Full time carer, volunteer for the MS Society, NHSE Peer Leader. Healthwatch volunteer, Arts & Minds Trustee, CSCI Community Ambassador - All views are my own.

Joined December 2019
24 Photos and videos
Deliberately misleading post. Cars via Motability lease scheme are not free! Disabled people who are rigorously assessed&qualify for high level PIP/ADP can choose to lease a car. Costs app £300 a month advanced payment norm £3-10k, they don’t get back. Stop the crap rhetoric!
24 Dec 2024
🚨 NEW: The tax-payer subsidised Motability scheme saw a record 15% growth in the last year, with a fleet of over 815,000 cars, and a 23% rise in insurance costs Motability allows disability claimants to receive a new car, with insurance and servicing also covered for free H/t [@maxtempers]
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When the Carer becomes the one in need of care As many of you may already know, last week I had a bad fall that required a short stay in hospital to repair a fractured humerus and dislocated shoulder. I can’t fault the hospital staff at all as every single one of them was fabulous, from the porter who took me up to the ward right through to the surgical team who repaired the damage. However, once home after the surgery it became a different story. I reached out to social services on the Tuesday, explained the situation and asked for support. Well, dear reader, as I’m sure you can imagine, no support was forthcoming and I’m still waiting on a call from the duty social worker which will very likely come once the support is no longer needed. So, I hear you ask, what happened next? We relied on the support of neighbours for a few days while I recovered to a point where I wasn’t in absolute agony every time I moved and then between my parents and I we worked up a plan where we can support each other until I’m fully recovered. Local authorities and carers support services really do need to start building contingency plans into any care/carer support plan so then when accidents happen the contingency plan can be quickly activated instead of leaving families to struggle with no support.
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Bob B retweeted
Myelin repair is possible in humans | Metformin and bexarotene trial results announcement patienttalk.org/myelin-repai…
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Bob B retweeted
24 Jul 2024
Thank you @EdwardJDavey for raising that thousands of unpaid carers are having to repay very substantial Carer’s Allowance overpayments to the @DWPgovuk at the first #PMQs today. Carers, who need and deserve better, urgently need to see reform of Carer’s Allowance.
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20 Jul 2024
Have you started painting in oils but would like to learn more? Come and join me on an 8 week course rowanhumberstone.org.uk/even…
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Bob B retweeted
11 Jul 2024
Two new oil painting classes now available to book rowanhumberstone.org.uk/comm…
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Bob B retweeted
There are more than 5 million #Carers in England. So how do 'carers' feature in different manifestos? Interesting question that... Mentions of 'carer' LibDems = 29 Conservatives = 5 Labour = 0 Ironically, it's #CarersWeek2024 #ThinkCarer @CarersTrust @CarersUK @WeAreCarers
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30 May 2024
I’ve been a carer for my wife for the past 15 years, diagnosed 26 years ago, over that time we have met many lovely people, PwMS, carers, MS Nurses, Neurologists, researchers and volunteers from the many charities, on @WorldMSDay I just want to say thank you for all your help.
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The £100 million Work and Health Programme, to help Disabled people get into work, will be scrapped Meanwhile the PM orders Disabled and vulnerable people into work by cutting benefits This Government has failed Disabled people theguardian.com/society/2024…
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Bob B retweeted
We're love raising money for @mindsarts charity through every purchase of our Wellbeing for Photographers book 💜 Packed with advice, ideas and insights to help you become a confident, anxiety-free photographer 🌈 SUPPORT 🙏 iphotography.com/photography…
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23 Mar 2024
People living in the Fenland area of Cambridgeshire were informed yesterday that in 7 days time access to a specialist MS nurse has been withdrawn. All appointments cancelled and people affected by MS have been redirected to their GP. @SteveBarclay @shiftms @mssocietyuk @MSTrust
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23 Mar 2024
People living in the Fenland area of Cambridgeshire were informed yesterday that in 7 days time access to a specialist MS nurse has been withdrawn. All existing appointments cancelled and people affected by MS have been redirected to their already overstretched GP.
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23 Mar 2024
As you are all aware most GP surgeries do not have much knowledge of living with MS and they have relied on specialist nurses to guide them as well as us. Devastating news for someone living with a long term chronic condition.
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Bob B retweeted
21 Mar 2024
Just two places left on my beginners and improvers oil painting 8 week course... rowanhumberstone.org.uk/even…
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Bob B retweeted
19 Mar 2024
We should not pigeon hole people into being older. All people with MS should be treated as a person with MS regardless of age. MS services are not geared up for an ageing population. @GavinGiovannoni #MSTConference2024
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Bob B retweeted
15 Mar 2024
Fancy joining me for the next oil painting course? rowanhumberstone.org.uk/even…

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So carers are “economically inactive" are we. Ok, just forget about us contributing £445 million to the economy every day – £162 billion per year. We are paid £77 a WEEK for that. but “economically inactive" eh.
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Bob B retweeted
11 Mar 2024
We are seeing yet more divisive media reports about disabled people and the welfare system. Promoting the idea that life on disability benefits is a choice - lucrative even – is dangerous. It fuels distrust and negative attitudes towards disabled people.
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