This account is no longer actively managed.
- Tweets 16,761
- Following 2,128
- Followers 12,390
- Likes 6,505
ALT An announcement from the organisation "Action for ME" The background features the iconic Big Ben clock tower and the Palace of Westminster in London, with a blue sky. The text reads, "Join us in calling on the Government to ‘Act for ME,’" encouraging action from the government for ME (Myalgic Encephalomyelitis). The announcement includes two buttons labelled "Our news" and "Policy" and features a QR code for further engagement. The overall theme is advocacy for ME/CFS awareness and policy change.
ALT Quote on peach background: “As a charity supporting people with disabilities, we want to reach a diverse group. We have a responsibility to review the platforms we use to ensure they align with our values and benefit those we support.” Below: “Full statement available on our website.”
ALT Graphic highlighting that the recording from Action for ME’s 2024 AGM is now available to view. Action for ME logo at the top with white text below reading “2024 AGM recording. The recording from our 2024 AGM is now available to view. The text overlays an image of a report displaying graphs.
ALT Image on a light pink background with the "Action for M.E" logo in the top left. The text "Parliamentary Champions Network" is centered above a portrait photo of Jo Platt MP, who is wearing a black top with white polka dots. Beneath the image is a line followed by the text "Jo Platt MP."
ALT Quote from Jo Platt MP on a light pink background. It reads: "I am honoured to become a Parliamentary Champion for Action for ME. My own experience with long Covid and suspected ME has given me a firsthand understanding of the impact post-viral diseases can have on people's lives." The text is aligned left with a line beneath, followed by "Jo Platt MP."
ALT Quote from Jo Platt MP on a light pink background. It reads: "Through my role as an MP, I am committed to raising awareness in Parliament and ensuring that those affected by ME and related long-term, fluctuating conditions receive the recognition, support, and care they deserve." The text is aligned left with a line beneath, followed by "Jo Platt MP."
ALT Promotional image for a webinar by Action for ME titled 'Updates on the Genetics Centre of Excellence,' scheduled for 24 October from 2–3 PM. The image features a close-up of a DNA strand in the background, with an orange 'Webinar' banner, and a QR code for more information. Buttons for 'Our news' and 'Research' are also included.
ALT News Change NHS: Help build a health service fit for the future.
ALT Notice informing of reduced communication capacity due to staff sickness and leave. It explains that response times will be slower and fewer posts will be made over the next week. For urgent press or media inquiries, contact actionforme@connectpa.co.uk, and for information or support, contact questions@actionforme.org.uk. The message ends with a thank you for understanding.
ALT The image shows the cover of the "Action for ME Trustees' report 2023-2024." It features a person with orange hair in a wheelchair, facing a serene ocean sunset with a striped shirt and orange dress. The border is decorated with large flowers in pink, yellow, and orange. The logo "Action for ME" is at the top. The bottom credits the artwork to Maya & Ink, who has ME @maya_and_ink
ALT News article from The Guardian. 'This illness is as physiological as a broken leg'
ALT An illustration shows four healthcare professionals, with a quote from Dr Nina Muirhead: “The most important message from my point of view is that people with ME need two things, recognition and support. And I think that's what primary care physicians can really offer.” The image promotes the "Learn about ME" initiative, funded by the Scottish Government and delivered by Action for ME, in partnership with the ME Association and #MEAction Scotland. Scottish Government logo is also present.
ALT Photo of Christmas tree with red baubles and lights. Text in green box: ‘Christmas Ecard Competition’. Beneath is text in white box: ‘Take part in our Christmas Ecard Design Competition!’. Beneath this is 4 images of previous ecard designs – a daschund in the snow, a penguin, a snowman and reindeer, and a Christmas tree. Action for ME logo in top left corner.
ALT Photo of one of the Action for ME runners from the TCS London Marathon 2022. Text in white box beside: “TCS London Marathon breaks record with final total raised for charity” with further text beneath: “Thank you so much to all of our supporters for being a part of this incredible achievement!”. Action for ME logo in top left corner.