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The YODA Project @YODAProject

The @YaleMed Open Data Access (YODA) Project advocates for the responsible sharing of clinical research data, open science, and research transparency

Joined July 2014
  • Tweets 786
  • Following 178
  • Followers 873
20 Photos and videos
There is a new publication using #Schizophrenia trial data made available through the YODA Project! #ClinicalTrials #DataSharing #OpenData onlinelibrary.wiley.com/doi/…

Metabolic side effects in persons with schizophrenia during mid‐ to long‐term treatment with...

Metabolic side effects of antipsychotic drugs can have serious health consequences and may increase mortality. Although persons with schizophrenia often take these drugs for a long time, their mid-...

onlinelibrary.wiley.com
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There is a new publication using #type2diabetes clinical trial data made available through the YODA Project! #ClinicalTrials #DataSharing #Opendata bmcmedresmethodol.biomedcent…

External control arm analysis: an evaluation of propensity score approaches, G-computation, and...

BMC Medical Research Methodology - An external control arm is a cohort of control patients that are collected from data external to a single-arm trial. To provide an unbiased estimation of...

link.springer.com
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The YODA Project retweeted
Joseph Ross@jsross119
18 Nov 2019
For >5 years, @YODAProject has been working with @JNJNews to share clinical trial data with research community, embracing openness, transparency, and the belief that we can forge a stronger scientific community through collaboration @hmkyale statnews.com/2019/11/18/data… via @statnews

Sharing clinical trial data: lessons from the YODA Project

The culture of clinical research is changing, and there are now expectations that researchers will share data — even when it isn't required.

statnews.com
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Nine new clinical trials (8 abiraterone acetate and 1 risperidone) have been added to the YODA project, bringing the total number of trials to request to 350! yale.yoda.edu #OpenData #ClinicalTrials
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We’ve added a new condition! Clinical trial data for Sarcoidosis is now available to request at yoda.yale.edu #ClinicalTrials #DataSharing
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The YODA Project retweeted
Karla Childers@karlachilders
18 Sep 2019
Excited to attend the ⁦@VivliCenter⁩ annual meeting and share this news to expand our data sharing through the ⁦@YODAProject⁩ through our membership on the Vivli platform linkedin.com/pulse/my-reflec…

My reflections on clinical trial data sharing and transparency: a new partnership and what the...

As I sat in a ride-share on my way to meet with many of the people leading Johnson & Johnson’s clinical trial data sharing efforts, I was struck by the unlikely parallels between today’s sharing...

linkedin.com
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Trying to decide what variables to use in your analyses? Over half of our studies now have Data Definition Specifications that can be used to prepare your data request at yoda.yale.edu/trials-search #DataSharing #OpenData
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The YODA Project retweeted
Karla Childers@karlachilders
11 Sep 2019
Clinical data sharing and transparency: from talk to action, and what lies ahead linkedin.com/pulse/clinical-… via @LinkedIn

Clinical data sharing and transparency: from talk to action, and what lies ahead

This past month I had the pleasure of co-chairing the 3rd Disclosure and Transparency for Clinical Data Summit where I listened to and learned from people representing a broad range of perspectives –...

linkedin.com
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The YODA Project retweeted
Johnson & Johnson Innovation
@JNJInnovation
15 Aug 2019
.@ExLPharma Conference Chair @karlachilders speaks to the real impact that clinical data sharing has on delivering new insights and more complete evidence to enable better healthcare decisions for patients @YODAProject #clinicaldatasharing #transparency
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There is a new publication examining factors associated with weight gain following initiation of #Infliximab using clinical trial data made available through the YODA Project! #IBD #DataSharing ncbi.nlm.nih.gov/pubmed/3126…
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Two new clinical studies have been added to the YODA Project bringing the total number of trials available to request to 335 at (link: yoda.yale.edu) yoda.yale.edu #ClinicalTrials #OpenData
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A new #SystematicReview and #Metaanalysis has been published in @TheLancetPsych using clinical trial data on antipsychotic medication made available through the YODA Project! #OpenData ncbi.nlm.nih.gov/pubmed/3132…

Second-generation antipsychotic drugs and short-term somatic serious adverse events: a systematic...

German Ministry of Education and Research.

pubmed.ncbi.nlm.nih.gov
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A new Topiramate/Topamax trial is now available to request- bringing the total to 334 trials now available at yoda.yale.edu #OpenData #DataSharing

Home - The YODA Project

yoda.yale.edu
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A new product has been added! Clinical trial data for the orthopedic device Healos® is now available, bringing the total number of clinical trials available for request to 333 at yoda.yale.edu. #OpenData #ClinicalTrials
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There is a new publication in @AGA_CGH using #UlcerativeColitis clinical trial data made available through the YODA Project! #Datasharing ncbi.nlm.nih.gov/pubmed/3110…

Comparative Efficacy and Speed of Onset of Action of Infliximab vs Golimumab in Ulcerative Colitis...

Based on a patient-level analysis of data from phase 3 trials, infliximab resolves symptoms more rapidly and has greater efficacy for inducing remission than golimumab in patients with moderate-to-...

pubmed.ncbi.nlm.nih.gov
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Six new clinical trials have been added to the YODA Project, including a trial of OPSUMIT® for Pulmonary Arterial Hypertension (PAH). This brings the total number of trials available for request to 332 at yoda.yale.edu! #OpenData
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Clinical Study Reports (CSRs) are a great resource for #SystematicReviews and provide an abundance of information that is not always included in publications. The YODA Project has CSRs for over 300 trials available for request at yoda.yale.edu! #DataSharing

Home - The YODA Project

yoda.yale.edu
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There is a new publication using #prostatecancer clinical trial data made available through the YODA Project! #ClinicalTrials #DataSharing ncbi.nlm.nih.gov/pubmed/3105…

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ICYMI: Check out the Yale Medical Library's poster from #mlanet “Exploring the Reuse of Open Clinical Trial Data through Citation Analysis” to see their visualization and analysis of data shared through the YODA Project! #OpenData #mlanet19
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Members of the Yale Medical Library will be at the @MedLibAssn Annual meeting today 3:30-4:25pm! Stop by the poster to see their visualization & analysis of data shared through the YODA Project: “Exploring the Reuse of Open Clinical Trial Data through Citation Analysis” #OpenData
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