Mother to a beautiful daughter who has cystic fibrosis. Nurse. Wife. Live for today.....you never know what tomorrow may bring 💛
Joined April 2010
- Tweets 731
- Following 875
- Followers 551
- Likes 4,029
42 Photos and videos
This is my 13yr old Isabelle. She knows CF is life limiting and she has struggled not just physically but also emotionally this year. Her reaction speaks a thousand words. Thank you 💛 @MattHancock @NHSEngland @VertexPharma @cftrust #LifeSavingDrugs4CF
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@Debenhams your customer service is shocking. Why can I not just speak to a human instead of text? Chair ordered before Xmas, yodel have “lost” it and to contact you. I then had to wait until 10th, now being told I have to wait until 24th before I can even get a refund?
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Can’t believe this was 5 years ago @cftrust. How life has changed. Forever grateful 💛
This is my 13yr old Isabelle. She knows CF is life limiting and she has struggled not just physically but also emotionally this year. Her reaction speaks a thousand words. Thank you 💛 @MattHancock @NHSEngland @VertexPharma @cftrust #LifeSavingDrugs4CF
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Beth Finn retweeted
12 Feb 2024
What a great piece in the paper today and £8,000 raised for @cftrust and @GOSHCharity , what a way to remember Elle and her #elleswishes campaign! Thank you as ever @ChrisMRiches and @Daily_Express
@CFno1LeftBehind
@gemmaleighweir
@eabibb
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Beth Finn retweeted
16 Nov 2023
Urgent calling to our CF community, CF Voices Needs you! I can’t begin to tell u the difference #Kaftrio has made to my life & I want to be sure that future generations with CF r able to benefit in the same way. Pls join @CfVoices now to keep up with developments & announcements
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Unbearable, arrogant and deluded! #embarrassing #cringe
20 Oct 2023
This clip is a brilliant watch on so many levels...please don't like it and retweet it widely as it would be so terribly embarrassing for both of them if was to go viral?
#TamworthByelection
#andrewcooper
#ByElections
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Beth Finn retweeted
15 Aug 2023
TV presenter and former Pop Idol runner-up Mark Rhodes is advocating for all adult #cysticfibrosis patients to have free prescriptions in line with other chronic diseases.
Pleases RT and sign/share this petition widely on all social media:
PETITION ⬇️
petition.parliament.uk/petit…
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Beth Finn retweeted
15 Aug 2023
Pls sign/RT
Free prescriptions for CF adults
In the 1960's #cysticfibrosis was excluded from the exemption list because most did not live to adulthood, now they do but adults with CF in England still pay for their prescriptions
petition.parliament.uk/petit…
@eabibb @EmmaMSmith2
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Please help support my dad…he is starting his fundraising challenge today for @cftrust #BusPass4CF 💛
4 Aug 2023
✨ Fundraiser Friday ✨
Tomorrow, Andy will be starting his unique personal challenge, #BusPass4CF, to raise money and awareness in support of his eldest granddaughter, Isabelle.
You can follow his progress and read more on his Just Giving page ➡ ow.ly/hxha50PpQWm
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Nearly 4 years on from this and Isabelle’s life has improved dramatically. She is 1 of the lucky ones. We are still supporting @cftrust trying to raise funds to continue their amazing work in finding a treatment for all! Please read our story 💛
justgiving.com/page/andy-col…
This is my 13yr old Isabelle. She knows CF is life limiting and she has struggled not just physically but also emotionally this year. Her reaction speaks a thousand words. Thank you 💛 @MattHancock @NHSEngland @VertexPharma @cftrust #LifeSavingDrugs4CF
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Beth Finn retweeted
5 May 2023
The Coronation propaganda at school has been full on, and last night my 6yo asked why I'm not excited about it. I try to be honest with my children so I told her I find it obscene that so much money is being spent on it when people are struggling to eat or have nowhere to live.
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Beth Finn retweeted
3 Apr 2023
Petitions that get shared more often, get more signatures. If you know someone with CF please share this every day this week. Thanks.
petition.parliament.uk/petit…
@cfaware @cf_newcastle @cf_care @CF_Artists @GrayHairCFClub @inthebuffsauce @IanRElliot @ZanzibarSmith @eabibb #cfaware
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So proud of my beautiful friend!! Smashed it 😘 xxx
26 Mar 2023
So proud of this achievement and the team I work with. Amazing night at the HSJ awards.
@VisionRTLtd @UHDBTrust @UHDB_RT
#HSJPartnershipAwards #winners
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We have one very happy Megan @ButternutBox…..she loves her advent calendar 🎄🐶♥️ #DogsDeserveChristmas
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Beth Finn retweeted
17 Nov 2022
“Don’t wait to see cystic fibrosis” - I honestly couldn’t agree more, what a powerful message. Will you now follow through with this message and ensure that #trikafta is made available to ALL children and adults with CF from ALL countries? #VERTEXSAVEUS @VertexPharma
17 Nov 2022
#CysticFibrosis isn’t always visible from the outside, despite it being present and progressive from birth. If you could ‘see inside,’ you would see the impact of #CF more clearly…
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Beth Finn retweeted
16 Nov 2022
Every person with #cysticfibrosis in every country should have access to #Trikafta - a life-saving drug
Please sign & RT petition⬇️🙏
actionnetwork.org/forms/cf-d… @saporedisale14 @DrMeghanMcGarry @christine_noke @CFF_Peoria @CFgetloud @bethdenniss @eabibb @KistikfibrozisA
#cfaware
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Beth Finn retweeted
18 Jun 2022
Pls RT for #CFWeek and if able to pls consider a small donation⬇️
crowdfunder.co.uk/p/cf-drugs…
So that all countries can benefit from modulator therapies #cysticfibrosis
@CFAware @CFAustralia @trikafta4kiwis @87_RobertM @eabibb @BelleRaisers @liammchugh1961 @rrcffighters @cystik101
9 Jun 2022
US company @VertexPharma is charging up to $310k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment.
We're joining forces with @VertexSave & patients across the world to demand global access.
Help us win: crowdfunder.co.uk/cf-drugs-f…
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Welcome to the new BREXIT Secretary! Wow 🤦🏼♀️ #nohope
Beth Finn retweeted
16 Dec 2021
1,000’s of children are asking for 1 thing for a Xmas. The gift of a life unlimited by #CF @MHRAgovuk pls stop dragging yr heels you were supposed to make things quicker! @EMA_News hv approved #Kaftrio u just need to rubber stamp now.
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#Kaftrio has been proven to change lives. Please don’t make our under 12’s wait, especially in times of so much uncertainty. Save our CF children 💛@MHRAgovuk @cftrust
13 Dec 2021
Pls don’t delay our under 12’s need #Kaftrio now we know of many young children who are really struggling and #Omicron could be too much for their little bodies to take. @MHRAgovuk this needs chasing.
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