Passionate about patient engagement and advocacy. Optimist, mother, sky dancer, music lover, dreamer, novel reader.
Joined February 2009
- Tweets 1,419
- Following 504
- Followers 427
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77 Photos and videos
⏰We are counting down! Be sure to tune into our #TwitterSpaces today. #MedEd #DermTwitter
@HansaBhargavaMD @ArcutisBio
Join us for an exciting conversation on the latest advances in dermatology! Our upcoming #TwitterSpaces event will feature @MedscapeCME CMO, @HansaBhargavaMD & @ArcutisBio CMO, Patrick Burnett, MD, PhD, FAAD. Make sure to save the date!
#MedEd #healthcare
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Amanda Sheldon retweeted
24 Sep 2021
Early diagnosis and treatment is key! Children should be diagnosed as early as possible and initiate statin therapy for HeFH as young as 8 years of age. We can #prevent #heartdisease! #KnowFH #FHCantWait @TheFHFoundation @GeisingerRsrch @gemmemc
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Amanda Sheldon retweeted
24 Sep 2021
My mom had her first heart attack in 1964 at age 41, our neighbor didn’t believe her and said, “Women don’t have heart disease.” She had heart disease for 15 years, FH did it. It was bad, really bad. I have FH too. I’m 64, knock on wood, poo poo poo, and I’m fine. Glad I #KnowFH
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Amanda Sheldon retweeted
24 Sep 2021
A1: It’s literally a matter of life & death. With high LDL-C & family history of heart disease, you are at risk and you should talk to your doctor. Get your LDL checked and talk to your family! My dad's 1st heart attack was at 28 - mine at 35. #KnowFH #HoFH
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Amanda Sheldon retweeted
24 Sep 2021
A3: Keep your #cholesterol in the safe zone! If you have #heartdisease keep LDL-C below 70 mg/dL. If you don't have #heartdisease, keep your LDL-C below 100 mg/dL. There are many effective #treatments for #KnowFH! Visit @TheFHFoundation and @nationallipid to learn more!
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Amanda Sheldon retweeted
23 Jul 2021
Pasadena Tournament of Roses Offers Sneak Peek at 2022 Rose Parade Floats pasadenanow.com/main/pasaden…
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22 Jun 2021
Awareness drives action. Please share to help more people understand that their high #cholesterol could be #genetic. #knowfh
22 Jun 2021
FH Advocate, Brandon Wilson, had his first #heartattack at 29. He shares his story to raise awareness of familial hypercholesterolemia (FH) to help prevent early heart events like his. Do you #KnowFH?
Read and share his story:
webmd.com/cholesterol-manage…
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22 Jun 2021
Our research is out! Learned so much as part of this research team!
21 Jun 2021
Automated screening approaches to identify individuals with FH including the FH Foundation's FIND FH model were acceptable, appropriate and feasible according to new #implementationscience research.
#KnowFH #cardiotwitter @JPM_MDPI
mdpi.com/2075-4426/11/6/587
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Amanda Sheldon retweeted
14 May 2021
Optimizing solutions to overcome barriers to identification, diagnosis and care for individuals with familial hypercholesterolemia. Proud to be a part of this #implementationscience research. #KnowFH @KAWilemon @ams9 @KellyDMyers #FINDFH
14 May 2021
Excited to share our preprint from the #IMPACTFH @nih_nhlbi study on #implementationscience outcomes for automated screening and family communication methods for #KnowFH! bit.ly/3ogqDkS @LaneyJonesRx @CatDavisAhmed @GeisingerRsrch @TheFHFoundation
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Amanda Sheldon retweeted
27 May 2021
New research! #COVID19 ⬆️♥️ #heartattacks in individuals at genetic high risk for #heardisease. Real-world data from @TheFHFoundation national database underscores importance of identifying individuals w/ FH not diagnosed today.#KnowFH #genetics #FINDFH
doi.org/10.1016/j.ajpc.2021.…
ALT COVID-19 Increases Rate of Heart Attacks in People with Genetic High Cholesterol and Heart Disease New Research from FH Foundation Underscores Importance of Diagnosing and Treating Familial Hypercholesterolemia
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6 May 2021
Raising awareness of FH and the need to prevent heart disease in those at highest risk. #KnowFH
5 May 2021
FH Foundation founder @KAWilemon highlights importance of preventing #heartdisease in those at highest risk . #CRISPR potential new frontier for individuals with familial hypercholesteromia - a common #genetic condition. #KnowFH #FINDFH #prevention @WSJ
wsj.com/articles/crisprs-nex…
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Amanda Sheldon retweeted
18 Mar 2021
Truly appreciate @ams9 and the @TheFHFoundation for continuing to draw attention to the impact of FH on Franco-American and French Canadian communities!
@BatesCollege @PressHerald @sunjournal @UMFrancoProgram
18 Mar 2021
FH is common impacting 1 in 250 people. However, in certain "founder populations," FH can impact as many as 1 in 70 people. Learn more about how the founder effect impacts Franco Americans and others. #KnowFH @reed_mszar
Learn:
thefhfoundation.org/franco-a…
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13 Dec 2020
Keto, Mediterranean Diet, Low-Fat, Vegan - what's the right diet for managing inherited high cholesterol? #health #heartattack #keto #vegan @WomenHeartOrg @MendedHearts @KAWilemon @joshuawknowles @SethJBaumMD @DrMichaelShapir
13 Dec 2020
Join us for a webinar – Cholesterol Control: How can diet and medication help? Hear from experts and bring your questions #heartdisease #cholesterol #KnowFH #HoFH @American_Heart @HeartNurses @CardioSmart @ASPCardio
Register to join or receive recording: conta.cc/3oLKFD0
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Amanda Sheldon retweeted
15 Nov 2020
With statin therapy FH patients are living longer, how FH behaves in elder people? Not so well as shown by @lalacoutinho35 @marciominame @zorzanelli @MBittencourtMD @hipercol_brasil #AHA20 #KNOWFH
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13 Nov 2020
Proud to be a part of this amazing research team and applying my health communications experience to improve how families talk to each other about their health. #familyhistory #heartdisease #team #KnowFH
x.com/TheFHFoundation/status…
13 Nov 2020
Proud to partner w/ @GeisingerRsrch to improve the acceptability and feasibility of novel screening models and family communication methods for FH. New Poster presented in Shared Decision Making and Personalizing Therapy Session at #AHA20. #KnowFH #genetics #CVD #FINDFH
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Amanda Sheldon retweeted
13 Nov 2020
Proud to partner w/ @GeisingerRsrch to improve the acceptability and feasibility of novel screening models and family communication methods for FH. New Poster presented in Shared Decision Making and Personalizing Therapy Session at #AHA20. #KnowFH #genetics #CVD #FINDFH
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Amanda Sheldon retweeted
3 Nov 2020
In a sea of uncertainty, Mom Boat is always there to buoy our spirits
ALT A baby otter pup aboard its mom's belly
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22 Sep 2020
It's so simple to save life and prevent #heartdisease by raising awareness of this important #genetic condition - familial hypercholesterolemia @fhpatienteurope @worldheartfed @nationallipid @RareDiseases @CDC_Genomics @CDCHeart_Stroke @MillionHeartsUS @GeneticCouns #KnowFH
22 Sep 2020
5 ways to get involved in FH Awareness Day - Thu, September 24!! Prevent early ❤️ #heartdisease by raising awareness of familial hypercholesterolemia #KnowFH #FINDFH #cardiotwitter #gchat #FHAwarenessDay
conta.cc/3cmIocC
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22 Sep 2020
We hope you all will join us for our 8th annual FH Global Summit. @ASPCardio @American_Heart @ACCinTouch @nationallipid @KAWilemon @joshuawknowles @HeartNurses @WomenHeartOrg @MendedHearts @atherosociety @EASCongress @worldheartfed @fheurope @heartukcharity
22 Sep 2020
LAST Chance to register for the Opening Session of the FH Global Summit. #FHSummit20 #KnowFH
Register Today: thefhfoundation.org/2020-fh-…
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