This week was all about the cystic fibrosis community. We shared stories on how people have managed to balance CF with their day to day lives as well as during the COVID pandemic.
You can catch up on all you missed on our page: ow.ly/Dhnu50Ada2W#CFWeek#BalancingCF
Itβs #CFWeek and Iβm wearing yellow for CF AWARENESS DAY (and to mark the return of @pnefc π). The theme is balance, hence the strange war dance! π#balancingCF
1 in 25 people carry the #cysticfibrosis gene in the UK, yet 87% of people do not know this. We have worked with @YouGov to understand how we can boost public awareness and understanding of cystic fibrosis during #CFWeek. ow.ly/F5s350A7Kwt#BalancingCF
Fantastic to see so many smiles from some of our 350 cystic fibrosis patients - all in yellow for #CFWeek.
Like with so many things, CF Week has been very different this year. But weβre thinking of you all - stay safe!
#CFyelfie | #BalancingCF | @cftrust | @papworthcharity
Share your #CFyelfie & wear yellow today with @cftrust!
Today we are celebrating the cystic fibrosis community who are balancing the day to day & coronavirus! Have a look at their Twitter where they are sharing stories from the community!
#CFWeek#balancingCF
Today is a celebration of the #cysticfibrosis community, how they balance their CF day to day and especially during a worldwide pandemic.
We will be sharing amazing #balancingCF stories and some of the fantastic content we've seen all #CFWeek.
"Balance for me with CF is about remembering that CF is a condition that I have and not who I am. But also remembering that looking after that condition allows me to be who I want to be" Ed finds motivation in the CF community, where do you find yours? #BalancingCF#CFWeek
Over the past few days we have heard the ups and downs of #balancingCF.
Today, 23-year old Demi from Worcestershire shares how she went from growing up hiding her invisible illness to embracing it whole-heartedly: ow.ly/3nSr50Acdra
Today is a celebration of the #cysticfibrosis community, how they balance their CF day to day and especially during a worldwide pandemic.
We will be sharing amazing #balancingCF stories and some of the fantastic content we've seen all #CFWeek.
Nubi chatted to us about how she finds #balancingcf for her can sometimes mean slowing down, and taking away the CF elements of her life for a bit of relief.
Do you feel similar to this? Let us know #CFWeek#BalancingCF
Heβs defied dragons and all the odds to launch a world-famous luggage brand, and now as Rob Law, @trunkidaddy, unveils his new autobiography, he chats to us about some of the lessons he's learned from a life balancing #cysticfibrosis: ow.ly/adSW50Ab1zT#CFWeek#BalancingCF
Having a pharmacist in the team means you can ask any questions about your medications. If you are worried about taking medications, struggling to get any of your medications or just want someone to explain what each medication is for, donβt be afraid to ask. #BalancingCF 2/2
Hello from Joanna ππ» our Pharamcist. She understands that balancing taking all your medications can be difficult. #BalancingCF#cfweek#cysticfibrosis#MDT 1/2
Itβs not a party without a dance and itβs not a Big Yellow Party without a Tom Oakley routine.
Get learning for this Fridayβs #BYP as weβll all be booging all together at 6pm! #CFWeek#BalancingCF