31 Oct 2025
This #EBAwarenessWeek, #INmuneBio honors those living with RDEB, a rare condition causing fragile skin and chronic wounds.
We thank @debraOfAmerica & @EBResearch for their advocacy and support. Together, we’re advancing better treatments and brighter futures.
#EBweek #WeFightEB
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231
25 Oct 2025
We stand with the epidermolysis bullosa (EB) community in recognizing and raising awareness for #EBAwarenessWeek.
Join us in supporting the cause and help us bring visibility to this rare and painful genetic disorder.
#EBWeek #WeFightEB
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1
478
31 Oct 2024
Throughout the year and especially during #EBAwarenessWeek, Krystal Biotech recognizes and supports all those impacted by #EB.
#EBWeek #EpidermolysisBullosa
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167
31 Oct 2023
Throughout the year and especially during #EBAwarenessWeek, #KrystalBio and our leadership team recognizes and supports all those impacted by #DEB.
Read more about this #RareDisease: krys.bio/j3o
#LivingWithDEB. #EBWeek #EBAwarenessWeek #DEB
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31 Oct 2023
🅰️: At any age. EB can be diagnosed prenatally with genetic testing. Many infants are diagnosed shortly after birth & have been many who were diagnosed much later in life.
This #EBweek, debra is tackling Google's TOP SEARCHED EB questions➡️ debra.pulse.ly/3l3wbh1jut
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121
31 Oct 2023
"その先へ"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
本日は啓発週間最終日です🦋
まだ道の途中。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
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23
2,534
30 Oct 2023
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
1
17
3,082
30 Oct 2023
We're rounding out #EBAwarenessWeek with an Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, presented by Jean Tang, MD, PhD.
Listen now ➡️ player.captivate.fm/episode/…
#PeDRA #pedraresearch #EBWeek #EpidermolysisBullosa
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2
502
29 Oct 2023
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
1
9
8,799
28 Oct 2023
@KrystalBiotech is honored to celebrate the strength and determination of the #DEB community during #EBAwarenessWeek.
Learn more about #LivingWithDEB and the incredible patients and their families to whom we are dedicated: krys.bio/j3o.
#LivingWithDEB #EBWeek
2
204
28 Oct 2023
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
2
12
15,119
27 Oct 2023
"36"
10月25日〜31日は国際的な #表皮水疱症 啓発週間です🦋
36は表皮水疱症の指定難病の番号。
難病とは、発病の原因が明確でないために治療方法が確立しておらず、長期の療養を必要とする疾患です。
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
9
9,817
26 Oct 2023
"36"
10月25日〜31日の一週間は国際的な #表皮水疱症 啓発週間です🦋
拡散のご協力よろしくお願いします🦋
model : @igumoc
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
3
15
12,349
25 Oct 2023
Approximately 200 children are born with #EpidermolysisBullosa every year in the United States. Join me for #EBAwarenessWeek (Oct 25-31) as I spread awareness of this debilitating rare connective tissue disorder. Learn more and take action at debra.org/ebweek #EBweek
1
5
25 Oct 2023
10月25日〜31日の一週間は国際的な #表皮水疱症 啓発週間です🦋
今日からこむぎさんの写真を投稿していきます📸
表皮水疱症について広く知っていただきたいので、拡散のご協力よろしくお願いします🦋
#EBAwarenessWeek
#EBAwarenessDay
#EBWeek
#WeFightEB
#EpidermolysisBullosa
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32
14,930
25 Oct 2023
It’s #EBAwarenessWeek! join me in spreading awareness of #EpidermolysisBullosa, a rare connective tissue disorder that causes extremely fragile skin that blisters and tears with any friction. Learn more about EB and take action at debra.org/ebweek #EBweek #WeFightEB
3
77
7 Oct 2023
#EpidermolysisBullosa Awareness Week is just around the corner on October 25-31! 🦋
#EBweek is a special time to raise public awareness, promote the need for a cure, and spur advocacy on behalf of the thousands living with EB.
➡️ Get involved at debra.pulse.ly/546737hs4l
1
5
172
9 Nov 2022
For #EBweek (10/25-31), students at Stemley Road Elementary School in AL learned all about #EpidermolysisBullosa, crafted colorful posters, and came together to walk in honor of their fellow student, Adriana, who lives with EB. We LOVE to see these amazing awareness efforts! 🦋✊
2
5
4 Nov 2022
While #EBAwarenessWeek may be over for 2022, each patient's story is a year-long journey. Learn more and see patient stories here: bit.ly/3svogO8. #DEB #raredisease #EBWeek
1
3
31 Oct 2022
EB is a painful, #rare condition that profoundly impacts patients, families, & caregivers. As #EBWeek ends, we’d like to express our support for all those living w/ #EB & stress the importance of raising awareness of this #raredisease. #LivingWithDEB #EBWeek #dystrophicEB
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