Joined April 2018
1 Photos and videos
AZNETS retweeted
17 Sep 2019
Do you practice as a Doctor, Clinical officer, nurse, pharmacist, pathologist, lab tech, care giver oŕ are a patient in Africa? Put Africa in the map of NET DX & RX access lasurveyonline.com/newsurvey…
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16 Sep 2019
Healthcare workers and patients are welcome to SCAN @MOH_Kenya @MoHRwanda @Kenyapaeds @kenconetwork
Today is the day - September 16th. INCA launches SCAN. If you are a NET patient or a healthcare professional, join the global effort and share your opinion. SCAN is available in 14 languages. #wescan incalliance.org/scan/
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AZNETS retweeted
16 Sep 2019
Neuroendocrine Tumors are uncommon type of cancers or are thought so. INCA-an international advocacy for NET patients is doing a survey to assess access to treatment worldwide. Take a minute to do survey. @KenyaMedics_KMA @KCOA_Official @NCKenya incalliance.org/scan/

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25 Jul 2019
Yes. More of that is needed.
I wrote a little thing in London’s City A.M. newspaper today. Do you agree?
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21 Jun 2019
This is so amazing.
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AZNETS retweeted
Sharing comics and cartoons are a great way to share medical information with children and young teens says Jo Grey of @AmendInfo as she presents at the 7th INCA Global NET Patient Advocate Summit. #NeuroendocrineTumors #LetsTalkAboutNETs @netcancerday
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AZNETS retweeted
18 Jun 2019
Moving towards personalised medicine. Changing old protocols is the need of the hour. #LetsTalkAboutNETs
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Simone Leyden @unicornfound sharing the INCA projects advancing NET Researc and getting patients involved at every stage #letstalkaboutnets
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AZNETS retweeted
The “Triple A” of #PRRT - awareness, accessibility, ability/expertise. Sugandha Dureja, MD, nuclear medicine expert in theranostics, shares information with #NeuroendocrineTumor patient advocates at 7th annual INCA global summit. @CNETSIndia @netcancerday #LetsTalkAboutNETs
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AZNETS retweeted
Joanna Grey of @AmendInfo speaks about The Right Information for #NeuroendocrineTumor Patients at the Right Time during the 7th Annual Global NET Patient Advocate Summit. @netcancerday #LetsTalkAboutNETs
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AZNETS retweeted
How can we improve access to expensive medical treatments? Lessons from India. Speaker Sugandha Dureja, @netcancerindia. INCA Summit 2019, Plovdiv Coming soon! #LetsTalkAboutNETs
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INCA -26 member organisations from 22 countries working together to ensure quality of life, access, information, and effective research are priorities globally #letstalkaboutnets
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INCA board member Dirk @NETenMENkanker launching SCAN. Survey of Chellenges in Access to Diagnostics and Treatment for NET Patients. There is a financial burden for NET patients #letstalkaboutnets
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Delighted to be here at the 7th INCA Summit with amazing advocates from around the globe #letstalkaboutnets #plovdiv
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@BritSocGastro#BSG2019 Sally - you go through the stages denial, anger through to grief for the life that will never be the same once diagnosed with NET - to a kind of acceptance but still underneath is terror, pure terror ...#letstalkaboutNETs ⁦@netpatientfound⁩
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AZNETS retweeted
19 Jun 2019
Giuseppe Grasso from new INCA member @netitalyonlus introduces their work. #INCAGlobalSummit2019 #neuroendocrinecancer #LetsTalkAboutNETs #INCA
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AZNETS retweeted
17 Jun 2019
INCA global NET Patient summit takes off with the President's report. Looking forward to great three days of networking and exchange. #LetsTalkAboutNETs
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