Developing optimal evidence-based strategies to maximize communcation participation and quality of life and minimize burden for persons with PPA.
Joined March 2024
- Tweets 85
- Following 33
- Followers 8
- Likes 80
32 Photos and videos
Pinned Tweet
23 Oct 2025
If you or someone you care about is living with primary progressive aphasia (PPA), you're not alone.
The Communication Bridge program connects families to personalized speech-language treatment, resources, and research opportunities—all from home.
haarc.center.uchicago.edu/co…
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For individuals living with aphasia or communication changes, conversations can sometimes feel frustrating or overwhelming. Simple strategies can help! #AphasiaAwarenessMonth
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Idaho became state #46. Not because I'm chasing medals or finish lines.
Because every mile was an opportunity to start a conversation about biomarker-driven clinical trial research future of earlier detection/treatment. youtube.com/watch?v=TJ5Iv_7T… @haarc_center #running #dementia
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June is Aphasia Awareness Month, a time to raise awareness about communication disorders that affect how people speak, understand language, read, or write.
Learn more about CB3 today: haarc.center.uchicago.edu/co…
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What if losing someone wasn’t about the goodbye, but the silence after the memories?
We’re 70% to our goal. 48 hours left.
Help us decode #dementia, uncover breakthroughs, and protect what makes us human.
Time matters. So do memories.
medilink.us/zx2x @haarc_center
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Congratulations to Ollie Fegter on successfully presenting her PhD thesis last week, titled “Web Application Use to Support Language and Communication Intervention in Primary Progressive Aphasia.” #PPA #primaryprogressiveaphasia
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Communication Bridge 3 is still enrolling for its current clinical trial!
- All sessions take place remotely via Zoom
- No cost to participate—compensation is provided
- Participants will participate in sessions with licensed clinicians
Learn more: haarc.center.uchicago.edu/co…
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We are still enrolling for the current clinical trial! All sessions take place remotely via Zoom. Participants will receive intervention sessions with licensed clinicians and participate in exercises through a custom web application. haarc.center.uchicago.edu/co…
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Communication is how we stay connected — and that connection matters to our quality of life. Our Communication Bridge Clinical Trial is enrolling people living with Primary Progressive Aphasia (PPA) and their communication partners.
Learn more: haarc.center.uchicago.edu/co…
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Communication matters — especially when living with memory changes or dementia.
Our Communication Bridge study is enrolling participants! This research helps us better understand how people with PPA and their care partners can stay engaged. Learn more: haarc.center.uchicago.edu/co…
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Communication Bridge UChicago retweeted
Our partner @run4papa joined @bluebellvillage on their Dementia Collective podcast to share how one grandson’s promise to his “Papa” became a global movement for hope, awareness, and change.
Check it out: youtube.com/watch?v=6l5LAVYj…
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To date, we are over halfway to the 100 participant enrollment goal, with 65 participant dyads enrolled from countries across the globe! Learn more about the trial and if you or a loved one qualifies here: haarc.center.uchicago.edu/co…
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Communication may change with primary progressive aphasia (PPA), but connections can remain strong.
Whether you’re in the early days of shifting conversations or navigating the later stages, small, intentional approaches can help preserve dignity and closeness.
👉 For more tips and community support, join an AFTD support group today: bit.ly/4pzMV01
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8 Dec 2025
The Communication Bridge research study @UChicago is currently enrolling individuals diagnosed with PPA and their care partners. This online trial personalizes support for maintaining communication and connection.
Learn more or see if you’re eligible: haarc.center.uchicago.edu/co…
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🚨 MOTIVATIONAL MONDAY - NEW BLOG POST!🚨
🏃🏻♂️Imagine running through a world painted in gold and green, with the #GrandTetons standing guard in the distance. Every step feels like a brushstroke on nature’s canvas. run4papa.com/jackson-hole-ha… #jacksonhole #halfmarathon @haarc_center
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6 Nov 2025
Caring for someone with aphasia or dementia brings daily challenges, especially when language becomes harder to express or understand.
If you're a caregiver, you're not alone. Your role matters. And we’re here to help. #nationalcaregiversmonth #ppa #aphasia #research
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3 Nov 2025
Check out the most recent publication from members of our Communication Bridge research team!
growkudos.com/publications/1…
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This Message of Hope is for anyone feeling worn down by the challenges of an FTD journey. ❤️
You may not have all the answers today, but simply continuing on is an act of courage. If you need support, AFTD is here.
📩 Email info@theaftd.org or call 1-866-507-7222 to connect with someone who understands.
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Did you know that dementia doesn’t just happen in old age?
FTD often strikes in your 40s, 50s, or 60s — when you’re working, parenting, or even building a career.
🌎 Learn more: bit.ly/4fURgGY
⬇️ Comment below what age your loved one was diagnosed with FTD.
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Communication Bridge UChicago retweeted
Language changes can be an early sign of Primary Progressive Aphasia (PPA), a form of FTD. The HAARC Center is actively enrolling participants in @comm_bridge, a research study focused on improving communication for people living with PPA.
Learn more: haarc.center.uchicago.edu/co…
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