I got my autsim diagnosis from a psychiatrist who then failed to tell me that what was called then Asperger's was related to autsim and that it comes with meltdowns, and what those are. He ended up putting me on medication I didn't need to treat what I thought were depression symptoms and giving me cataracts by 50. My next psychiatrist took me off that and has been working with me not against me even putting me on ADHD medication two weeks ago when I asked for a weak or non-stimulant one to replace the coffee that had worked since they gave me it at age five. No therapist would even consider PTSD for me, until a cousin who is a PTSD educator with CPTSD herself, told me to just seek treatment not a dx. I did and after two sessions of mindful somatic psychotherapy years of anxiety nightmares stopped. My current, post-pandemic therapist also trusts and works with me and the two work well together through me.
Patient goes to multiple psychiatrists. They all confirm BPD as the appropriate diagnosis. Patient agrees. Begins treatment.
Then one day patient’s therapist says “I don’t know why all these doctors are labeling you BPD, you have autism and CPTSD.”
Patient’s psychiatrist says “Don’t listen to the therapist, it’s ridiculous that they’re diagnosing you like this.”
Patient runs to the internet forums, upset and confused, to try and gain clarity. They find none.
And this is the story of patient, after patient, after patient.
How do patients make a judgment call on who is giving them the “right” treatment approach, when they don’t know therapy or psychiatry or labels?
Do they trust the psychiatrist who says not to listen to the therapist? Or the therapist who says not to listen to the doctor? Or the people in forums who tell them all kinds of different things?
How can patients be guided with more clarity, so they aren’t left feeling confused and hopeless of ever finding a path forward?