The first time Dr. Pippi Salle re implanted the ureters during #bladderexstrophy CPRE he jokes, “I did the surgery in a diaper.” But to innovate you need to know what is missing and have the courage to take risks. #aua26

🟡La Fundació Puigvert, Centre d’Excel·lència Mundial d’#ExtròfiaVesical, ha estat present al 18è Workshop Internacional celebrat a Ahmedabad, Índia, compartint experiència clínica orientada a la millora dels tractaments de pacients amb aquesta malaltia congènita. La Dra. @BujonsTur, cap de la Unitat d’Urologia Pediàtrica, i el Dr. @juanosorioiriar hi han aportat coneixement i visió clínica. 🔵Fundació Puigvert, a World Center of Excellence for #BladderExstrophy, took part in the 18th International Bladder Exstrophy Workshop, in India, sharing clinical experience aimed at improving treatment outcomes for these patients. Dr. @BujonsTur, Head of the Pediatric Urology Unit, and Dr. @juanosorioiriar contributed their expertise and clinical insight. 🙌🏽Our thanks to the @civilhospamd in Ahmedabad, Dr. Rajesh Joshi and Dr. @aseemrshukla. As the Association for the @bladderexstroph Community President Pamela Artigas reminded us, keeping families at the center is key to moving forward. #UroPuigvert #UrologiaPediàtrica #ABEC

બ્લેડર એક્સ્ટ્રોફીની સમસ્યા ધરાવતા બાળકો માટે તૈયાર કરાયું રિયૂઝેબલ ‘BE-Dry’ ડાયપર; જે આ બાળકો માટે માત્ર એક વસ્ત્ર નહીં પરંતુ, આત્મસન્માનની રક્ષાનું કવચ છે... 'ડાયપર નહીં, ડિગ્નિટી’; પેશાબ લીક થવાની સમસ્યા ધરાવતા બાળકો માટે અમદાવાદ સિવિલ હોસ્પિટલ, સુરતના મોદી પરિવાર અને વૈશ્વિક સંસ્થાઓનું સંવેદનશીલ અભિયાન... આ પહેલથી હવે કોઈપણ બાળક માત્ર પેશાબ લીક થવાની શરમથી સમાજ કે શાળાથી દૂર નહીં રહે. તેમજ બ્લેડર એક્સ્ટ્રોફી ધરાવતા બાળકોના આત્મસન્માન, શિક્ષણ અને સ્વતંત્ર ભવિષ્ય માટેનો એક મહત્ત્વપૂર્ણ બદલાવ સાબિત થશે : ડૉ. રાકેશ જોષી, વડા, પીડિયાટ્રિક સર્જરી વિભાગ, સિવિલ હોસ્પિટલ, અમદાવાદ #bladderexstrophy #AhmedabadCivilHospital #bedrydiaper #healthcare

Watch as Prof. Imran Mushtaq from #GOSHInternational reflects on his heartwarming journey with the bright little star, Emery, following her successful bladder exstrophy surgery. ✨ Season's greetings to Emery and her family! 📷 #GOSH #BladderExstrophy #MerryChristmas

Grazie mille Lions Club for your invitation to talk about #disabilities in #pediatricurology Some handicaps are not visible but need to be more included into the society ⁦@FRAparalympique⁩ #APEX #bladderexstrophy #bettercare #MARVU ⁦@NeuroSphinx⁩

Amazing few days in Regensburg/ kuno/Barmherzige Brüder w. the master, prof Wolfgang Rösch. The best of times! #espu #bladderexstrophy #epispadias

Children's Hospital Los Angeles is the only hospital in California to be designated as a Center of Excellence for #BladderExstrophy care by @bladderexstroph. Evalynn Vasquez, MD, MBA, shares the team’s approach to these patients. bit.ly/47GjLm5

Birthday celebration after #bladderexstrophy closure at @civilhospamd! We sang “Happy Birthday” and the family treated us to cookies and chocolates to celebrate.

Pam @bladderexstroph brought supplies, so I showed families how American children make friendship bracelets🌈. They taught me how to make bracelets with a single string! Always learning something at the US India #bladderexstrophy workshop.

How international collaboration between Pediatric Surgeons can do wonders? U.S-India #BladderExstrophy Collaborative @civilhospamd for 16 years. @aseemrshukla @joshirakesh2016 @Pramod_Puli @MerguerianP . @drvikeshagrawal attended 16th Meeting as Secretary IAPS. #touchinglives

As an organization nerd, loved seeing the system in Excel used by Dr. Jaishri Ramji @civilhospamd to coordinate care and follow up for 200 #bladderexstrophy patients. Workshops and conferences like this can only happen with strong work behind the scenes.

Great first surgical day at the US/India #bladderexstrophy workshop — followed by great dinner! @aseemrshukla and @Pramod_Puli always make sure we’re not just learning about surgery, we’re also learning about India 🇮🇳

@ChildrensLA is the only hospital in California to be designated as a Center of Excellence for #BladderExstrophy care by @bladderexstroph. Evalynn Vasquez, MD, MBA, shares the team’s approach to these patients. bit.ly/47GjLm5

Un résumé de la journée rencontres Apex : ⤵️💚 m.facebook.com/Accompagnemen… #marvu #bladderexstrophy #maladierare #handicapinvisible @HopRobertDebre @NeuroSphinx

#bladderexstrophy #maladiesrares #marvu @HopRobertDebre @SFUPA1 @NeuroSphinx

Peds team including @dr_chad11 @DrG_PedsUro share analysis of bladder exstrophy database, reviewing outcomes of #bladderexstrophy closure w/out use of osteotomy or lower extremity/pelvic immobilization. #MAAUA23

🎉Happy Birthday A-BE-C! 🎁 🎂 🎈 Thank you to everyone who has supported us over the last 31 years so we may continue to reach ALL individuals affected by bladder exstrophy. bladderexstrophy.com/our-sto… #happybirthday #executivedirector #ABEC #bladderexstrophy #BExtraordinary #BE

#SoMe4PedSurg #bladderexstrophy

Our first #BladderExstrophy coffee morning was a success, providing families an opportunity to talk about shared experiences and network. Now to plan the next one! 🙌 #care #teamwork #networking