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Alan Smyth@AlanRSmyth
4 Aug 2025
Excited to offer participation in GRAMPUS-CF to patients with cystic fibrosis worldwide. Just click on the link to join the study! grampus-cf.org @cftrust @CF_Foundation @alloonsl @CFAware
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Strawfie Challenge@strawfie
11 May 2025
Hi, Vulnerable patients across the UK need help with this petition that is closing at midnight Pls SIGN and SHARE🙏petition.parliament.uk/petit… FOR #CleanAirInHealthcare to reduce risk of airborne infections to immunosuppressed @CFAware @CFcarer @bigbaddoctor @cf_care @BenOxlade1

Petition: Introduce new air quality and PPE rules for health and social care settings

We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration...

petition.parliament.uk
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Bea@BeaHappyCF
3 Apr 2025
Aw I got a lovely birthday card from my ward! 🥰 (J6/Leeds) A big THANK YOU to everyone - that’s so sweet of you all!! 🥰 - and thank you for everything you do 🤗 x @CFLeeds @CFAware @cftrust
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Alan Smyth@AlanRSmyth
4 Dec 2024
Thanks again to the Cystic Fibrosis Trust for the outstanding clinical researcher award. The trophy has arrived safely in the post! qub.ac.uk/News/Allnews/2024/… @IPFdoc @NickHartGSTT @nigelhart @DrNeilK @CF_Foundation @cftrust @cochranecfgd @CFAware @questionCF @QUBelfast

Queen’s Professor ‘Outstanding Clinical Researcher’ winner at Cystic Fibrosis Trust Awards

Professor Alan Smyth from Queen’s University has been awarded ‘Outstanding Clinical Researcher’ at the Cystic Fibrosis Trust 60th Anniversary Awards

qub.ac.uk
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Cystic Fibrosis Trust@cftrust
10 Jul 2024
Join our online Baking workshop led by Cicely and bake delicious Vanilla Sponge Cupcakes with funky colours and patterns! When: Tuesday 23 July from 4.30-6pm To sign up, please email ellie.mindel@cysticfibrosis.org.uk #cysticfibrosis #bakealong #zoom #cfyouth #cfaware
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Joanne Barrett@JoMBarrett
28 Jun 2024
UK Adult CF Docs and Psychologists ✅1-2-1 online interview about #CF weight management ✅flexible time ✅will inform a CF intervention @C_F_Doc @cftrust @CFaware @bda_cf @sophie_doph @BSPHNetwork @annamcculloch5 heartlandscf.org/research

ALT Cat Cat Meme GIF

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UHB CF Dietitians@CF_dietitians
11 Jun 2024
🌟Exciting opportunity for any Psychologist interested in working in Cystic Fibrosis has just opened up at our centre! nhsrecruit.tal.net/vx/appcen… @CFTrust @CFAware @bda_cf

ALT Eduwis Preschool GIF
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Alan Smyth@AlanRSmyth
8 Jun 2024
Marco Zampoli gives the highlight talk of #ECFS2024 on global inequalities in access to essential drugs for cystic fibrosis. ⁦@cftrust⁩ ⁦@CF_Foundation⁩ ⁦@CFAware⁩
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Strawfie Challenge@strawfie
1 Jun 2024
We've been skipping for (at least) 11 minutes every day this week - three more weeks to go DONATE🔽 cysticfibrosistrust.enthuse.… To raise awareness about #cysticfibrosis AND funds for the @cftrust - who provide support for CF community and research into new treatments. @CFAware
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Strawfie Challenge@strawfie
28 May 2024
Skipping in the rain this evening #Skip4CF 11 minutes skipping every day for a month - 11,000 people have #cysticfibrosis in the UK Please donate in aid of @cftrust cysticfibrosistrust.enthuse.… #cfawareness @CFAware
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s@stuartbparish
26 May 2024
I’ve been doing some running! Go me. @CFAware @cftrust
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Chris van der Gast@ChrisvanderGast
16 May 2024
Our 3 GIFT-CF microbiome studies are all now published Gut Imaging for Function & Transit in #CF A main take🏠: #kaftrio/#trikafta has more profound effects on CF gut #microbiome than other #CFTRmodulators Main findings below... 🧵1/ ⤵️ @cftrust @CFNewsToday @CFAware
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Strawfie Challenge@strawfie
16 May 2024
Sophie Grace Holmes (@SGHOLMES_ ) has #cysticfibrosis and is running '36 marathons in 36 days' In aid of @cftrust DONATE🔽 2024tcslondonmarathon.enthus… #CFAwarenesssMonth #cftrust #cfaware #running

Sophie Grace's page

The WHY behind the Challenge I was born with Cystic Fibrosis, a life-threatening lung disease, and was initially given a poor prognosis, not expected to make it past 16, let alone reach 30. At 19, fac

2024tcslondonmarathon.enthuse.com
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Alan Smyth@AlanRSmyth
14 May 2024
Great paper from Ryan Marsh published today shows that CF patients receiving triple CFTR modulator (ETI) have more diverse microbiome! Gut microbiome is going in the right direction but not there yet! sciencedirect.com/science/ar… @CFAware @CF_Foundation @cftrust
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Strawfie Challenge@strawfie
23 Apr 2024
▶️Three weeks until petition closes ▶️No recent updates ▶️Sign/share for the next generation of #cysticfibrosis patients #NoOneLeftBehind petition.parliament.uk/petit… @cfaware @VarnalsVintage @RacheyCole @liammchugh1961 @InfamousGreggyG @myCFHero @CFcarer @evergreennebs

Petition: Fund continued access to modulators drugs for Cystic Fibrosis patients

Please help cystic fibrosis patients have continual access to life-changing modulator medication, after the news on the 3rd November from NICE that it believes these clinically proven medications are...

petition.parliament.uk
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Strawfie Challenge@strawfie
21 Apr 2024
Michael Evans has a son with #cysticfibrosis "I will be so proud to run the marathon for my boy and the CF trust/community so any help will be appreciated." DONATE 2024tcslondonmarathon.enthus… @Michaelevo #londonmarathon2024 @cftrust @CFAware #Running
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Alan Smyth@AlanRSmyth
19 Apr 2024
Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @Paula_Sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. @CFAware @questionCF @cftrust @CF_Foundation
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abi halstead@abihalstead
3 Apr 2024
Is anyone managing to get hold of creon 25,000? It’s been 6 weeks since my pharmacy last got any and the 10k replacement is grating. Pic is amount of 10,000 for a feed 🤦‍♀️😰 @CFAware @bda_cf
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Strawfie Challenge@strawfie
23 Mar 2024
The legend that is @liammchugh1961 is going again in the #londonmarathon2024 in aid of @cftrust Sponsor here: justgiving.com/page/liam-mc-… 💛💛💛💛 #cysticfibrosis #cfawareness #cfaware #running

Liam's London Marathon 2024 Fundraiser for Cystic Fibrosis Trust

Help Liam Mc Hugh raise money to support Cystic Fibrosis Trust

justgiving.com
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Strawfie Challenge@strawfie
21 Mar 2024
Rose (video below) from US is talking about #cysticfibrosis modulator therapies - The same drugs that @NHSEngland are struggling to find cost effective for future CF generations in the UK. Please sign & share this PETITION⬇️ petition.parliament.uk/petit… #trikafta #kaftrio @CFAware

Petition: Fund continued access to modulators drugs for Cystic Fibrosis patients

Please help cystic fibrosis patients have continual access to life-changing modulator medication, after the news on the 3rd November from NICE that it believes these clinically proven medications are...

petition.parliament.uk
Patients For Affordable Drugs NOW
@P4ADNOW
11 Mar 2024
Rose Keller, a 22 year old P4ADNOW patient advocate living with cystic fibrosis, shared her experience with high prescription drug prices as she introduced President Biden today in New Hampshire.
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