Raising funds & awareness for Usher syndrome research. Secretariat for All Party Parliamentary Group. Registered charity, 1181293.
Joined September 2018
- Tweets 962
- Following 371
- Followers 530
- Likes 1,895
144 Photos and videos
Pinned Tweet
7 Mar 2023
"We endeavour to spread awareness and raise funds for research in finding a cure for #UsherSyndrome " - a heartwarming statement from @lawrencenotrin and @JoepopProds - new Patrons of #NorthEast based charity #CureUsher
cureusher.org ❤️
ALT Laura and Mark are smiling, and there's a green lawn in the background.
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Mar 1
Do you know about Usher syndrome patient information day @Moorfields on Saturday 21st March. Register here eventbrite.com/e/usher-syndr…
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30 Nov 2025
Follow us on twitter, Instagram and our website cureushersyndrome.com for all of our upcoming updates on research and trials for treatment for vision loss connected to User syndrome. @cureusher
#ushersyndrome #retinitispigmentosa
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20 Nov 2025
Listen to-and watch this interview about Usher Syndrome m.youtube.com/watch?v=rcvRKm…
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5 Sep 2025
International day of charity @cureusher
We raise awareness of usher syndrome
A rare genetic condition that is the leading cause of combined hearing and vision loss
We strive to raise awareness and raise funds for a cure for vision loss
❤️🤍
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Cure Usher retweeted
3 Sep 2025
After Saturday's washout, we move onto our final travel of the season as we take on @StamfordhamCC. Always a cold affair in the open fields of Grange Park with jumpers required! This week, we're delighted to raise awareness of the work of @CUREUsher. #UpTheCows
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Cure Usher retweeted
21 Aug 2025
Do you know what Usher syndrome is ?
It is a rare inherited genetic condition.
It’s the leading cause of combined deafness and blindness. Dual sensory loss.
There are currently 3 types of Usher syndrome. Type 1, 2 and 3. Find out more at cureushersyndrome.com
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Cure Usher retweeted
27 Jul 2025
We have a few places left for @CUREUsher if anyone would like to run it and fundraise for us at the same time 🩷
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27 Jul 2025
🏃♀️🏃♀️ CAN YOU HELP 🏃♀️🏃♀️
We have limited spaces available but would love to fill them up 🙏🏼✨
All donations go directly towards research for a treatment for Usher syndrome
#ushersyndrome
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Cure Usher retweeted
19 Jul 2025
So very early Monday morning the Cure Usher Ball’s DJ starts his five day walk across the Trans Pennine Trail . Then he’ll join me to wing walk high above Manchester Sunday 27th July. All to raise funds for @CUREUsher . Can you help ?
justgiving.com/page/michael-…
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Cure Usher retweeted
18 Apr 2025
FUNDRAISING APPEAL: Help Save a Deaf Child's Sight!
#RaceToSeeTheRise
I’ll take on the biggest challenge of my life by trekking #Scafell Pike through the night in total darkness to reach the summit
Together, we can @CUREUsher
Let’s come together
Let’s rise
justgiving.com/page/jo-milne…
ALT ID: a grainy photo of Jo as a child seated at a birthday party, she is wearing a boxy phonic ear (hearing aid). She has shoulder length blonde hair and is wearing a red dress and blue top
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Cure Usher retweeted
16 Mar 2025
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Cure Usher retweeted
12 Mar 2025
What a legend. Georgia is running a MARATHON for @cureusher for her friends beautiful children who have usher syndrome. What a difference she is making and she’s nearly reached her target. I’ve sponsored. Please do if you can. Total respect. We support you every step 🏆
12 Mar 2025
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound.
In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of life."
Georgia is running the @BrightonMarathn for @CUREUsher in support of her best friend Kim's two young children 💜
Donate here: just.ly/4k3LggG
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12 Mar 2025
The amazing Georgia running @BrightonMarathn for @CUREUsher
You’re amazing and we are cheering you on all the way. Please read and sponsor if you can. We are working toward me a cure for Cole and Sadie and so many more 🙏🏼🏆
12 Mar 2025
🗣️ "Cole and Sadie were born profoundly deaf, and both had cochlear implants fitted at a young age to give them access to sound.
In 2021, Cole (7) and Sadie (4) were diagnosed with Ushers Syndrome. This means that they will begin to lose their vision in their first decade of life."
Georgia is running the @BrightonMarathn for @CUREUsher in support of her best friend Kim's two young children 💜
Donate here: just.ly/4k3LggG
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4 Mar 2025
Who would like to support us find a cure for usher syndrome?
We have limited spaces left for the Birmingham half?
Www.cureushersyndrome.com
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Cure Usher retweeted
3 Mar 2025
Pls help me spread word tomorrow (tue) 8pm on ITV I'll be talking you through how to check if you can boost your State Pension by possibly £10,000s. There is an urgent deadline coming after which many lose the opportunity.
This is a must watch for anyone age 40 to 73.
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Cure Usher retweeted
3 Mar 2025
We had great fun today but the cause we’re supporting is a very real challenge for families. Please take a moment to learn more of @CUREUsher and support @jomilne10 and this amazing charity cureushersyndrome.com/
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3 Mar 2025
WORLD • HEARING • DAY
Please share your stories in the comments
#worldhearingday
#ushersyndrome
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3 Mar 2025
Brilliant !!! Thank you so much @LatimerHinks 🏆🩷
3 Mar 2025
What a brilliant “bake off” event this morning raising funds for @CUREUsher a wonderful charity supported by an amazing number of cake, brownie, pie, scone and sausage roll makers! Who knew we had so many talented bakers in the firm. Congrats to Penny for organising #BakeOff
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