🆙 Seguimos creciendo y trabajando juntos para conocer más sobre la #COVIDpersistente y mejorar la salud de l@s afectad@s. Somos ✓68 entidades colaboradoras ✓9 colectivos de pacientes ✓ más de 270 profesionales colaboradores/as #SomosREiCOP #JuntosSumamos 💙🤍 Gracias

📣Nueva sesión de ☕️ Café con talento de @asgacop 🪧Enfoques de Terapia Ocupacional en #CovidPersistente 👩🏼‍💼 Pilar Rodríguez Pérez @URJCFCS 📅 Mañana, 17 de junio 🕔 17.00 h 💻 Online (Gratis) ✉️ ¿No eres socio/a? 👉🏼 Pide el 🔗 enlace en asgacop@gmail.com 🏃🏿‍♀️No te lo pierdas!

“What we’re finding across the genome are specific variants that are very much enriched, and have highly likely loss-of-function in these patients with [severe] Long COVID,” said Dr. Petter Brodin on his team’s PolyBio-supported genome study of Long COVID patients. “The challenge that we’re currently facing is to take these variants into the relevant cell type where we think they actually exert their function,” such as human organoid models of the intestinal epithelium, allowing the team to observe how these variants impact tissue-based disease.

#Covidpersistente: médica denuncia trabas para acceder a tratamientos y advierte que miles de personas podrían estar sin diagnóstico canal9.cl/episodios/nuestra-…

Casi un@ de cuatro niñ@s muestran cambios en el pulmón tras enfermarse de #CoVID19

🩺 Salud mental, vacunas, COVID persistente, obesidad, diabetes, dermatología, enfermedades infecciosas, ecografía, inteligencia artificial, investigación, urgencias y mucho más han protagonizado un día repleto de actualización científica y formación práctica. 📍 Seguimos avanzando en #SEMG26, compartiendo conocimiento, experiencias y futuro para la Atención Primaria. #MedicinaDeFamilia #AtenciónPrimaria

⚕️ Webinar P REPARACIÓN PANDÉMICA: Cambios en Prevención y Control de Infecciones 🌎 Científico Invitado: @jljcolorado ⏰ Hoy lunes 15 de junio a las... 🇲🇽 4 am 🇪🇨 5 am 🇨🇱 6 am 🇦🇷 7 am 🇪🇸 12 am 🎙️ En vivo y en directo ¡y en español! 🕊️ Gracias @_REiCOP youtube.com/live/DpbFXgjRjNk…

🔴👩🏻‍🔬Sonia Villapol @svillapol:  «Pode haber unhas 100.000 persoas en Galicia con #COVIDpersistente e non o saben» ☑️ Explica que sus efectos se se asocian a otras enfermedades; «causa inflamación en el cerebro y a largo plazo va a favorecer el Alzheimer» lavozdegalicia.es/noticia/am…

New paper in @TheLancet ft. PLRC member Dr. Megan Fitzgerald: "In this paper, a group of bioethicists, clinician-scientists and people.. with #LongCovid argue that it is ethically imperative to conduct trials of disease-modifying treatments for LC now." 🧵thelancet.com/journals/eclin…

Seguimos luchando , por los derechos de todos los enfermos de COVID Persitente de CYL.

this is where the self free virtual clinic is being used. thank you buonsenso-clinic.thekookbitc…

🗣️ Post-COVID condition (or also named #LongCOVID) is a health condition in which symptoms persist, return, or develop after the initial infection with COVID-19. Read further👇

A recent review proposes integrating POTS, ME/CFS, and Long COVID into the neuroimmunology subspecialty. Here is their compelling case. \ Overlapping Drivers of Disease: The authors outline several major overlapping pathophysiological mechanisms shared by POTS, ME/CFS, and Long COVID. This includes: 1. Autonomic Dysfunction (Dysautonomia) 2. Mitochondrial Dysfunction 3. Cerebral Hypoperfusion 4. Immune Dysregulation 5. Neuroinflammation 6. Autoimmunity \ The Harm of Psychiatric Misdiagnoses: For decades, patients have been wrongly labeled with "functional neurological disorder," anxiety, or somatization because routine tests often look normal. \ A Call for Better Diagnostics: Researchers and clinicians urgently need advanced tools such as: - 7T MRIs - Targeted PET scans - Autoantibody and cytokine panels - Comprehensive autonomic function testing Routine tests are simply not enough. \ The Authors’ Core Proposal: Classify and treat POTS, ME/CFS, and Long COVID as neuroimmune disorders under the subspecialty of neuroimmunology. This shift would: • Improve clinical care • Accelerate research • Enable effective neurotherapeutics (including repurposed immunomodulatory and anti-inflammatory treatments) Thanks, Dysautonomia Clinic, for the awesome paper! #MECFS #POTS #LONGCOVID #PASC Read more here: buff.ly/HqR7NKH

Dr. Tim Henrich presented new findings surrounding long term persistence of SARS-CoV-2 proteins & RNA in Long COVID gut tissue at PolyBio’s recent Spring symposium. “We actually see [gut viral persistence] in both areas, the epithelium—which turns over every several days to week—to the lamina propria where you have long-lived myeloid immune cells… suggesting there may even be replication in some individuals,” said Henrich. Using a highly sensitive method of detecting viral RNA, “around 20-25% of the time, we see detection… all the way up until 3-4 years after initial infection” in Long COVID patients.

Según un amplio estudio de cohorte multicentrico realizado en Taiwan los pacientes que desarrollaron #LongCovid tuvieron un riesgo sustancialmente mayor de sufrir eventos cardiovasculares adversos mayores y muerte que los que no. link.springer.com/article/10…

guys you fill the form than you generate your letter. your letter is not sent to me nor to anyone, you download it and send to your doctor or whoever you want including me

So guys here is the link. buonsenso-clinic.thekookbitc… This is the PART B (but most important) for your self virtual assessment with this model I trained based on my experience, views, understanding of #longcovid and #mecfs . Part A will be explained in a longer article tomorrow. This thing is fully free, developed by me without any single cent of funding. I’m not a professional developer so feedbacks are welcome, but don’t be rude please. Each assessment requires a little amount of costs as it uses energy. Consider supporting it to keep it free.

guys i’m so excited that this model of clinical assessment is working ibcreadibly well for the first ppl with #longcovid #mecfs ! im confident this will become a standard of care preliminary assessment for these patients. and as always I’ve made it free for all, while clinics charge you hundreds of dollars each time. you can just select a little tip when you use it to cover my costs and keep it always free you want me to share the link?

🔴¿Qué es el COVID persistente y cómo se manifiesta? La paciente y médica 👩🏼‍⚕️@Anita_Your_Doc da visibilidad a la #COVIDpersistente junto a otros profesionales sanitarios @covidextremadur @covid_madrid canalextremadura.es/televisi…

🗣️ "Hemos normalizado ciertas cosas y eso nos ha llevado a descuidar medidas que siguen siendo fundamentales para prevenir enfermedades" 💻️ El webinar “P REPARACIÓN PANDÉMICA”, organizado por la Red Española de Investigación en COVID Persistente (@_REiCOP), reunió a expertos nacionales e internacionales, especialistas en salud pública, enfermedades infecciosas, neumología, medicina de familia y pacientes expertos para analizar los avances más recientes. 🔬 Durante la sesión se presentaron evidencias científicas actualizadas sobre la transmisión de infecciones respiratorias y la necesidad de reforzar estándares de calidad en la prevención, así como la actualización de los marcos formativos y regulatorios en salud pública. 👥 Asimismo, se incorporó la perspectiva de los pacientes, subrayando la relevancia de su participación en el desarrollo de consensos y en la orientación de las políticas sanitarias. Agradecemos a los ponentes su valiosas aportaciones: 🌍 Dr. José Luis Jiménez (Universidad de Colorado, CIRES) 📚 Dr. Jaime Acevedo (REiCOP / #Prevención1234 / ONG DESINFLÁMATE) 💬 Panel de expertos: Dr. José Ramón Blanco, el Dr. Joan B. Soriano y la Dra. Pilar Rodríguez Ledo (REiCOP y SEMG) 🧑‍⚕️ Isabelle Delgado (Long Covid Euskal Herria) 📰 Noticia completa en buff.ly/aUDUH1p