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The Rare Disorder Podcast @RareDisorderPod

A podcast dedicated to raising awareness for rare diseases and disorders 5K active listeners, 1K followers, 35 ep. & growing | Host @ShivaniGVyas

Joined July 2021
  • Tweets 39
  • Following 36
  • Followers 126
15 Photos and videos
Today marks the first day of rare disease month! Stay tuned for activities and fun things throughout the month! Shivani #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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Looking for a social media intern to help me out with the whole social media aspect of the podcast :) Apply via LinkedIn under The Rare Disorder Podcast. #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseday #internship #socialmediaintern
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A quote from Saturday’s podcast…link in bio to stream! 🎙🦓 #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate
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The Rare Disorder Podcast retweeted
Dan Dry Dock Shockley @DryShockley
30 Jan 2022
As a 10 year hereditary colon cancer warrior here's my latest podcast guest appearance: open.spotify.com/episode/6WN… Always Forge Ahead w/a Purpose!
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New episode with @DryShockley Hear about rare disease advocacy from the point of view of a 10-year Hereditary Colon Cancer Warrior & Veteran. Such a great episode! #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate
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Donations are now live for The Rare Disorder Podcast! Please consider donating, it’ll really help me out! #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday #donate
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Saturday = best day, because it’s The Rare Disorder Podcast upload day! Tomorrow at 2PM Eastern! Mark your calendars 📆. #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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The Rare Disorder Podcast retweeted
Cure Rare Disease @CureRareDisease
26 Jan 2022
Meet our new #intern, Shivani Vyas! While Shivani may be new to the #CureRareDisease team, she is not new to the rare disease community. Read more about Shivani’s dedication to the #raredisease community in her new #blog post: cureraredisease.org/blog-pos…

Meet Our New Intern: Shivani Vyas | | Cure Rare Disease

Read more about Cure Rare Disease's new development intern Shivani Vyas and her dedicated background in rare disease advocacy.

cureraredisease.org
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New episode will go up Saturday! 🦓💜🤍 #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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Hear from a registered RN nurse, with bedside experience! We talk about restoring the patient provider relationship, eliminating barriers to care, and delivering free programs and evidence-based resources to improve quality of life/care.
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@RareStrides
A quote that resonated with me from last Saturday’s podcast - take a listen if you haven’t already! 🦓💜🤍 #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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@RareStrides
And all of these topics come with first-hand experience of Beth Nguyen, with extensive background and experience with rare disease patients, as well as her having a rare disease herself—-Syringomyelia! #theraredisorderpodcast #raredisorderpod #raredisease
NEW EPISODE LIVE! Link in bio to listen. This is the episode we have all been waiting for! 🦓🤍 I'm so honored to chat with Beth Nguyen. Beth is the Managing Director; Founding Partner, and President of Rare STRIDES. @RareStrides
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With a very special guest. Stay tuned! 🎙 #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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Getting many requests lately about being on the pod - if you’re interested, please email me! 💌theraredisorderpodcast@gmail.com #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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A fun fact for your Wednesday! #theraredisorderpodcast #raredisorderpod #raredisease #rarediseases #rarediseaseawareness #rarediseaseday
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The countdown begins now! Only 40 days left until Rare Disease Day 2022 🦓💚💜🤍. - - - #raredisease #rarediseases #rarediseaseawareness #theraredisorderpodcast #raredisorderpod #rarediseasewarrior #rarediseasephotochallenge #rarediseaseadvocacy #rarediseasefamily
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The Rare Disorder Podcast is revamping in 2022, with a new podcast format and new upload dates! Mark your calendars for every Wednesday and Saturday at 2pm ET. - - - #raredisease #rarediseases #rarediseaseawareness #theraredisorderpodcast #raredisorderpod #rarediseasewarrior
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