2017 we found the 10 most important questions you thought should be answered by clinical trials in CF. We’re looking again.
Joined March 2016
- Tweets 906
- Following 1,566
- Followers 1,494
- Likes 142
81 Photos and videos
Pinned Tweet
20 Jan 2022
If you’d like to know more about this project brought to you by researchers from @ebChildHealth at Nottingham Uni, People with CF, Parents of people with CF and members of MDT’s across the country please visit our website questioncf.org
4
3
Question CF retweeted
4 Aug 2025
Excited to offer participation in GRAMPUS-CF to patients with cystic fibrosis worldwide. Just click on the link to join the study! grampus-cf.org @cftrust @CF_Foundation @alloonsl @CFAware
2
4
342
Question CF retweeted
15 Jul 2024
UK #CysticFibrosis community! Tell us about your thoughts on inhaled meds & interacting with your care providers post-Kaftrio in this anonymous 5-10 min research survey. Your voice matters! Please share! [shef.qualtrics.com/jfe/form/…] #CF
1
8
10
1,892
Question CF retweeted
9 Jul 2024
We are delighted to announce that we only have 20 participants left to recruit! ✨Can you help us reach our goal by the end of July so we can finally answer this important research question? @cfstormstudy
@cfstrust @livuni_LCTC @DaviesGwyneth #cysticfibrosis
3
8
259
Question CF retweeted
19 Apr 2024
Great to see the James Lind Alliance refresh for Cystic Fibrosis getting a shout out from @Paula_Sommer at #CFGI24. Research priorities for CF jointly agreed by people with CF and clinicians. @CFAware @questionCF @cftrust @CF_Foundation
8
21
1,335
Question CF retweeted
16 Feb 2024
Calling parents, children and young people who have been seen in a hospital emergency department. The James Lind group for children's emergency medicine want to know your research priorities. Take the survey! @questionCF @RCPCHPresident redcap.liverpool.ac.uk/surve…
8
8
1,015
Question CF retweeted
30 Nov 2023
Thanks to Belinda Cupid for a great article on the use of apps in cystic fibrosis care including CF Tummy Tracker! cysticfibrosis.org.uk/news/u…
cftummytracker.org
@questionCF
1
3
5
607
Question CF retweeted
3 Nov 2023
Great plenary talk from Luke Hoffman at #NACFC2023 emphasising the importance of better antibiotic therapy to patients with cystic fibrosis. @cftrust @CF_Foundation @questionCF @CFAware
3
13
1,107
Question CF retweeted
3 Oct 2023
Brilliant day facilitating the @cftrust research conference. So many talented researchers working in true partnership with the CF community. Also great to see how the @LindAlliance @questionCF refreshed priorities are shaping the research agenda #ukcfc
1
1
9
442
Question CF retweeted
11 Oct 2023
Start tracking your tummy symptoms now to help the #CF community with gastrointestinal issues! Only 15 spots left, so go to Cftummytracker.org to register on our app @CFAware @questionCF
Thank you to all participants and @cftrust @CFAustralia @CF_Foundation
6
4
962
Question CF retweeted
1 Oct 2023
@questionCF
I'd love to see more research into the mental health issues in families of children with cf.
How can we help parents and siblings?
Because as a daddy of a CFer, it's freaking hard!
1
1
65
Question CF retweeted
18 Aug 2023
Said "au revoir" to Nottingham colleagues this week after 27 years in the city. Thanks to the best research group in the world for the kind gifts (including crocheted lungs) and the aeroplane cake! @ebChildHealth @CFAware @questionCF @ThoraxBMJ
6
3
48
4,298
Question CF retweeted
3 Aug 2023
1. Addressing tummy symptoms that matter to YOU!
Cystic fibrosis (CF) is not just about the lungs! Tummy symptoms are increasingly recognised as having a big impact on people with CF.
tandfonline.com/doi/full/10.…
@questionCf @CFAware
1
7
9
973
Question CF retweeted
18 Jul 2023
Hi everyone, recruitment is still open.
If you are an adult with CF and cannot benefit from Kaftrio/Trikafta due to genetic factors, please consider participating.
For further information, please contact me via email (mwelwam@cardiff.ac.uk) or DM.
@DrCatherine_OL
@cftrust
2
10
4
4,713
Question CF retweeted
30 Jun 2023
A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! @CFAware @questionCF @ebChildHealth @cftrust @CF_Foundation cysticfibrosis.org.uk/news/t…
5
15
1,198
Question CF retweeted
26 Jun 2023
Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.…
@ebChildHealth @questionCF @CFAware
4
9
20
4,194
Question CF retweeted
9 Jun 2023
Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! @questionCF @cfaware @ebChildHealth
3
11
959
Question CF retweeted
9 Jun 2023
Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. @ebChildHealth @CFAware @questionCF
2
10
703
Question CF retweeted
8 Jun 2023
Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 @questionCF @cftrust @ebChildHealth @CFAware
4
7
988
Question CF retweeted
8 Jun 2023
Just in case anyone missed the link 😉 A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early…
3
1
490
Question CF retweeted
8 Jun 2023
Thanks @AlanRSmyth for presenting the @questionCF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.
1
5
23
982