Lived Experience Researcher
Joined May 2011
- Tweets 38
- Following 144
- Followers 73
- Likes 75
4 Photos and videos
Action Amos retweeted
13 Feb 2025
Thank you, Boston Children’s Hospital, for sharing the Curse of Stigma film and hosting an engaging panel discussion on combatting epilepsy stigma at home and abroad. The panel featured Dr. Archana Patel, Chris Ryan, Susan Linn, and Kurt Eichenwald. It was a wonderful night!
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Action Amos retweeted
12 Apr 2024
Understanding the ethics-related practices of NGOs engaged in mental health research is critical. This study addressed these questions in a Malawian context. plos.io/3Uqc7sR
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12 Apr 2024
#PLOSGlobalPublicHealth: Exploring ethical practice in NGOS on mental health research in Malawi dx.plos.org/10.1371/journal.…
Who is responsible for establishing the mental health research agenda?
Main factors influencing the involvement of NGO practitioners in mental health research
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12 Apr 2024
Exploring ethical practice in NGOS on mental health research in Malawi - journals.plos.org/globalpubl…
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Action Amos retweeted
21 Nov 2023
Policy action & advocacy in Africa by Action Amos presented by Patrick Ngechu from KAWE Kenya. They managed to enlist the help of the wife of the VP as an ambassador in Kenya and they are making a difference in enlisting the help of government for projects and medication
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Action Amos retweeted
21 Nov 2023
First Group photo of the day. One of many #stampoutstigma
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Action Amos retweeted
21 Nov 2023
IBE CEO Donna Walsh presenting on building a movement and raising awareness on epilepsy and building collaboration using the #50millionsteps campaign and the International Epilepsy Day.
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Action Amos retweeted
21 Nov 2023
Prof. Gus Baker, Secretary General IBE, presenting on generating evidence followed by @SebastianWinter recorded presentation on the global epilepsy needs survey(GENS). Key outcome is a report of that will inform the core needs of people with epilepsy globally.
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Action Amos retweeted
21 Nov 2023
Action Amos IBE Africa VP presenting 2024 plans guided by 3 focus areas namely; raising awareness, capacity building and policy dialogue #stampoutstigma
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Action Amos retweeted
28 Feb 2022
Thank you Africa for being part of the #50MillionStepsforEpilepsy Global Challenge and commemorating the @intepilepsyday with us.
We indeed raised awareness, improve visibility, and increased the understanding of #epilepsy in #Africa and beyond.
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10 Feb 2022
I’m walking for #epilepsyawareness. Help us walk #50MillionSteps- one for every person affected by #epilepsy in the world- ahead of #EpilepsyDay on February 14! Support with a donation at 50millionsteps.org/fundraisi… via @IntEpilepsyDay #epilepsyafrica
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Action Amos retweeted
2 Dec 2021
IBE #Africa Achievement Award
Join us on the 14th of December 2021, at 2:00 pm Pretori Time, during the inaugural IBE Africa.
Let us honor an Epilepsy Advocate who gave it all to ensure that #Epilepsy is recognized in #Africa.
To receive link email: masukumbutfo@gmail.com
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Action Amos retweeted
"We do not want anyone with #epilepsy to feel like an outcast". Hear Dr Patrick Adjei discuss the prevalence of epilepsy in Ghana 🇬🇭 #EpilepsyAwareness
youtube.com/watch?v=tITmkKjQ…
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Action Amos retweeted
8 Jul 2021
BRINGING EPILEPSY OUT OF THE SHADOWS-A PUBLIC HEALTH IMPERATIVE
Invitation to a virtual roundtable discussion to inspire a decade of action guided by the International Global Action Plan on #Epilepsy and other Neurological Disorders.
Register via link: cts.vresp.com/c/?ILAE/2b7646…
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Action Amos retweeted
26 Jan 2021
VACANCY!!! – Advocacy Trainer
IBE, with support from Band Foundation, is looking for an ‘ADVOCACY TRAINER’.
#Apply #epilepsy #epilepsyawareness
epilepsyafrica.org/vacancy-a…
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10 Jan 2021
What a shining example indeed......others need to emulate this!!!!!
7 Jan 2021
I am happy to have fulfilled my promise to the community of Persons with Special Needs, by assenting to the Disability Bill. We have also inaugurated a National Commission for Persons with Disabilities, to take the work to the next level, and implement our vision in full.
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6 Nov 2020
Dr Charlotte Baker.....this a good platform for learning and share experiences.
Our first speaker @actionamo is speaking about ‘conceptualization of mental health in Malawi’
#alternativeexplanations
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Action Amos retweeted
Our speakers from the first panel are now taking questions from other participants and they have really left an impact on the listeners because of which there are now a lot of questions/clarifications from them.
@actionamo @PreethiLN Joanne Bloch 💯💯💯
#alternativeexplanations
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Action Amos retweeted
22 Oct 2020
Most people with #epilepsy face discrimination in employment, education, marriage, and social situations. buff.ly/3dur71t
#GlobalEpilepsyReport #50MillionReasons
@wfneurology @ILAEweb @EUneurology @EU_Brain @AFANeurology @WHO
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27 Oct 2020
We cant wait !!!!!!
19 Oct 2020
Monday February 8 is International #Epilepsy Day. Why not encourage landmarks in your area to light up purple to mark the occasion?
Download resources from the International #EpilepsyDay website to help spread the word!
mailchi.mp/818359ceebac/ied2…
