EDS & Co, Rare Diseases, Patient & Disability Advocate, Wifey & Current Ms. Wheelchair Washington USA 2022 #PracticeSelfCareForYourHealthcare
Joined May 2011
- Tweets 5,475
- Following 4,498
- Followers 1,759
- Likes 15,233
369 Photos and videos
Sarah Tompkins 🦽❤️🦓 retweeted
14 Sep 2022
Dear WA Senator Jeff Holy, how can we help move @WashingtonSRC bit.ly/3QIAugG to create a Washington Rare Disease Advisory Council? Representation matters. #RareDisease #advocacy
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Sarah Tompkins 🦽❤️🦓 retweeted
21 Sep 2022
Welcome @Upequity_Org and Rare Disease Innovations Institute rdii.org/ to the expanding @Rare_Ready genetic and rare disease coaltion. We believe Medicaid should cover telehealth visits with out-of-state providers. We’re all in this together. #RareDisease
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Sarah Tompkins 🦽❤️🦓 retweeted
Are you coming to 2022 Patient Advocacy Summit? #GGSummit22
Can u name the most rare diseases in 30 seconds?
Watch Effie Parks try
Taylor Kane created the challenge and will host it for us at the Summit.@globalgenes @rarelikeher #careaboutrare #raredisease @OnceUponAGene
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Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit #HITsm #ptchat @GlobalGenes @MortonPR @BarbyIngle @rarelikeher #GGSummit22 healthcareittoday.com/2022/0…
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Sarah Tompkins 🦽❤️🦓 retweeted
20 Sep 2022
When was the last time you screwed up?
Crashed and burned?
Felt like a total imposter?
Tune in to hear mine 🫥🥴🫣
#RareDisease #CTNNB1 #PodcastForACause #PublicSpeaking
effieparks.com/podcast/effis…
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Sarah Tompkins 🦽❤️🦓 retweeted
I’m just going to put this out there
If you haven’t got a pharmacist in your world, get one
People seriously underestimate the power of a damn good pharmacist. We can do jobs people only imagine possible. Seriously, if you think it, a pharmacist can probably do it
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Sarah Tompkins 🦽❤️🦓 retweeted
21 Sep 2022
It was an honor to speak to attendees at @GlobalGenes RARE Patient Advocacy Summit about beginning their rare disease advocacy journey. If you're interested in getting involved, visit rareadvocates.org or reach out to me at klaws@everylifefoundation.org! #RDLA #raredisease
14 Sep 2022
Our panel of #RareDisease advocates talking about their #advocacy journey as parents, young adults and patients. @ramirezholmes, Ali SP and Laura Romano join @KatelynALaws
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Sarah Tompkins 🦽❤️🦓 retweeted
20 Sep 2022
You could find yourself in front of these cameras on the national stage of Ms. Wheelchair USA! To become a contestant email info@mswheelchairusa.org. Applications are available now! #MWUSA #disabilitypageants #newseason #winthecrown #thedanefoundation #adifferentkindofcrown
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Sarah Tompkins 🦽❤️🦓 retweeted
15 Aug 2022
Welcome to the MWUSA Winner’s Circle Sarah Tompkins! @DaneFoundation @MsWheelchairUSA #adifferentkindofcrown
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Sarah Tompkins 🦽❤️🦓 retweeted
14 Jul 2022
Current People’s Choice standings. Vote for your favorite contestant at mswheelchairusa.org/mwusa/ #MWUSA #DisabilityPageant #MsWheelchairUSA #DisabilityTwitter #DisabilityPrideMonth
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Sarah Tompkins 🦽❤️🦓 retweeted
23 Jun 2022
Nothing makes me more happy than sharing my passion with my kids including my special boy. #adaptivesurfing for the win! #SYNGAP1 #inclusion
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Sarah Tompkins 🦽❤️🦓 retweeted
23 Jun 2022
"It is understanding what it is to be overlooked... because of the way you were born."
Arthur Hughes is the first disabled actor @TheRSC has cast in a lead role - he will be playing Richard III.
@JaneDodgeC4 reports from Stratford-upon-Avon.
channel4.com/news/disabled-a…
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Sarah Tompkins 🦽❤️🦓 retweeted
23 Jun 2022
The Filibuster host will be @qjusttheletter and panelists include @haziethompson, @vietnameseham69, @BrvHrt09, @KateMcWilli and possibly a few others.
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Sarah Tompkins 🦽❤️🦓 retweeted
29 Jul 2018
Man at bus stop seeing me, a wheelchair user:
“I don’t have time to wait for a wheelchair to get on.”
Wheelchair users know about waiting.The resistance to us riding buses kept them inaccessible for years. Your wait is minimal. Our wait for access persists.
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Sarah Tompkins 🦽❤️🦓 retweeted
24 Jun 2022
Don’t be misled.
Businesses know when they are excluding disabled people.
Inaccessibility is not an oversight.
It is ableism.
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Sarah Tompkins 🦽❤️🦓 retweeted
25 May 2022
Hey #medtwitter who are your vascular access heroes? You know the person you always call to start an IV, or always consult with the most complicated cases! Please nominate them for @ISaveThatLine award!
25 May 2022
AVA's 2022 Call for 🏅 Awards closes on June 9th
Full details here: avainfo.org/page/awards
Help AVA recognize individuals within the specialty that have enhanced public and professional awareness, demonstrated scholarly excellence and advanced the specialty.
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Sarah Tompkins 🦽❤️🦓 retweeted
11 May 2022
Film Crew Sought For Cleveland, OH based docu-series - mailchi.mp/aeab31081034/film…
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Sarah Tompkins 🦽❤️🦓 retweeted
13 May 2022
Tonight-went to a gala for the friendship circle. If you have a kid with disabilities- look it up. The feature film was about this handsome devil and he couldn't make it due to lefty having pink eye? I met the 3 boys I talked about in an effisode- the ones who saw us. #inclusion
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Sarah Tompkins 🦽❤️🦓 retweeted
13 May 2022
Ms. Wheelchair Washington USA, @SarestBearest Sarah Tompkins, shares how the tools she learned in school have made her a better advocate. #MWUSA #MWWAUSA #DisabilityTwitter #DisabilityPageants
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