Patient-centered health information evangelist and medical device developer. Volunteer CTO at Patient Privacy Rights Foundation.
Joined May 2007
- Tweets 1,295
- Following 166
- Followers 989
- Likes 29
30 Photos and videos
21 Mar 2023
Do we really want to privatize and make secret medical science in this way? mobihealthnews.com/news/arte…
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19 Jan 2023
Trustee Community Newsletter: Medical AI Will Not Be Like ChatGPT trustee.substack.com/p/medic…
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27 Nov 2022
Introducing a new patient community paradigm
trustee.substack.com/p/intro… @TrusteeHIE @PatientPrivacy
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11 Nov 2022
What do healthcare consumers want? on Trustee Community Newsletter trustee.substack.com/p/what-…
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19 Oct 2022
Interesting strategic perspective on #privacy and #blockchain regulations to promote #decentralization. mitre.brandlive.com/grand-ch… @TrusteeHIE
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Adrian Gropper retweeted
17 Oct 2022
Why a decentralized health records approach is the way out of today’s byzantine healthcare system open.substack.com/pub/truste…
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7 Oct 2022
Excellent update by @caseymross statnews.com/2022/10/06/heal… It's 18 years since NHIN. Now we have TEFCA to wait for. Our sick care system focuses on business over patients. @PatientPrivacy @TrusteeHIE
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18 Sep 2022
We're launching the Trustee Community Newsletter with a post by our own @EdiePargh to set the stage. Please subscribe and share. trustee.substack.com/p/why-a… @PatientPrivacy @TrusteeHIE
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Adrian Gropper retweeted
4 Sep 2022
After self-hosting my email for twenty-three years I have thrown in the towel 😩
Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.
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27 Jul 2022
2/ Much of our digital infrastructure today is funded by advertising and surveillance capitalism. We're playing catch-up to make #broadband a Human Right.
The #metaverse should be #HumanRights affirming by default. The choice of one's AI-enabled #bot must be Free, as culture.
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26 Jul 2022
In the metaverse, no-one knows you're a bot.
Ongoing dispute over the value of @Twitter makes this clear. What's less clear is how my attention will be monetized when I get full choice over what AI runs my bot. Also, how will marketers pay for the cost of my bot? @TrusteeHIE
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15 Jul 2022
“Platforms”, like Facebook, are a euphemism for rent-seeking middlemen with a surveillance capitalism business model. Instead, we need standards that reduce “platform” switching costs and promote competition.
14 Jul 2022
Was at this event yesterday and Vince and Randall did an excellent job laying out conceptual framework for platforms.
While I’m supportive of concept, far far too many companies are calling themselves platforms - they are not.
Lots of hurdles to overcome.
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Adrian Gropper retweeted
1 Jul 2022
There's a school of economics that likens the economy to a computer, one we all power. When we buy something - or walk away - it's data for the computer, which transmits price/demandinformation from consumers to producers to financiers, so that demand can be met with supply. 1/
ALT An icon of a person cracking a bullwhip; their head has been replaced with the frowning head of Uncle Sam. Each ascending peak of the whip's passage has a different icon; in order: ATM, shop, truck, warehouse, shipping containers, container ship, factory. In the background is a blurred out supermarket aisle, stocked high with goods. Image: Lars Frantzen (modified) https://commons.wikimedia.org/wiki/File:Supermarket_full_of_goods.jpg CC BY-SA 4.0 https://creativecommons.org/licenses/by-sa/4.0/deed.en -- Twitter (modified) https://commons.wikimedia.org/wiki/File:Twemoji2_1f3ed.svg CC BY 4.0 https://creativecommons.org/licenses/by/4.0/deed.en -- Thwongterry and Toobaz (modified) https://commons.wikimedia.org/wiki/File:Bullwhip_effect.png CC BY-SA 3.0 https://creativecommons.org/licenses/by-sa/3.0/deed.en
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1 Jul 2022
At @TrusteeHIE and @PatientPrivacy, patient-centered #Interoperability means a credentialed practitioner can _write_ to the patient's record AND patients can organize into communities around a shared concern. Communities will then differentiate around data access policy.
30 Jun 2022
What's the vision guiding my team's #interoperability work? I jotted down some notes (WIP) today on "Patient-centric interop". So many of y'all work toward aligned visions! I'd love links to favorite write-ups (blogs, papers...), or feedback here.
hackmd.io/@jmandel/patient-c…
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Adrian Gropper retweeted
16 Jun 2022
When it comes to big tech gathering data it takes a lot to shock me these days, but this story (quoted alongside @WNicholsonPrice and other experts) truly shocked me. The story details how Meta collects patient data (incl prescriptions) on password protected hospital portals.
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