Donor BMT trek w/brother 2001 changed both our lives forever. Caregiver/researcher/advocate. My anonymity protects his.👩👦Podcast junkie, inveterate walker.
Joined September 2015
- Tweets 157,188
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- Followers 2,742
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7,801 Photos and videos
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14 Sep 2025
As good a cancer piece as I’ve ever read.
“Figure out what's important to you in terms of, ‘If you only had a certain amount of time left & you had the flexibility to do it, what do you want to do with that time?’”
My brother has lived this for 20 years. I think about it daily.
8 Sep 2025
One of the biggest influences on my career is Dr. Ross Camidge - a mentor and friend, an intellectual giant in the field of lung cancer who was diagnosed with this unforgiving disease himself. We are all at risk - and must all work to move the field.
news.cuanschutz.edu/cancer-c…
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Sam Bankman-Fried’s conviction upheld by appeals court dlvr.it/TT12F6
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Jun 10
“The Wall Street Journal and Dow Jones Newswires use artificial-intelligence tools in a variety of ways in our journalism.”
It shows.
That’s not a compliment.
Jun 10
Joaquin Duato said finding a cure for certain cancers and turning others into chronic diseases is an achievable target for the coming decade. on.wsj.com/4fy2ALb
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Jun 9
Good intro and backgrounder.
"Even though just 3.2% of newly diagnosed cancers are pancreatic, it is the nation’s third-leading cause of cancer deaths."
Thus the fervor.
Jun 9
A clinical trial showed a pill almost doubled survival for people with stage four pancreatic cancer. Can patients access the medication now? How long until the FDA can approve it? Here are some answers.
buff.ly/EnMS4T1
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"I got my normal back."
That's how Leanna Stokes, mother of 2 young boys and a person living with metastatic pancreatic cancer, described her life following treatment w/ daraxonrasib.
Listen to our conversation w/ Leanna on this week's Readout LOUD podcast. Well worth your time.
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Baby has gotten good at identifying “dada” but still struggling with surrealism, cubism, even baroque.
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May 22
[🚨 POR FAVOR AYÚDAME A DIFUNDIR — BUSCO UN ENSAYO CLÍNICO EN CUALQUIER PARTE DEL MUNDO 🌍]
Mi nombre es Selva Alvarez, tengo 35 años, vivo en Colombia y soy Científica de Datos 📊. Hoy no les escribo solo como una paciente con cáncer gástrico avanzado (Estadio IV) 🎗️, sino como alguien que acaba de encontrar un dato científico único en su propio cuerpo que podría cambiarlo todo 🧬.
Ayer, 21 de mayo de 2026, mi reporte de patología reveló algo extraordinario y muy escaso en el mundo: mi tumor dio POSITIVO para una proteína llamada CLAUDINA 18.2 🔬.
Para explicarlo de forma sencilla: la Claudina 18.2 es como una "cerradura" 🔐 muy rara que solo tienen algunos tumores en el mundo. La ciencia médica ya inventó una "llave" 🔑 exacta para esa cerradura (un medicamento avanzado llamado Zolbetuximab o Vyloy), que es capaz de atacar directamente las células enfermas sin destruir el resto del cuerpo 🎯.
El problema es que este medicamento no es comercial en Colombia 🇨🇴. Mi oncólogo me confirmó que mi única oportunidad real de acceder a esta "llave" es que una farmacéutica o un centro de investigación me reciba en un Ensayo Clínico Nacional o Internacional o en un programa de acceso expandido ✈️.
Al ser un perfil de paciente tan escaso y específico en el planeta, sé que hay laboratorios y científicos en el mundo buscando activamente a personas como yo para sus estudios de medicina de precisión 🩺.
Quiero que el mundo sepa que estoy lista 💪: mis órganos vitales (hígado y riñones) están completamente sanos, fuertes y funcionando a la perfección, listos para resistir el tratamiento 🫁. Tengo la juventud, la fuerza biológica y la determinación absoluta de pelear por mi vida y aportar a la ciencia 🦾.
Hago un llamado directo a la comunidad científica global (#OncoTwitter 🩺), a laboratorios como @AstellasUS 🏢, y a investigadores de cualquier país que lideren estudios sobre Claudina 18.2: Aquí hay una paciente joven con el biomarcador idóneo 📑.
Por favor, ayúdenme con un RT (compartir) 🔁. Un solo clic de ustedes puede hacer que este mensaje cruce fronteras y llegue al comité científico o a la farmacéutica que me pueda patrocinar 💌.
Mis mensajes directos (DM) están abiertos para enviar de inmediato mi historial médico, resultados de los marcadores, bloques de patología o cualquier cosa que se necesite 📤.
Colombia 🇨🇴 | Contacto: DM abierto 📩.
#GastricCancer #Zolbetuximab #ClinicalTrials #PrecisionMedicine #OncoTwitter #Claudina18 #CancerGastrico #EnsayosClinicos #MedicinaDePrecision #Vyloy
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May 21
Iris
California poppies
Iris
Late meteorological spring floraliciousness
From a wild & wacky weather year.
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May 17
Dear Ms Riedl:
Every informed source I listen to proclaims that Congress has abdicated its role for some time. @BenSasse making rounds, & latest (in a great hour on CSPAN Booknotes) being @whignewtons.
Seems the deep fissure is elsewhere.
Three branches of govt is a relic?
May 17
I cannot imagine being a Republican lawmaker today. You are not allowed to have an independent thought, much less legislate. You are permitted only cult-like devotion to the Dear Leader - and any wrong move will mobilize a cult-like mob of nihilistic primary voters. Why bother?
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May 14
Good find. I have 18 screenshots saved in my “Aduhelm” file, but can’t respond in the thread because I am blocked.
May 14
@statnews must have an extremely short memory if they think Makary is the worst commissioner in history x.com/adamfeuerstein/status/…
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May 13
Nature babies. Ducklings with their mom, goslings with their mom and dad. 🦆 🪿 ❣️
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May 10
“Lots of us grew up fearing the dystopian future of George Orwell, but it turns out the dystopian future of Aldous Huxley was much more likely.”
We debated which was the more salient of these books on Twitter long ago. I voted 1984. I was wrong.
However wsj.com/opinion/habits-for-h…
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May 10
For writing advice Orwell is about impossible to top. Also political analyses in times of war.
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May 3
"Can they provide any plausible election outcome that would show that voters reject far-leftism?"
2024 comes to mind.
My 2c on the "should Democrats move leftward after 2024" debate is that:
- When Democrats win, progressives say it proves that voters want far-left policies.
- When Democrats lose, progressives say it proves that voters want far-left policies (that the candidate failed to offer).
Can they provide any plausible election outcome that would show that voters reject far-leftism? If not, a hypothesis that is unfalsifiable is flawed and should be ignored.
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May 2
The "little issue" is that it was reported & deleted. Just like this one.
Tweeting this out to raise or increase awareness on Twitter of how much this has been happening.
May 2
Another victim of the hijack scam. Reported, did not “vote” (and get hacked!).
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May 2
Another victim of the hijack scam. Reported, did not “vote” (and get hacked!).
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May 1
This week's Interesting Times is a conversation about a future where humans aren't driving anymore:
youtube.com/watch?v=LcvrANwM…
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May 1
Happy May Day.
When we were kids, my mother would make a bunch of little bouquets that my sister and I would take to neighbors’ houses and put on their front steps. Then we’d ring their doorbell and run off and hide to watch their happy surprise.
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