Our first lay summary of 2026 examines whether taking cholesterol-lowering drugs has an impact on the risk of developing motor neurone disease.
Read the research made readable at readableresearch.com/mnd/cho…
Researchers have been examining the potential for earlier detection of Alzheimer’s Disease by looking at the link between brain communication and memory loss.
Read about the findings of their studies, and what it means, in our lay summary at readableresearch.com/dementi…
I still have a MND Association funded, 3 year PDRA position in my lab, focussed on pyruvate metabolism in normoxia and hypoxia in C9orf72-ALS/MND. If you are interested in applying please get in touch. You can apply below
jobsite.sheffield.ac.uk/job/…
I have a MND Association funded, 3 year PDRA position in my lab, focussed on pyruvate metabolism in normoxia and hypoxia in C9orf72-ALS/MND. If you are interested in applying please get in touch.
You can apply below
jobsite.sheffield.ac.uk/job/…@mndassoc@mndresearch
Back in July we hosted EnCouRage - our two-day UK event for early career researchers (ECRs) who have chosen MND as their focus of investigation.
It was all about connection, collaboration and sparking important conversations between researchers and the MND community. 🧡
#MND
🧠💤 Have MND/ALS? We need your voice.
Sleep is more than a symptom, it reflects underlying disease processes, affects quality of life, and may offer clues for new treatments.
Take part in a 15-min @kingsmnd survey to guide future care and research.
🔗 surveymonkey.com/r/D8SYJPQ
It’s been a great two days at #MNDEnCouRageUK 2025!
We’ve heard the latest #MND#ALS research updates , made new connections and had some interesting discussions!
We’d like to thank everyone who attended and presented this year 👏 We couldn’t hold this event without you 🧡💙
The Ice Bucket Challenge is back, this time raising awareness for Mental Health amongst a new generation of fundraisers.
You can read more about the origins of the #IceBucketChallenge and how pivotal it was for the MND community here 👇
🧊#MND
📢 The @APPGonMND has issued a statement on challenges faced by people with SOD1 MND - 2% of the MND population - in accessing ground-breaking treatment, tofersen, through an Early Access Programme.
Read more: mndassociation.org/media/lat…
ALT APPG on MND statement on access to tofersen for people with SOD1 MND. It reads: We urge the Government to step in immediately to find a solution to help people facing this horrendous, terminal illness.
It cannot be right that people lose their lives for lack of a small amount of resource to give them a freely-available drug.
This treatment has the potential to transform lives and must be provided to everyone who can benefit from it as soon as possible.
It is signed by:
Ian Byrne MP, Aphra Brandreth MP, Michael Payne MP, Olly Glover MP
I lost my mum to MND & have been fundraising in her name for 10 years! I’m just £2115 away from hitting £70,000 🎉
We lose 6 people every day to MND so I plan to do 6 events in 2025 to represent those 6 🙏
Link to donate to my 6 for 6 here:
justgiving.com/page/stacey-k…
THANK YOU 💙🧡
It's #ChildrensBookWeek 📖
Try, written by Rob Burrow and Kevin Sinfield, is a heart warming story about about friendship, kindness and what heroes are really made of.
We are very grateful to receive a donation for every copy sold.
🧡#MND
As well as summarising scientific research, we want to demystify what happens in our labs.
You’ll often read about ‘tissue culture’ in our reports – but how does that work?
Here's @neuroshef's Marianne King to explain more from inside the lab.
I am playing in a charity football match at Hillsborough Stadium on the 1st of May, to raise money for MND research. If you would like to sponsor us the link is below.
Many thanks
justgiving.com/campaign/hill…
A study looking into the production of toxic proteins in the development of MND.
It aims to help our understanding of the tests needed to assess future therapies and support the evolution of potential treatments.
Read the lay summary at readableresearch.com/mnd/beh…
Researchers have been examining how activating the vagus nerve, using a small device held to the side of the neck, could lead to improved movement for those living with Parkinson's.
Our lay summary of this study, from Kate Matheson, is available at readableresearch.com/parkins…
A human trial of NuNerve, one of the few drugs approved for use in those living with MND / ALS, has produced positive results.
We’ve produced a readable summary of this important Australian research which you can read at readableresearch.com/mnd/nun…
A huge amount of research is taking place into the impact of COVID-19 on the brain.
Five years on from lockdowns, our latest lay summary focuses on a study which finds a complex and evolving relationship between the virus & inflammation in the brain.
👉 readableresearch.com/infecti…
A fully funded PhD Studentship funded by @mndassoc to work on the function of TMEM106B at the synapse in ALS/FTD is available to start 1 October 2025. findaphd.com/phds/project/in…