Chair of IIH UK. Daughter lives with IIH, Epilepsy, Autism, PDA, Chiari, IBS, Asthma and psoriasis. All views are my own.
Joined February 2019
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We’ve added an important message to the latest news section on our website today regarding the IIH Intervention trial.
iih.org.uk
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Coming soon!
Today we joined @ur1FitLife at their studio in Christchurch for a day of filming for an exciting new project! More coming soon.
#GetMovingWithIIH
#Working2RelieveThePressure
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Thank you BIOS for promoting the HOPE Programme for people with IIH in your newsletter! @HOPE4TC
orthoptics.org.uk/hope-progr…
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Shelly Williamson 💙 retweeted
6 Feb 2024
We have recently published our study on the experiences of PLwO prior to/soon after undergoing bariatric surgery. Highlights the need for #psychological support and to reduce waiting times for #bariatricsurgery
onlinelibrary.wiley.com/doi/…
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Shelly Williamson 💙 retweeted
26 Jan 2024
Nitrous oxide causes sight threatening papilloedema. Important to ask about recreational drugs. tandfonline.com/doi/full/10.…
@UHBNeurosurgery @IMSR_UoB @eyeuhbtrust @UKNOSoc @NANOSTweets @EunoSsociety @djnicholl @ABNTrainees @NANSIG1
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Shelly Williamson 💙 retweeted
26 Jan 2024
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Shelly Williamson 💙 retweeted
12 Dec 2023
An important publication on the patients’ perspective of healthcare communication about weight management for Idiopathic Intracranial Hypertension (IIH), including recommendations from patients on how HCPs can improve their practice neurologyopen.bmj.com/conten…
@DrMollan @IIHUK
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Just published!
Weight management communications in idiopathic intracranial hypertension: challenges and recommendations from the patients’ perspective
neurologyopen.bmj.com/conten…
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Shelly Williamson 💙 retweeted
5 Sep 2023
Short summaries: #IIH and #pregnancy
- Disease control before preg recommended
- IIH diagnosed in preg was rare 2%
- Similar long term #visual #outcomes between those with established IIH who become pregnant and never pregnant
n.neurology.org/content/100/…
@BrainLabBhamUk @IIHUK
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Shelly Williamson 💙 retweeted
6 Dec 2023
#EHC2023 #IIH #Pregnancy
Does pregnancy affect outcomes in IIH?
shorturl.at/elrU9
What's the risk of gestational problems?
shorturl.at/qxLQS
Need practical advice on managing IIH in pregnancy?
shorturl.at/pqERS
@DrMollan @BrainLabBhamUk @EHF_Official @IIHUK
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Shelly Williamson 💙 retweeted
30 Nov 2023
Thank you @EASOobesity for recognition as European Clinical Fellow, very honoured🙂
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Shelly Williamson 💙 retweeted
25 Nov 2023
I was so excited that “The Educator’s Experience of #PDA” illustrated by @_MissingTheMark and published by @JKPBooks was a finalist in the @TeachSecondary awards - and even more excited that we were awarded “Highly Commended” ☺️
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Shelly Williamson 💙 retweeted
22 Nov 2023
#IIH and #Pregnancy #Labour.
#Valsalva manoeuvre (similar to contractions), ☝️ pressure by 40 cmCSF .
But back to baseline within 16 seconds!😃
So don't need to avoid active labour in IIH.
@IIHUK @BWH_NHS @uhbtrust
@NANOSTweets @ABNTrainees @eyeuhbtrust tandfonline.com/doi/full/10.…
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Shelly Williamson 💙 retweeted
23 Nov 2023
#BariatricSurgery should be considered for women with #IIH and a body mass index (#BMI) ≥35 kg/m2.
A multicomponent lifestyle intervention (diet physical activity behavior) for modest weight loss with a BMI <35 kg/m2.
@BrainLabBhamUk @DrMollan @IIHUK
n.neurology.org/content/101/…
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Shelly Williamson 💙 retweeted
22 Nov 2023
👉In our study of people with IIH we showed that Valsalva/straining had no sustained impact on intracranial pressure and changes were coupled
to cerebrovascular haemodynamics.
👉Exercise did not lead to prolonged elevation of intracranial pressure
tandfonline.com/doi/full/10.…
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Shelly Williamson 💙 retweeted
13 Nov 2023
Just leaving this here
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Shelly Williamson 💙 retweeted
13 Nov 2023
⭐️ Author in Nature Group! ** 👊 👍
IIH - a step change in understanding the disease mechanisms . @NatRevNeurol @BrainLabBhamUk @DrMollan @IMSR_UoB @unibirm_MDS @SpringerNature
rdcu.be/dqYpu
nature.com/articles/s41582-0…
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