Ethical Preparedness Project in Genomic Medicine. A Wellcome Trust Collaborative award held by @bsmsmedschool & @UoS_Medicine. Led by @annekeluc & @ethixbird
Joined October 2017
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- Following 117
- Followers 282
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EPPigen retweeted
14 Jan 2020
The duty to warn at‐risk relatives—The experience of genetic counselors and medical geneticists onlinelibrary.wiley.com/doi/…
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EPPigen retweeted
15 Oct 2019
.@annekeluc what a great day’s work. Thank you for constantly doing your bit to ensure we understand the finer points of genomic medicine - so important for professionals, patients and public. @eppigen @wellcometrust
This morning, Prof Lucassen @annekeluc explained the importance of contextual information for correctly interpreting genomic results. Watch the full session here: bit.ly/32hVbHt
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EPPigen retweeted
15 Oct 2019
What a privilege to give evidence at science and tech committee with @mehurles and @Genomethics. The snippet here is also out in a BMJ piece this week with @rach_horton @cels_uos @eppigen @BritSocGenMed #DTC genetic tests
This morning, Prof Lucassen @annekeluc explained the importance of contextual information for correctly interpreting genomic results. Watch the full session here: bit.ly/32hVbHt
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EPPigen retweeted
21 Jul 2019
Great that @guardian covering poor performance of many #DTC tests w rare variants such as in BRCA1/ BRCA2. @BritSocGenMed Ethical implications @eppigen @wellcometrust @Ethixbird Preparedness of publics and professionals to navigate? Home genetic testing: theguardian.com/science/2019…
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EPPigen retweeted
25 Jul 2019
Ministers scrap plan to sell DNA tests to healthy people theguardian.com/society/2019…
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EPPigen retweeted
1 Aug 2019
Listen to the excellent @carolinefwright explaining reasons behind recent media headlines about #DTC genetic tests. bbc.co.uk/programmes/m00070k… : Call for crackdown on home genetic testing kits theguardian.com/science/2019…
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EPPigen retweeted
1 Aug 2019
UK Biobank is joining the Health Data Research Alliance - sharing health data in a trustworthy and ethical way for research and innovation is key to improving future health #research #health #bigdata
1 Aug 2019
8 leading #health organisations, research institutes and #charities, including 3 of the UK’s largest NHS trusts are to join the UK Health Data Research Alliance to accelerate progress in medicine & health. bit.ly/2YzXrek #healthdata #datascience #NHS
ALT @NHSBartsHealth @uhbtrust @nottmhospitals @cftrust @BrainTumourOrg @UK_Biobank @NIHRBioResource @HQIP
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EPPigen retweeted
2 Aug 2019
This reflects our clinical experience that individuals who sent their raw data from #DTC genetic test for secondary analysis had false positive results for rare variants such as BRCA1/2 and Lynch. @BritSocGenMed @eppigen 1/3
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EPPigen retweeted
6 Aug 2019
Woman conceived after rape of 13-year-old wants birth father prosecuted theguardian.com/law/2019/aug…
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EPPigen retweeted
10 Aug 2019
New bowel cancer test leads to screening rate rise bbc.com/news/uk-scotland-492…
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A few places still left come and join us for this event. #ethicalquandaries
27 May 2019
The @BSAMedsoc’s 'Ethical quandaries: blurred boundaries and transformations in genomic medicine' symposium takes place at BSMS on 11 June.
All staff, colleagues and friends are invited to join us. Book your place here: bit.ly/2TVng20 @eppigen
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Great to spend the day together - @wellcometrust @eppigen really is proving to be a great collaboration between @BSMSMedSchool and @SouthamptonUni. Thank you to our wonderful colleagues in @cels_uos for hosting and to @MirjamPlantinga for joining us.
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EPPigen retweeted
18 Feb 2019
Paid-for NHS genomic testing could undermine the 100,000 Genomes Project's work - BioNews from @Ethixbird bionews.org.uk/page_141493
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EPPigen retweeted
13 Sep 2018
Delighted to announce the publication of my position piece on surrogate labour in India. Thanks to all my collaborators. This is open access so please retweet! Surrogate Labour: Exceptional for whom?: Economy and Society: Vol 47, No 2 tandfonline.com/doi/abs/10.1…
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Fantastic #EPPiGEN collaborators’ meeting at medical society London. We are so grateful for your input and expertise @Ajf3Angela @WrightKatharine @imvanlangen @marianverkerk @balemj @Prof_JonMont @ParryBronwyn and others!
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We are advertising 2 posts for @wellcometrust @EPPigen project. Research Fellow in Ethics/ Social science Southampton BSMS. To collaborate play a key role in work on ethical preparedness in Genomic medicine. Please share jobs.soton.ac.uk/1003718CM and bit.ly/2FCaLRQ
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EPPigen retweeted
3 May 2018
We are looking to appoint senior RF ethics/ social science @wellcometrust @EPPigen collaborative award project. One in each location- Southampton and Brighton. To play a key role in our work on ethical preparedness in Genomic medicine. Please share: jobs.soton.ac.uk/1003718CM
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EPPigen retweeted
5 Mar 2018
Just out in @JME_BMJ - our paper with @Ethixbird @Sandi_Dheensa @annekeluc on "Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the #genomes100k" #100kGP #genome jme.bmj.com/content/early/20…
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EPPigen retweeted
26 Feb 2018
Post lunch session #gecip @Ethixbird outlines our WT CA on @ethical preparedness @eppigen #eppigen beautifully
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