register: buytickets.at/rdrukepigenrar…
✨Submit your abstract: forms.office.com/e/Y6SiDDBZm…
@GeneticBill
@drmelaniechan
@RDRUKHub
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3 Feb 2025
🚨Keynote Speaker Announcement 🚨
🎙️Prof. Jenny Rohn - UCL
📢"How to model the lining of the human urinary tract in the laboratory."
✨2nd REOLUT Conference
🗓️26th March 2025
🏨 Hyatt Regency, Manchester
🎟️Tickets: buytickets.at/rdrukepigenrar…
@JennyRohn
@RDRUKHub
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13 Jan 2025
📢AGENDA ANNOUNCED 📢
🚨2nd REOLUT Conference
🗓️26 March 2025
📷Hyatt Regency, Manchester
Registration - buytickets.at/rdrukepigenrar…
Poster submission - forms.office.com/e/Y6SiDDBZm…
@GeneticBill
@drmelaniechan
@RDRUKHub
#RareDisease #PPIE
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REOLUT - Rare Disease Research UK retweeted
19 Dec 2024
📢REGISTRATION NOW OPEN📢
🚨1st ELSI Conference
🗓️26 March 2025
🏢Hyatt Regency, Manchester
Please register your attendance for free using the link or QR code below
buytickets.at/rdrukepigenrar…
@ramonazmoldovan
@RDRUKHub
@annekeluc
#RareDisease #ELSI #rareconditions
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29 Nov 2024
📢REGISTRATION NOW OPEN📢
🚨2nd REOLUT Conference
🗓️26 March 2025
🏢Hyatt Regency, Manchester
Please register your attendance using the link or QR code below
buytickets.at/rdrukepigenrar…
@GeneticBill @drmelaniechan @RDRUKHub
#RareDisease #PPIE
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REOLUT - Rare Disease Research UK retweeted
A warm welcome from the new president of the #societyforhumangenetics @GeneticBill! As the website is already live, check out the first information about #eshg2025 such as preliminary programme, confirmed speakers and plan your visit to Milan already now: 2025.eshg.org/
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14 Nov 2024
📅 Save the Date!
📢Our 2nd Annual Conference is happening on 26 March 2025 at the Hyatt Regency, Manchester (same day as @RDRUK_ELSI and @EpiGenRare Conferences & following the RDRUK Node Annual Conference on 25 March 2025).
📷Stay tuned for registration and more information!
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REOLUT - Rare Disease Research UK retweeted
10 Oct 2024
Great resource for #PrimaryCare on #CKD from @ImperialNHS #kidney giants @jeremyblevy @AndrewFrankel1
10 Oct 2024
Podcast alert 📢
Kidney care made easy for primary care clinicians
🩺How severe is a potassium of 6 on a Friday evening? When to stop RAASi or start potassium? Are restrictive diets needed?
open.spotify.com/episode/5Uc…
@HealthierNWL @ImperialNHS
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REOLUT - Rare Disease Research UK retweeted
7 Oct 2024
🚨Job alert
We are hiring!
jobs.manchester.ac.uk/Job/Jo…
#ResearchAssociate #RareDisease #ELSI #Genomics
@mft_iMRare
@RDRUKHub
@EGS_UoM
@FBMH_UoM
7 Oct 2024
📢 New post 📢
Research Associate: ELSI in Genomics
📝Opportunity to join our team in Manchester. Role focused on understanding needs of families taking part in clinical trials for rare conditions
@RDRUKHub @RDRUK_ELSI @The_MRC @NIHRresearch @FBMH_UoM
bit.ly/4dwnw0o
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REOLUT - Rare Disease Research UK retweeted
7 Oct 2024
📢 New post 📢
Research Associate: ELSI in Genomics
📝Opportunity to join our team in Manchester. Role focused on understanding needs of families taking part in clinical trials for rare conditions
@RDRUKHub @RDRUK_ELSI @The_MRC @NIHRresearch @FBMH_UoM
bit.ly/4dwnw0o
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REOLUT - Rare Disease Research UK retweeted
2 Oct 2024
When submitting proposals please consider session proposals that include adults and CYP to encourage a joined-up focus and facilitate greater participation of paediatric nephrology teams at the meeting! @BAPNnephrology @UKKidney @Kidney_Research
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REOLUT - Rare Disease Research UK retweeted
3 Oct 2024
Very happy to have hosted Autumn 2024 @GenethicsForum . Our lead PI @ramonazmoldovan gave a great overview of the ELSI Node. Thank you to everyone who attended and joined in the discussions, especially our plenary speaker @FOPFriends
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REOLUT - Rare Disease Research UK retweeted
13 Sep 2024
🌟Would you like to share your views about clinical trials for rare conditions? Apply to join the focus group now!
Application deadline: 13 October
13 Sep 2024
How should clinical trials be set up to work well for people with rare conditions? Apply to join a focus group of people with rare conditions or carers at The Exchange in Birmingham on 19 November 2024 (10:30 - 14:30).
👉 ow.ly/FGty50Tk05G
@RDRUKHub @CRCTU
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13 Sep 2024
Great opportunity for any rare disease early career researchers!
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6 Sep 2024
Congratulations to one of our Co-Investigators Dr Neil Roberts for securing another prestigious grant that aims to develop a new gene therapy for the rare bladder disease, Urofacial Syndrome.
👏 Congratulations to Dr Neil Roberts on being awarded a @The_MRC grant to develop a new gene therapy for the rare bladder disease, urofacial syndrome.
This follows his project funded by Manchester BRC's Next Generation Therapeutics Theme through @Translation_Mcr’s A2E scheme.
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