Advocacy and expertise for over 1 million people living with #MultipleSclerosis, NMOSD and MOGAD in Europe.

Joined June 2012
2,804 Photos and videos
Welcome to the team, Delphine Sartiaux โ€” our new Fundraising & Development Manager! Delphine brings rich experience in fundraising, strategic partnerships & international stakeholder engagement across global health NGOs. Delighted to have her on board ๐Ÿ‘‹
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On #WorldMSDay, our President Jan Van Amstel shares why today must be a day of purpose. In MS, time lost too often means function lost. Diagnosis is only the start; timely access must follow.โ–ถ๏ธ Watch below ๐Ÿงก @MSIntFederation @Lili_Bxl @annarevillab @eumsyouth
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Progress on a new MS therapy โ€” shaped by the people it's for. At IMMUTOL's 3rd Annual Meeting in Siena ๐Ÿ‡ฎ๐Ÿ‡น, EMSP brought expert patients Rebecca Maguire & @annarevillab into the room as the consortium advanced its vitamin D3 dendritic cell therapy for MS. #Immutol
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Two days. 120 participants. One shared conversation. #EMSP2026 brought patients and experts to the same table-sharing research, naming gaps, shaping policy. Thanks to @Roche and @sanofi for helping bring it to life and to everyone who showed up. See you in Portugal.โ˜€๏ธ #EMSP2027
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๐Ÿ“ RiMS 2026 | 11โ€“13 June | Prague The leading European gathering on MS rehabilitation โ€” from neuroplasticity to real-world outcomes that matter most for people with MS. Highlight: "Coping with MS" panel, chaired by EMSP CEO @Lili_Bxl . ๐Ÿ”— rehabinms.org/meetings-detaiโ€ฆ #RiMS2026
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516 patients per nurse. That's the average caseload uncovered by our survey of 108 MS nurses across 15 countries. Clinical trials, psychological support and benefits advice routinely left undone Systemic change is overdue #InternationalNursesDay Learm more bit.ly/4fghEwG
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1.2M people live with MS in Europe and access to treatment still depends on where you live. This May, our members @DMSG_BV ๐Ÿ‡ฉ๐Ÿ‡ช & @MSIRELAND ๐Ÿ‡ฎ๐Ÿ‡ช are taking on #TheMay50K, led by @MSIntFederation Every kilometre moves research and equity forward. Register- bit.ly/4tYB8ul
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1/ Final day of European Public Health Week ๐Ÿ‡ช๐Ÿ‡บ โ€” today's theme: the healthcare workforce. Specialised MS nurses are the backbone of modern MS care. Without them, no therapy reaches its full potential. ๐Ÿงต
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5/ Investing in MS nurses = investing in the lives of people with MS. ๐Ÿ“„ Full survey & recommendations: #EUPHW #HealthcareWorkforce @EUBrainFdn @EU_Commission @EUPHActs @Lili_Bxl
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1/ It's European Public Health Week ๐Ÿ‡ช๐Ÿ‡บ โ€” today's theme: disinformation. For people living with MS, NMOSD, and MOGAD, sorting fact from fiction online is a daily challenge. Misinformation isn't just confusing โ€” it can be harmful. ๐Ÿงต #EUPHW
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3/ Curated by EMSP and our partners. Evidence-based. Updated regularly as our projects progress.
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4/ ๐Ÿ‘‰ Explore the Learning Corner: emsp.org/learning-corner/
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European MS Platform retweeted
๐Ÿ” ๐–๐ก๐š๐ญ ๐œ๐ก๐š๐ฅ๐ฅ๐ž๐ง๐ ๐ž๐ฌ ๐ซ๐ž๐ฆ๐š๐ข๐ง ๐ข๐ง ๐๐ข๐š๐ ๐ง๐จ๐ฌ๐ข๐ง๐  ๐Œ๐Ž๐†๐€๐ƒ? Our latest Spotlight, ๐˜”๐˜–๐˜Ž๐˜ˆ๐˜‹: ๐˜Œ๐˜ฎ๐˜ฆ๐˜ณ๐˜จ๐˜ช๐˜ฏ๐˜จ ๐˜๐˜ฏ๐˜ด๐˜ช๐˜จ๐˜ฉ๐˜ต๐˜ด ๐˜ข๐˜ฏ๐˜ฅ ๐˜Œ๐˜ท๐˜ฐ๐˜ญ๐˜ท๐˜ช๐˜ฏ๐˜จ ๐˜Š๐˜ฉ๐˜ข๐˜ญ๐˜ญ๐˜ฆ๐˜ฏ๐˜จ๐˜ฆ๐˜ด, explores the latest developments in MOGAD diagnosis, biomarkers, and therapeutic approaches. Read the Spotlight here: ectrims.eu/mogad-emerging-inโ€ฆ "While the criteria are a big step forward, obstacles remain in differentiating MOGAD from MS, which is crucial given the differences in treatment," says Professor Anne-Katrin Prรถbstel of Universitรคtsklinikum Bonn and Universitรคtsspital Basel (USB). "A key unresolved question in MOGAD management is: how long do we treat people for, both after an initial attack and in those who experience relapses?" adds Dr. Wei Yeh of Monash University in Melbourne. The ECTRIMS Spotlight Series is curated and authored by our Scientific Content Writer, Stefania de Vito. #MultipleSclerosis #MOGAD #MSResearch #Neurology #MSSpotlight #Neuroimmunology #ECTRIMS
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