@SHAREStudyUK profile picture
SHARE Study @SHAREStudyUK

Online survey aimed at urgently assessing needs of children and young people with a serious condition and their parents, during the COVID-19 outbreak.

Joined July 2020
  • Tweets 16
  • Following 30
  • Followers 27
2 Photos and videos
SHARE Study retweeted
CentRIC⁺@CentRIC_UoS
13 Mar 2024
🌟Calling all 16-39 year olds with a lived experience of cancer – we want your input! Join our get together session, in-person or online, and help us explore how we can better involve young diverse voices in our research. Scan the QR code for more info and to register!
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SHARE Study retweeted
Ashley Ball-Gamble@ashleysgamble
1 Dec 2022
Great to see some more research published from the SHARE study, that informed our work with parents during the COVID-19 pandemic adc.bmj.com/content/early/20… @asdarlington @drbobphillips @drjessmorgan @CCLG_UK
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🔦NEW: Our report on parents' experiences of preterm birth throughout the COVID-19 pandemic suggests significant psychological and emotional impacts during the birthing experience and the neonatal intensive care journey @Blisscharity onlinelibrary.wiley.com/doi/…
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Complete our survey and share your views! We want to know how children and young people (aged 12-30) and their parents are coping now that COVID restrictions have been lifted. For more information on eligibility and links to the survey, open the thread below 👇👇
SHARE Study@SHAREStudyUK
15 Oct 2021
💬We want to hear from you! We want to know how children and young people (CYP) and their parents are coping now that COVID restrictions have been lifted Parents: forms.office.com/r/imtYUdJsn… CYP (aged 12-30):forms.office.com/r/XM8kgcGAT… @unisouthampton @UniOfYork @CCLG_UK #TheSHAREStudy
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💬We want to hear from you! We want to know how children and young people (CYP) and their parents are coping now that COVID restrictions have been lifted Parents: forms.office.com/r/imtYUdJsn… CYP (aged 12-30):forms.office.com/r/XM8kgcGAT… @unisouthampton @UniOfYork @CCLG_UK #TheSHAREStudy
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We want to hear from children and young people (aged 12-30) who have cancer, kidney condition, heart condition, cystic fibrosis, and hydrocephalus, and from their parents. We also want to hear from parents who have a child with a life-limiting condition or a preterm baby.
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@TheBHF @TheCHF @cftrust @Kidney_Research @kidneycareuk @Blisscharity @Tog4ShortLives @SHINEUKCharity @HarrysHAT5 @LeedsHospitals @UHSFT
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🔦💬We are delighted that @YincentTse will be presenting our findings at the #ESPN2021 annual meeting with an oral discussion on COVID-19: experiences of lockdown and support needs in children and young adults with kidney conditions
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🔦💬We are delighted that @drjessmorgan will be presenting our findings at #SIOP2021 with an E-poster discussion on SHARE-ing experiences, needs, and decision making of parents of children with cancer in the United Kingdom during COVID-19.
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SHARE Study retweeted
Yincent Tse@YincentTse
15 Jun 2021
Experiences & support needs of UK Young People with kidney condition during first covid wave. Significant differences shielded vs non-shielded See at #RCPCH21 @BAPNnephrology @arvnagra @DrDeano @ReadySteadyGo3 Video summary co-produced with young people youtu.be/LYX0BuHoi70

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🔦New: pleased to announce another insightful paper from The SHARE Study! The impact of #COVID19 on children & young people with #cysticfibrosis parents. onlinelibrary.wiley.com/doi/…
SHARE Study retweeted
CCLG@cclguk
18 Mar 2021
📣 ✅ Share your views and help with our COVID research! At different stages of the pandemic, we've asked for your views and experiences as part of 'The SHARE Study' which has helped to inform our response. (Info & links in following tweet!)
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SHARE Study retweeted
Cystic Fibrosis Trust@cftrust
4 Mar 2021
In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding. We’ll be sharing the results very soon. The Southampton team are running their survey again to see how parents & young people (under 30) are coping:cysticfibrosis.org.uk/news/s…
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SHARE Study retweeted
Cystic Fibrosis Trust@cftrust
9 Feb 2021
In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding-we’ll share the results with you soon. The Southampton team are running their survey again to see how parents and young people (under 30) are coping cysticfibrosis.org.uk/news/s…
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Exciting news! @unisouthampton & @UniOfYork are in collaboration with national charities to understand the impact of COVID-19 on the lives of children and young people with serious conditions and their parents. Keep your eyes peeled for our findings over the coming months! 👀
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@TheBHF @TheCHF @CCLG_UK @cftrust @HarrysHAT5 @kidneycareuk @Kidney_Research @UoYmhrc @LeedsHospitals @UHSFT @SHINEUKCharity @Tog4ShortLives #COVID #research
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