A safe space platform creating awareness, educating, and breaking boundaries for #sicklecellwarriors and their loved ones.

Joined October 2019
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What does it take to give someone their life back? For years, Jude lived with Avascular Necrosis, a condition that slowly took away his mobility, independence, and ability to provide for his family and serve his community. Today, Jude tells a different story about how recovery is possible when collaborative effort and support reaches the right people. But Jude is only one story. Many other Warriors are still waiting for that same chance. Your support helps make stories like his possible. 🎥Watch his story: youtu.be/vkCZ4A7kw4I To support or partner with the Hope for Warriors Fund, contact us: 📞 256 791 246663 📩 admin@raremarkfoundation.org
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The countdown begins! The 4th Edition of the Josephine Esisa Madewo Shining Star Gala is almost here, and we’re ready to light up September in the best way. Are you joining the glow‑up this year? #SSG
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Raremark Foundation retweeted
What does it take to give someone their life back? For years, Jude lived with Avascular Necrosis, a condition that slowly took away his mobility, independence, and ability to provide for his family and serve his community. Today, Jude tells a different story about how recovery is possible when collaborative effort and support reaches the right people. But Jude is only one story. Many other Warriors are still waiting for that same chance. Your support helps make stories like his possible. 🎥Watch his story: youtu.be/vkCZ4A7kw4I To support or partner with the Hope for Warriors Fund, contact us: 📞 256 791 246663 📩 admin@raremarkfoundation.org
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At Raremark Foundation, we define a hero by the service they give and the hope they inspire. Whether in the community, the hospital, or supporting from the sidelines, if your actions move us closer to a future where no Warrior walks in pain and every child has the chance to be born free from Sickle Cell Disease, you are a hero. #HeroesDay
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Raremark Foundation retweeted
Today, we look back at the history of the Martyrs and remember that sacrifice shapes the future. We see that same unyielding spirit of sacrifice reflected in the daily lives of our community, in caregivers who stay at bedsides past exhaustion, nurses who run on hours of little rest, and advocates who continue to ensure that awareness around #SCD never goes silent. Your sacrifices are building systems that endure. #MartyrsDay
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We’re stepping into one of our most biggest months yet. From surgical camps to global awareness days, we are showing the world what happens when we work together. The mission is in motion, and it only grows stronger with every hand that joins in. So we ask, what role will you play this month? 🤝 Partner with us 💸 Fund programs 📣 Share our story with your world
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Raremark Foundation retweeted
#HydroxyureaTreatmentLaunch highlights @DLindrio’s story reminded everyone in the room that resilience is its own kind of victory. “I am a princess living with this detrimental condition, but I cannot let it define me. I feel like my life so far has been very successful. I don’t know how people measure their level of success, but for me, living to the age of 26, having a well-paying job, being able to rent my own place, and supporting myself, I think I can say I am successful to an extent” , @DLindrio , Sickle Cell Warrior. #HydroxyureaTreatmentLaunch #LifeAfterWell #KeepingAfricaALive
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Raremark Foundation retweeted
They take care of everyone…but who takes care of them? How much do you really know about Caregiving? Let’s find out:👉 instagram.com/stories/rarema…

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☪️Eid Al Adha Mubarak May the sacrifices you make for this community be met with peace, purpose, and lasting impact. #EidMubarak
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At the launch of Uganda’s first Hydroxyurea manufacturing plant at @qcil_uganda2 last week, @DLindrio spoke about the power of genotype testing. "I would like to see a future free of sickle cell. I will do what I can on my part to ensure that it no longer exists." - @DLindrio Her message reflects that beyond innovation and policy, prevention and awareness remain key to ending the cycle of Sickle Cell Disease. "I will encourage everyone to go for genotype testing, because it is really important." - she adds Her voice is a reminder that change begins not only with treatment, but with early awareness and informed choices. Video credit: @ntvuganda
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Raremark Foundation retweeted
The local production of Hydroxyurea is expected to lower treatment costs, improve availability, and reduce dependence on imported medicines. Qcil continues to collaborate with the Ministry of Health, healthcare providers, and development partners to strengthen the response to non-communicable diseases, including Sickle Cell Disease. #HydroxyureaTreatmentLaunch #LifeAfterWell #KeepingAfricaALive
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Raremark Foundation retweeted
Today, we commissioned the Hydroxyurea Manufacturing Facility at Quality Chemical Industries in Luzira, a major milestone in Uganda’s fight against sickle cell disease. Many sicklers and their families have had to endure the physical and psychological, with treatment often too expensive for ordinary Ugandans. Local production of Sikurea will improve availability and affordability of this lifesaving medicine. Gov’t has also added Hydroxyurea to the list of essential medicines to be provided across our health facilities to expand access.
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The launch of the first Hydroxyurea manufacturing plant in Uganda comes at a critical moment, especially following the @AfricaCDC Continental Plan discussions on Sickle Cell Disease(SCD) and inherited blood disorders. It is truly encouraging and uplifting to witness such important progress being made in the fight against SCD. A big thanks to @MinofHealthUG, @qcil_uganda2 and all stakeholders advancing this important step forward for SCD care and management in Uganda. We hope this milestone contributes towards improved accessibility, affordability, and availability of treatment for the communities affected.
UPDATE: Ministry of Health Permanent Secretary Dr Diana Atwine is presiding over the launch of the first hydroxyurea manufacturing plant at Quality Chemical Industries Limited in Luzira. Hydroxyurea is a critical drug used in the treatment of sickle cell disease. Speaking at the event is the company’s Chief Executive Officer, Ajay Kumar. #MonitorUpdates 📹: @MwesigyeWalter
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To us, every program, conversation, and partnership is designed to leave a lasting footprint in Sickle Cell Disease awareness and support. From workplaces to schools, and communities, we believe in sustainable change through combined efforts. We are actively collaborating with organizations, institutions, and individuals committed to measurable, long‑term impact. Let’s expand reach, strengthen awareness, and improve outcomes together. 📩 admin@raremarkfoundation.org 🌐 raremarkfoundation.org
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