@SclerodermaRF profile picture
SclerodermaRF @SclerodermaRF
Joined October 2017
  • Tweets 4,373
  • Following 924
  • Followers 878
444 Photos and videos
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SclerodermaRF@SclerodermaRF
29 Jun 2022
Happy #WorldSclerodermaDay #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #RareDisease #Autoimmune #LifeChanging #UnknownCause #NoCure #Scleroderma #Raynauds #ConnectiveTissue #Collagen #Arthritis #InvisibleDisability #ChronicPain #DreamSnatcher #SclerodermaAwarenessMonth
Royal Free Charity@RoyalFreeChty
29 Jun 2022
Today is #WorldSclerodermaDay. Scleroderma is a rare autoimmune condition that affects the skin and connective tissue and @RoyalFreeNHS runs a special unit to help treat the condition.
Close up of Nicola Whitehall, sat outside in a leafy area, holding two small dogs.

ALT Close up of Nicola Whitehall, sat outside in a leafy area, holding two small dogs.

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nicola whitehill@cosmicfairy444
14h
GASTROINTESTINAL infographic, including symptoms and treatment / management tips #SclerodermaAwarenessMonth blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #GERD #AcidReflux #Bloating #Nausea #SystemicSclerosis #Raynauds #RareDisease
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nicola whitehill@cosmicfairy444
Jun 15
#SclerodermaAwarenessMonth 🌻 PAIN infographic, including management tips. Living in constant pain is very challenging, especially when the diagnosis and its symptoms have forced you to give up your dream job: blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #BePartOfResearch
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nicola whitehill@cosmicfairy444
Jun 14
#SclerodermaAwarenessMonth 🌻 This infographic shows some of the INVISIBLE symptoms and disabilities when living with scleroderma blog.raynaudsscleroderma.co.… Fatigue blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #SystemicSclerosis #Pain #Fatigue
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nicola whitehill@cosmicfairy444
Jun 13
#SclerodermaAwarenessMonth 🌻 This infographic highlights the painful and debilitating unmet clinical need, Calcinosis 😱 blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure
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Scleroderma Forum
@ScleroForum
Jun 12
Wrap up #EULAR2026 with our new Review Podcast 🎤 Join Professors Francesco Del Galdo and Marco Matucci-Cerinic for this 20-minute podcast as they revisit all of the key sessions, posters and data from this year's congress. Tune in here: ow.ly/FlFx50Zannz Apple Podcasts: ow.ly/kj1J50Zanny Spotify: ow.ly/JX3J50ZannA
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Scleroderma Forum
@ScleroForum
Jun 11
A birthday message from Scleroderma Forum Chair, Professor Francesco Del Galdo (@delgaldoFrances)! 🎉 We have another exciting year ahead of us. Become a member for free and follow along 🔗ow.ly/u4Ik50Z9fZi
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nicola whitehill@cosmicfairy444
Jun 12
Today I have made it to 53 years, having been given 15 months to live by my diagnosing doctor in 1997, when I was 24. Eternally grateful to Dame Prof Carol Black, Prof Chris Denton, Dr Kevin Howell @RoyalFreeNHS blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #BePartOfResearch
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nicola whitehill@cosmicfairy444
Jun 11
#SclerodermaAwarenessMonth 🌻 This infographic highlights the painful and debilitating unmet clinical need, Digital Ulcers blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #LifeChanging @NIHRresearch @NIHRinvolvement
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nicola whitehill@cosmicfairy444
Jun 10
#SclerodermaAwarenessMonth 🌻 This infographic highlights the management of Raynaud's phenomenon. Prevention is better than cure. There is no cure 🥶 blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Raynauds #BlueFingers #Frostbite #Gangrene
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nicola whitehill@cosmicfairy444
Jun 9
#SclerodermaAwarenessMonth 🌻 This infographic shows diagnostic tests: ECHO cardiogram, ECG, Lung Function Tests and Capillaroscopy blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #RareDisease #NoCure
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SclerodermaRF retweeted
nicola whitehill@cosmicfairy444
Jun 8
#SclerodermaAwarenessMonth🌻 This infographic highlights sclerodactyly hands and the subsequent #disability blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #Scleroderma #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause
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nicola whitehill@cosmicfairy444
Jun 7
#SclerodermaAwarenessMonth 🌻 This infographic highlights Raynaud's phenomenon @RaynaudsRf blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #NoCure #SystemicSclerosis #bluefingers #gangrene #peripheralvasculardisease
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nicola whitehill@cosmicfairy444
Jun 6
#SclerodermaAwarenessMonth 🌻Symptoms Infographic mnemonic highlighting common symptoms seen in a scleroderma patient. my initial symptoms, diagnosed in 1997: blog.raynaudsscleroderma.co.… #SclerodermaFreeWorld #RaynaudsFreeWorld #BeOartOfResearch #SystemicSclerosis #Raynauds #NoCure
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nicola whitehill@cosmicfairy444
Jun 5
June #SclerodermaAwarenessMonth 🌻The Skin blog.raynaudsscleroderma.co.… royalfreecharity.org/donate Click Scleroderma and Raynaud's option royalfreecharity.org/giftsin… justgiving.com/fundraising/s… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #SystemicSclerosis #Raynauds #RareDisease
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World Scleroderma Foundation@Worldsclerofnd
Jun 4
🇬🇧 Day 2 at #EULAR2026!This week the#WSFAcademy 🎧 Expert podcasts & interviews🫀 Clinical abstracts🔬 Basic science:🌍 WSFGranting System 2026 🎬 A Soul in StruggleStay tuned for live updates from London!#SystemicSclerosis #Scleroderma #Rheumatology
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SclerodermaRF retweeted
nicola whitehill@cosmicfairy444
Jun 4
#SclerodermaAwarenessMonth 🌻 Symptoms Infographic blog.raynaudsscleroderma.co.… royalfreecharity.org/donate Click on Scleroderma and Raynaud's option royalfreecharity.org/giftsin… justgiving.com/fundraising/s… #SclerodermaFreeWorld #RaynaudsFreeWorld #BePartOfResearch #LifeChanging #ConnectiveTissue
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nicola whitehill@cosmicfairy444
Jun 3
June #SclerodermaAwarenessMonth 🌻This infographic shows the different types of scleroderma and their similar symptoms royalfreecharity.org/donate Click Scleroderma and Raynaud's option royalfreecharity.org/giftsin… justgiving.com/fundraising/s… #SclerodermaFreeWorld #BePartOfResearch #NoCure
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nicola whitehill@cosmicfairy444
Jun 2
June #SclerodermaAwarenessMonth 🌻For facts sake infographic showing what scleroderma is, who it affects and how it is treated. #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #SystemicSclerosis #Autoimmune #RareDisease #NoCure #UnknownCause #BePartOfResearch #LifeChanging
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nicola whitehill@cosmicfairy444
Jun 1
June #SclerodermaAwareness For facts sake infographic. This infographic highlights some statistics and facts about scleroderma. #SclerodermaFreeWorld #RaynaudsFreeWorld #SystemicSclerosis #Raynauds #Autoimmune #RareDisease #NoCure #UnknownCause #LifeChanging #BePartOfResearch
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nicola whitehill@cosmicfairy444
May 31
southportvisiter.co.uk/news/… Wowee 10 years ago☝️#SclerodermaAwareness June #SclerodermaAwarenessMonth 🌻 royalfreecharity.org/donate Scroll for Scleroderma and Raynaud's option royalfreecharity.org/giftsin… #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis
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