President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.
Joined January 2010
- Tweets 12,599
- Following 5,133
- Followers 5,854
- Likes 13,113
1,574 Photos and videos
Julie Flygare retweeted
Apr 27
🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #SleepApneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: project-sleep.com/sleep-apne…
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Julie Flygare retweeted
Ooof. It’s like they mated hypersomnia and narcolepsy to make a Hollywood stigma baby.
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Apr 20
👀Hyper narcolepsy’ isn’t real. But narcolepsy is—and it’s far more complex than TV usually explains.
🎬 So when The Pitt, known for medical accuracy, drops a line like this, it’s odd.
💡An accurate portrayal of a doctor or patient with #narcolepsy would be innovative.
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Mar 23
Did you know there’s a Sleep Helpline to help people navigate sleep issues and #sleep disorders? Thank you Spectrum News for covering my journey and why I wish @project_sleep had existed when I was diagnosed with #narcolepsy many moons ago. spectrumnews1.com/ca/souther…
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WATCH: Day 2 of #AxiosHouse at SXSW is live! Tune in to hear conversations looking at the role of media in shaping society's approach to health and wellness.
x.com/i/broadcasts/1MKgNgbBD…
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Julie Flygare retweeted
21 Nov 2025
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stu…
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17 Nov 2025
Can we reach 2000 signers? With 1 in 2,000 people living with narcolepsy, it would be SO meaningful, especially since the majority of people living with narcolepsy are UNDIAGNOSED so unaware of what they are up against. c.org/P64B9D55H6
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11 Nov 2025
What does #narcolepsy look like? Spoiler alert: not like this! @nbc’s new show #Stumble repeats a tired Hollywood trick — the plank fall thud. Please share my analysis and sign our petition: c.org/P64B9D55H6
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10 Nov 2025
Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support.
SIGN AND SHARE: c.org/P64B9D55H6
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8 Nov 2025
Dear Hollywood: We are tired of the tired trope. Please sign and share this -- as #narcolepsy is a fascinating, complex condition, and NBC now has the opportunity to educate millions and dismantle long-held misunderstanding and stigma through responsible, informed storytelling!
8 Nov 2025
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
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8 Oct 2025
We're live!! Join us to hear Maha Awad's #Narcolepsy Story Sharing Event! youtube.com/live/bdHkZNpJzwA… via @YouTube
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Julie Flygare retweeted
22 Sep 2025
September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale.
🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narc…
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Julie Flygare retweeted
22 Sep 2025
Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narc…
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Julie Flygare retweeted
20 Sep 2025
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18 Sep 2025
Yes I canceled @DisneyPlus right away.
18 Sep 2025
Would suggest we all consider this. Cancel Disney and ABC until they reverse this
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Julie Flygare retweeted
18 Sep 2025
First Colbert, now Kimmel.
Last-minute settlements, secret side deals, multi-billion dollar mergers pending Donald Trump's approval.
Trump silencing free speech stifles our democracy. It sure looks like giant media companies are enabling his authoritarianism.
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Julie Flygare retweeted
16 Sep 2025
"He's so personable & it's just refreshing to see that there's a human that is willing to put others before himself & also understand that this isn't about party-line politics. It's about people."
@RobSandIA in Davenport last night. #IAgov qctimes.com/news/local/gover…
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Julie Flygare retweeted
17 Sep 2025
New study this week again confirms: permanent Standard Time—not permanent Daylight Saving Time—is best.
ALT Screenshot from article (linked below): > “The elimination of switching clocks twice is a great move, but if we’re going to really be making changes to optimize health and well-being, then a switch to permanent standard time is really what best aligns our internal clock with the world around us,” explained Anita Shelgikar, president of the American Academy of Sleep Medicine and a clinical professor of neurology at the University of Michigan. The academy has advocated for a switch to permanent standard time.
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Julie Flygare retweeted
18 Sep 2025
This aged well.
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17 Sep 2025
About last week, WOW! What an experience! Honored to represent @project_sleep, share my personal and professional experience and attend historic orexin agonist presentations!
17 Sep 2025
Reflecting on an amazing #WorldSleep2025 in Singapore! 🌏 Over 4,000 researchers & clinicians gathered — and we were thrilled to share patient voices witness historic #narcolepsy orexin agonist trial results from @TakedaPharma & @Alkermes. The future of sleep is bright!💙
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