We created the FIRST UK signs and symptoms awareness card for all childhood cancers, and we are the sole providers of the Beads of Courage UK programme.
Joined February 2010
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5 Jul 2025
24 Jun 2025
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The recent (and in my opinion, crucial!) Childhood Cancer Diagnosis (CCD) Study results document was published in The Lancet Regional Health โ Europe on 29th May 2025.
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thelancet.com/action/showPdfโฆ
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BeChildCancerAware ๐๏ธ retweeted
On the first day of Neuroblastoma Awareness Week - What is Neuroblastoma!?
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solvingkidscancer.org.uk/neuโฆ
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BeChildCancerAware ๐๏ธ retweeted
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bbc.co.uk/sounds/play/m002xnโฆ
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45m. 50s in. to 56m. 20s.
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BeChildCancerAware ๐๏ธ retweeted
1of2:
Today:
Itโs Never You on Facebook:
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BeChildCancerAware ๐๏ธ retweeted
Jun 11
What is Child Cancer Smart?
โChild Cancer Smart is an evidence-based public and professional awareness campaign, aiming to raise awareness about the signs and symptoms of cancer in children and teenagers to speed up diagnosis.โ
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cclg.org.uk/childcancersmartโฆ
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Findings from this Delphi consensus study provide insight into current barriers interfering with prompt and effective referral for diagnosis of children with suspected cancer.
Read more here: bit.ly/49P28Ey
ALT The Delphi consensus process.
ALT Percentage consensus for final good practice statements (Statements 1โ12).
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BeChildCancerAware ๐๏ธ retweeted
Nice work Kate x
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BeChildCancerAware ๐๏ธ retweeted
Jun 10
The consultation includes a dedicated chapter on Hugh's Law, exploring how workplace protections can better support parents of seriously ill children.
If you have relevant experience, I'd encourage you to have your say ๐
gov.uk/government/consultatiโฆ
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BeChildCancerAware ๐๏ธ retweeted
Jun 10
Following Hugh's passing in 2021, Frances and Ceri founded @ItsNeverYou22 to support families facing the same unimaginable reality.
They have supported families all across the country and helped shine a light on the challenges parents face when caring for a seriously ill child.
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BeChildCancerAware ๐๏ธ retweeted
Jun 10
When Hugh was diagnosed with cancer aged just six, his parents Frances and Ceri became carers overnight.
Their experiences inspired Hugh's Law. As Minister for Employment Rights, I've launched a consultation to better support unpaid carers and parents of seriously ill children.
ALT Kate Dearden MP, Minister for Employment Rights, with Frances and Ceri Menai-Davis, Hughโs parents.
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BeChildCancerAware ๐๏ธ retweeted
Jun 10
1of2:
From the document:
โMake Work Pay:
Consultation on employment rights for unpaid carers and parents of seriously ill childrenโ
[Consultation launch: 9 June 2026 โ 09:30am.
Closing Date: 1 September 2026 โ 11.59pm.]
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assets.publishing.service.goโฆ
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BeChildCancerAware ๐๏ธ retweeted
Jun 10
On Monday 15th June, MPs will gather at Westminster for a debate on Brain Cancer Justice.
The debate will be opened and closed by Paul Davies MP, with Sharon Hodgson MP responding on behalf of the Government.
For many, this will be another debate in Parliament.
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BeChildCancerAware ๐๏ธ retweeted
Jun 9
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Template Letter To Your MP
Subject: Please support Brain Cancer Justice @braincancerjustice
Dear [MP Name],
I am writing as your constituent to ask for your support ahead of the forthcoming debate on brain cancer.
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BeChildCancerAware ๐๏ธ retweeted
Jun 9
3of3:
petition.parliament.uk/petitโฆ
Petition Debate on Monday 15th June 2026!!
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BeChildCancerAware ๐๏ธ retweeted
Jun 9
2of3:
whatson.parliament.uk/event/โฆ
Westminster Hall debate:
15 June 2026 at 6:00pm
(e-petition 738881 relating to brain cancer research and treatment.)
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BeChildCancerAware ๐๏ธ retweeted
Should you have to choose between caring for someone you love and keeping your job?
As Minister for Employment Rights, I've launched a consultation on workplace protections for unpaid carers and parents of seriously ill children.
I want to hear from you โฌ๏ธ
ALT Are you an unpaid carer? Weโre consulting on how workplace protections can work better for carers. Have your say!
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