Prose writer. Patient/caregiver/#MAiD advocate. Approach with curiosity, listen to understand. (Un)learning on the unceded land of the Qayqayt.
Joined April 2011
- Tweets 26,204
- Following 4,183
- Followers 1,736
- Likes 47,061
1,182 Photos and videos
Pinned Tweet
21 Apr 2023
I’m never on here anymore and when I do step in, it doesn’t feel good. It’s contributed to my choice of a prolonged break from social media. I want to see what I can do w the space/time it normally occupies.
I wish you well. Please quietly wish me the same. Photo: Josh Hinkson
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2 Sep 2023
It’s #AlopeciaAreataAwarenessMonth! It’s rare for me to be in this space anymore, but September is always a good month to open my feed to questions.
What do you want to know about #AlopeciaAreata?
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5 Apr 2023
“So is born,
peace.
A settling.
A magical anchor
that
both hopes
and fulfills.
A truth
that must
be delicately
held
before
it is whispered
to the world.”
#baldgrrl #ThingsImThinkingAbout
open.substack.com/pub/janabu…
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5 Mar 2023
I’ve been putting down some more thoughts over on Substack. Come give them a read if you are so inclined.
#ThingsImThinkingAbout
open.substack.com/pub/janabu…
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Jana Buhlmann retweeted
22 Feb 2023
This is EXACTLY what I keep trying to communicate. While it’s not right I’ve been cornered into #MAID by medical damage lack of proper care or palliative options, the answer isn’t to attack MAID force people to endure endless suffering (especially with inadequate pain mgmt!)
20 Feb 2023
It is genuinely possible to support a wide application of MAID, a right won for Canadians by disability activists throughout the 20th century, while also wanting disabled people to have access to safe, reliable, affordable housing, ...
open.substack.com/pub/pfthur…
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21 Feb 2023
It’s been three years since #IrishtheBoston took his last. In keeping with our tradition on this day, there are ten doggie cones waiting for some puppers to stop by @rockypointIC on 6th in #NewWest. Give your doggo a scratch for Irish. ❤️
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Jana Buhlmann retweeted
19 Feb 2023
Ensuring patient partnership at every stage of care is critical for safety, respect & to prevent traumatic experiences. Transitions of care are where partnerships & empowering patients to steer/define their care are most important. 10/10
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19 Feb 2023
Amplifying for the doctors in my feed.
👇👇👇👇👇👇👇👇👇👇👇👇👇
19 Feb 2023
And as always - my main ask is I’m desperate for a compassionate GI doctor (and pain management/palliative) in #Vancouver who actually wants to try to help me. I don’t need doctor *recommendations*, my referrals get rejected. I need someone who WANTS to take me on. Thanks all. 💕
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13 Feb 2023
Patients know what they need. 👇
12 Feb 2023
I need way more time, but I’m so unwell and suffering too much, and the system is so slow… the only way I can see being able to sort any of this out and recover is if someone would admit me, put me on supplemental TPN so I stop losing weight while I get the GI workup.
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7 Feb 2023
👇👇👇👇👇👇👇
7 Feb 2023
Today an Alberta lawyer argued that requiring lawyers to take an indigenous cultural course was the same as forcing indigenous children into residential schools and I’ve never heard a more powerful argument for requiring lawyers to take an indigenous cultural course. #ableg
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6 Feb 2023
An appropriate bit of poetry after trying to find parking @BCChildrensHosp. Tripped upon a metred, empty side street but felt for all those with whom we circled and circled and …
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29 Jan 2023
As a mother of a neurodivergent child, as a mother, as a human being …
27 Jan 2023
A 12 year old Indigenous boy with autism handcuffed and pinned down by Vancouver Transit Police. Imagine if his mom wasn’t there to record them, how far would they go?
Canadian law enforcement treats our children like criminals.
Se full video on his mom’s TikTok Mia Brown.
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Jana Buhlmann retweeted
20 Jan 2023
Struggling with #PerimenopausalBleeding? In this episode we meet Jenna. Her raw story about perimenopause bleeding not only shows the daily struggles associated with this symptom but also shares how she found the solution. → l8r.it/QkHh
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Jana Buhlmann retweeted
17 Jan 2023
Tragic news! I haven’t missed a folk music fest since moving to Vancouver in the early 1990. Very sad to hear this.
Crushed by post-pandemic bills, Vancouver Folk Music Festival won't return in 2023 | CBC News cbc.ca/news/canada/british-c…
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16 Jan 2023
I’m never here anymore. Mostly I’m here, on a path w a pup …
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Jana Buhlmann retweeted
26 Dec 2022
Seeing L’Eggs trending just reminds me that when people say GenX hasn’t done anything, I point out that we ended the terroristic reign of pantyhose.
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Jana Buhlmann retweeted
26 Dec 2022
This is your reminder to check on your friends, especially the ones who may not have plans for the holidays.
Save a seat for someone. Ask if a seat could be saved for you.
Welcome to my Puzzle of Love print.
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25 Dec 2022
May this time be, as you need.
May you find rest.
From my family to yours. ❤️
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Jana Buhlmann retweeted
22 Dec 2022
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Jana Buhlmann retweeted
23 Dec 2022
A moment of respect for the Pattullo bridge please, guys. The sketchiest, most pinner bridge we have is somehow the only one that can hold up in a winter storm. Ole Faithful. Who woulda thought.
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