"My brain hasn't felt like this in a very long time and it's incredible and I don't want it to go away." 😭 This is the response that many people with Craniocervical Instability (CCI) have when their head is lifted with invasive cervical traction (ICT). Many then have the same experience with cervical fusion surgery and many who meet the criteria for ME/CFS go into total remission. There are hardly any surgeons who have the experience to do this surgery, though, and surgery doesn't work for everyone. It makes some worse. It's risky. I don't think that CCI and/or mechanical issues are causing all cases of ME/CFS. It needs to be studied more! We need to figure out how to prevent this altogether, how to stop it from getting worse, how to treat it with non-surgical options. I think that instant improvement of symptoms in ICT is also a clue about pathophysiology of ME/CFS. I hope that our paper will move the needle forward. x.com/RenegadeRes/status/199…

Help us reach out goals this #GivingTuesday2025

Help out parent organization @RenegadeRes fundraise for the holidays without additional cost

Today at 2pm Medtwitter MedX

Reminder: This Friday at 2:00pm ET (USA) - invite your providers and share on your networks so more clinicians can learn how this intervention is helping patients

New Medical Coaching and Consulting for patients with MECFS and long covid started by @RenegadeRes Watch the recording of the info session youtu.be/r_N9apL7k1E?si=umqq… Fill out the interest form forms.gle/AQx41Y7NYWvi9VLp8 or send questions coaching@renegade-research.org

Reminder that our @RenegadeRes parent organization has started a Medical Coaching and Consulting for patients with MECFS and long covid. Watch the recording of the info session youtu.be/r_N9apL7k1E?si=umqq… Send questions to coaching@renegade-research.org

I'm looking forward to this! I've been chatting with Alex and he's brilliant. I have his tech ready to start testing on Monday when I get back from vacation.

Many clinical roads and biochemical / neuro paths lead to the brainstem. 🔔Lots going on with nerves in the brainstem (that can be disrupted by inflammation and limited blood flow).

If you follow us for the RemissionBiome project, you will want to follow our parent organization @RenegadeRes to follow additional details on RB and also follow all of our projects!

Recording of our Medical Coaching and Consulting Community Briefing is now posted to our YT channel. See link in comment.

If you didn't know, Remission Biome is a project of @RenegadeRes. This announcement highlights our new Medical Coaching and Consulting for patients with MECFS and Long Covid. Join us Friday for more details and fill out the interest form in thread.

Pacing isn’t curative but it’s a necessary skill for people living with energy limiting conditions. ME and ME-like conditions that are associated with known deficits in aerobic metabolism. Obviously I teach pacing and that’s centered on patients’ specific self-identified needs.

PwME, PwLC, POTS: The US is about to experience a scorching heat wave. Electrolytes, compression, AC/fan, cold caps, cool shower/bath, etc Please have everything available to you ready. Most don’t have luxury of pool, but if you do & are able to get in one, use it. Link 🧵

✅️ Accelerate Research Care! 🔬 #MECFS #longCOVID Our work impacts the lives of many! Patients caregivers are listened to and empowered. (campaign link below)

We have many exciting projects underway! Any amount of donation helps no matter how small. Thanks we appreciate you! 🙏 🔗 https://www.zeffy .com/en-US/fundraising/9888892c-f8dc-4dca-b1c2-3603f6f3c755

New preprint alert! Jeff Woods explores the mechanical basis of ME/CFS in a recent manuscript on Preprints.org: preprints.org/manuscript/202… For more, watch the research roundtable hosted by @remissionbiome: youtube.com/watch?v=3ZapHZ9X…

study: critical role of the N protein in cognitive impairment after COVID-19 infection Caused by microglia senescence 🔔Key = Inflammation from senescent cells! findings: microglia senescence is a key target for intervention strategies for cognitive impairment after COVID-19

Very cool study- someone noticed a pattern and was curious enough to investigate! “Interestingly, older adults with neurological dysfunction maintained on N-methyl-D-aspartate receptor (NMDAR) antagonists, such as memantine, had reduced incidence and severity of COVID-19”

Mitochondria Are More Than Powerhouses—They’re the Motherboard of the Cell scientificamerican.com/artic… Fascinating piece by @MitoPsychoBio. Makes me wonder if the energy problems in ME are related to cristae alignment/mito-mito communication 🤔🧵