DMG-ACT: Adaptive Combinatorial Therapy for treatment of children diagnosed with DMG and DIPG
Joined November 2020
- Tweets 21
- Following 52
- Followers 181
- Likes 2
1 Photos and videos
PNOC DMG-ACT retweeted
12 Mar 2022
The more that we talk about it the more common it becomes to those that aren’t directly affected
9 Mar 2022
It's #ChildhoodCancer Awareness Wednesday. Start conversations abt kids fighting & the price most survivors have to pay for rest of their lives AFTER CHEMO. Fund research specifically for cures without toxic side effects. @HappyQuailPress @AmandaHaddock @cac2org @KoontzOncology
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PNOC DMG-ACT retweeted
11 Nov 2021
It was an honor to present to families about our #DIPG/#DMG #CART cell lab and clinical work at the @PNOC_kids @act_dmg Symposium. The central focus was work by Carl, Javad, and Sabine to push the DMG-ACT trial forward and advance combinatorial treatment options for our patients.
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PNOC DMG-ACT retweeted
15 Oct 2021
Announcing a GAME CHANGER Grant led by
SUJATHA VENKATARAMAN
University of Colorado
“Targeting DIPG using novel CAR-T cell therapy”
chadtough.org/research/grant…
#UniversityofColorado #DIPGResearch #GameChanger #DefeatDIPG #ChadToughDefeatDIPG
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PNOC DMG-ACT retweeted
25 Sep 2021
Come meet some of the @chadtough @DefeatDIPG team at our table at @CureFestUSA! We can’t wait to talk with you. TOGETHER, we will #DefeatDIPG! #curefest #toughertogether #DIPG
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PNOC DMG-ACT retweeted
26 Sep 2021
Loved hearing Dr. Javad Nazarian speaking from the stage on Freedom Plaza for @CureFestUSA — grateful for his efforts on so many #DIPG/#DMG initiatives! @DefeatDIPG
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PNOC DMG-ACT retweeted
24 Sep 2021
5 yr old Hudson lost his life to DIPG last December. Science couldn’t save him then, but his parents, like the rest of our Family Partners, continue to fight for the kids who will face this disease in the future.
#ChadToughDefeatDIPG #DefeatDIPG #ChildhoodCancerAwarenessMonth
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24 Aug 2021
We are excited to announce the commencement of enrolment on one of the DMG-ACT clinical trials PNOC023: the ONC206 phase 1 study. A true testament of DMG-ACT global working group.
More to follow.
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PNOC DMG-ACT retweeted
25 May 2021
Our hearts are with the Carr family 🧡
detroitnews.com/story/sports…
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PNOC DMG-ACT retweeted
25 May 2021
Particularly devastating for younger children with brain tumours
24 May 2021
Two-thirds of all children diagnosed with cancer are at risk for long-term side effects caused by both the tumor and the treatment. Side effects can include cardiac dysfunction, secondary cancers, impaired balance, decreased muscle tone and hearing loss. #BrainTumorAwarenessMonth
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PNOC DMG-ACT retweeted
11 Mar 2021
Fly high sweet girl. Thank you for changing my life for the better. I will never forget the love you taught me. Happy birthday my love. I will love you forever.
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PNOC DMG-ACT retweeted
15 Feb 2021
#memorymonday @nbcsvu @therealmariskahargitay was at a #Knicks game and G said “Ant I wanna hang out with her” I’m like I duno about that and she said “you’re @AnthonyMSG you can make it happen” TY @mrjimboslice @warrenleight 4 making it happen. I’ll never forget it. 🙏🏼❤️😢
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PNOC DMG-ACT retweeted
16 Jan 2021
Mark my words the world of DIPG gained a boost today. About 15 of THE best research-clinicians, parent advocates, data architects had a visionary call (on Saturday). No one works harder than DIPG greats to end this horror. Retweet if you’re ready to EndDipg! #DIPGWontwait
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PNOC DMG-ACT retweeted
16 Jan 2021
It was a pleasure to be a part of that meeting. Looking forward to the amazing work that will come to fruition
16 Jan 2021
Mark my words the world of DIPG gained a boost today. About 15 of THE best research-clinicians, parent advocates, data architects had a visionary call (on Saturday). No one works harder than DIPG greats to end this horror. Retweet if you’re ready to EndDipg! #DIPGWontwait
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19 Dec 2020
DMG-ACT is excited to be the recipient of the Swiss National Science Foundation funds. This is one of the largest (over $3Million) European funding in support of DIPG/DMG research.
med.uio.no/ncmm/english/news…
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PNOC DMG-ACT retweeted
2 Dec 2020
If there were a stronger word than urgent, it should be applied to finding a cure for Kids #DIPG Brain Cancer. We have 190 cosponsors for H. Res. 114. We need 28 more for a floor vote. Please cosponsor & help kids facing a death sentence. bit.ly/114c-c @RepTomGraves
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27 Nov 2020
We are excited to launch DMG-ACT Tweeter account. Our goal is to accelerate finding a cure for childhood brain cancers including diffuse intrinsic pontine glioma (DIPG) and diffuse midline glioma (DMG)
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