#CrohnsDisease and #UlcerativeColitis support, advocacy, awareness, and fundraising to support those with #IBD. #Crohns #Colitis #IBDawareness
Joined September 2014
- Tweets 1,197
- Following 1,842
- Followers 1,767
- Likes 123
57 Photos and videos
19 Mar 2021
Update: @CollegeBoard denied student with #crohnsdisease ability to take scheduled March SAT as promised. The information the family was given by the College Board was inaccurate and misrepresented the facts. The family needs to speak with someone at the executive level.
18 Mar 2021
Perhaps @AP_Trevor can point us in the right direction regarding a family who has a child with #crohnsdisease . @CollegeBoard denied promise to take SAT test tomorrow after delay in #disability accommodation.
18 Mar 2021
Why is @CollegeBoard unwilling to assist a child with a #IBD ? They DM'd their main customer service number which this family informed us has refused to help. No option to escalate. #DisabilityRights
18 Mar 2021
Asking @CollegeBoard to pls assist student with taking SAT tomorrow. #crohnsdisease is an autoimmune disease that is exacerbated by stress. Please DM us so we can pass along contact info to parents of student. TY!
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18 Mar 2021
We have not yet heard from @CollegeBoard . As time is of the essence, please DM us contact info that we can pass along to this family. #crohnsdisease #collegeboard #DisabilityRights
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18 Mar 2021
Just learned @CollegeBoard denied student with #crohnsdisease from taking SAT exam tomorrow after delaying medical accommodation. Previously assured by #collegeboard timing for tomorrow's test not a problem. Today CB approved accommodation but refused tomorrows exam.
15 Feb 2019
After years of sharing resources to the IBD community we are sad the Crohn’s Directory website is going off-line. What started as a personal project has been too costly to maintain. Hoping we made a positive impact. Thx for your support and wishing you the best of health.
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IBD Awareness retweeted
16 Jan 2019
Did you catch @katelyn_ohashi's viral gymnastics routine this past weekend? It was awesome for so many reasons (skills!) but what made it even more special is all that she's experienced as an #ulcerativecolitis patient. Check it out! x.com/uclagymnastics/status/…
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7 Dec 2018
The long awaited Crohn’s awareness wristbands are here! They make great gifts during #IBDawarenessWeek or the holidays. crohnsdirectory.com/buy-croh…
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1 Dec 2018
The long awaited Crohn’s awareness wristbands are here! They make great gifts during #CrohnsAndColitisAwarenessWeek or the holidays.
crohnsdirectory.com/buy-croh…
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IBD Awareness retweeted
30 Nov 2018
Tomorrow kicks off #CCAwarenessWeek! How will you be raising awareness this year? See all the ways you can get involved & help raise awareness of the impact of #IBD on #mentalhealth by visiting bit.ly/2Rm3Rqx #myIBD
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IBD Awareness retweeted
15 Nov 2018
Last chance to help us understand why some patients participate in #clinicaltrials & others don't by responding to our survey of #IBD patients! Take the survey now: bit.ly/ClinTrialSurveyAdult
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15 Nov 2018
The directory is up and running!! Apologies and thanks for hanging in there with us.
14 Nov 2018
Problem with a plug-in causing a flood of false e-mail alerts. That’s taken care of. Now waiting for hosting vendor to re-enable account. Thanks for hanging in. Stay tuned...
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14 Nov 2018
Our website is currently unavailable. We apologize as we work with our hosting provider to get things up and running again. Will let everyone know as soon as we’re back up.
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IBD Awareness retweeted
1 Nov 2018
Nov 1 marks the start of 2019 #OpenEnrollment! If you're looking for an insurance plan for next year, or you want to change an old one, now's the time to #GetCovered. Learn how to apply for health insurance, preview plans & prices, & receive help applying: healthcare.gov/
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IBD Awareness retweeted
28 Oct 2018
My IBD Journey is a project produced by EFCCA and Janssen. Third part of series is about digferent types of remission. Go check it out! facebook.com/story.php?story…
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IBD Awareness retweeted
2 Jun 2018
We made it so easy for you to add your website!
The global resource directory for #Crohns #Colitis #IBD.
crohnsdirectory.com/add-list…
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IBD Awareness retweeted
9 Jun 2018
Our goal is to support fellow IBD’ers. Pls include your website if it can help those with #Crohns #Colitis #IBD 🙂 crohnsdirectory.com/add-list…
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