Campaigning for a better deal for children with cerebral palsy. #TakeAction

Joined February 2014
191 Photos and videos
@action_cp has responded to the DfE SEND Consultation. Thank you to parents who shared their experiences of the SEND system. Their insights are vital in understanding how the proposed reforms might impact their children’s future education See our response actioncp.org/send-reform-put…

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NHS England and the DHSC are seeking submissions that provide evidence of best practice in child health. They are looking for evidence-based interventions for children and young people which deliver measurable improvements in child health. eu.surveymonkey.com/r/CYPCal…

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Absolutely delighted to be in Westminster yesterday with Bert Martin to join our colleagues @upmovement_cp, in calling for annual health reviews for all adults with cerebral palsy. #CerebralPalsy #CPisLifelong #Disability
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Action Cerebral Palsy retweeted
Today, the Health and Social Care Committee published its long-awaited report on its Inquiry into the First 1000 Days. It highlights the UK has some of the worst health outcomes for young children in Europe. buff.ly/1vLmoa9
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This is a wonderful opportunity for children with upper limb challenges!
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Action Cerebral Palsy retweeted
Parasports for cerebral palsy: Thinking and ‘prescribing’ beyond the Paralympics #Parasports #Paralympics #CerebralPalsy buff.ly/qcEmhrF
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Introducing you to UP, The Adult Cerebral Palsy Movement. We work to improve services while ensuring the voices of adults with CP are heard. UP has launched a free new virtual community centre for adults with CP featuring a book club, art club, and more upmovement.org.uk/virtual-co…
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Action Cerebral Palsy retweeted
7 Nov 2025
Calling all SEN professionals 📢 Join us for one of our upcoming SEND law training sessions, which aim to support your work with families of children and young people with SEND. Find out more and book your place: bit.ly/4f4efy0
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Action Cerebral Palsy retweeted
7 Nov 2025
APCP - NEURODISABILITY (LEVEL 1) FOUNDATION COURSE 2026 - *|apcp.csp.org.uk/news-events/…|*
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@action_cp Thank you to our Patron @marykfoy for raising the important role played by specialist schools for children with complex SEND such as CP at the APPG on SEND today in Westminster #cerebralpalsy
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Action Cerebral Palsy retweeted
6 Oct 2025
Our video “How Play Supports Your Preterm and Term Baby’s Development” shows simple playtime tips for the first 3 months at home, supporting your baby’s sensory, motor, and relational growth.
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Today we celebrate all those living with CP. As the Government prepares its upcoming White Paper on SEND we call on them to ensure the needs of children with CP are fully included within their reforms. See our response to the recent ESC SEND Report actioncp.org/solving-the-sen…
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Action Cerebral Palsy retweeted
17 Jul 2025
Replying to @GreatNorthCH
Fantastic to see our evaluation of the SPACE pilot - which offers hospital-based social prescribing for children & their families, highlighted in the latest annual report from @NIHRresearch. Every £1 spent on the scheme returned £2.75 in benefits. @AnnaBasu1 @ways2wellnessUK
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Action Cerebral Palsy retweeted
📣 Healthcare professionals! 📣 You can now order up to 30 Mental Health Info Cards for FREE from the Bliss shop. These A5 cards offer tips to help neonatal parents look after their mental health. Order now! shorturl.pulse.ly/kuf705eya1 #MentalHealthSupport #NeonatalCare #Bliss
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Action Cerebral Palsy retweeted
18 Jul 2025
The SEND Tribunal has introduced a new Practice Direction. This sets out new rules for a range of things including page limits, working documents, evidence requirements, and how bundles are to be prepared and issued from 16 July. Read more: bit.ly/42IZpbs and bit.ly/4nWAURP
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Action Cerebral Palsy retweeted
18 Jul 2025
Learn to integrate Sensory, Motor, Attention & Regulation and Relationships across settings, co-producing goals with families and supporting participation in daily life. #EiSMART #EarlyIntervention #ChildDevelopment #CommunityHealth #OT #SLT #PT #MultidisciplinaryCare
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@action_cp is honoured that Lord McFall of Alcluith has accepted the role of Patron of the Charity. This momentous appointment strengthens our determination to champion the rights and needs of children and young people with cerebral palsy across the UK
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Action Cerebral Palsy retweeted
🙋🏽‍♂Take part in research and use your voice to change care 🙋🏽‍♀. This survey focuses on reviews or investigations that take place when a baby experiences harm, or when a baby dies. Take part by Monday 12 May. Regardless of whether you are aware or not whether you had a review or investigation, please consider taking part. Bliss, alongside many other organisations, have been supporting a study we’d love you to take part in if you can. It’s being led by Manchester and Oxford universities and we’re on the advisory group. Researchers want to know about your experiences if their baby was harmed in NHS care after January 1st 2019 in England. Your voice can lead to change. uom.link/matrepsurvey
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Action Cerebral Palsy retweeted
✨ We've had a great day at the @ihealthvisiting Evidence-based practice conference! ✨ Presenting, attending, learning and connecting, all in the name of excellent health visiting practice in the UK 🇬🇧. Lots to be proud about and fantastic examples to inspire the future!
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