✨ @WestHertsNHS is joining the groundbreaking Generation Study from @GenomicsEngland and @NHSEngland , helping identify rare genetic conditions in newborns earlier than ever. 👶🧬
• Earlier answers for families — and healthier starts for future generations.
🔗 Read more: nationalhealthexecutive.com/…
#Genomics #NHS #NewbornScreening #HealthInnovation #GenerationStudy #WestHerts
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11 Nov 2025
The wonderful benefits of research 💙 WHRC is proud to be recruiting to the #GenerationStudy here at @imperialcollege @ImperialNHS
29 Oct 2025
Shortly after being born, Freddie was diagnosed with hereditary retinoblastoma, caused by a change in his RB1 gene. He is one of numerous children who has benefitted from being part of the Generation Study.
Read Freddie's story: ow.ly/8Wau50XjfiX
ALT Blue and pink template with a photo of Freddie and the text 'Participant Stories. Freddie’s story: Retinoblastoma'.
ALT Blue and pink template with a quote from Freddie's father Joey “Our decision to join the Generation Study has changed Freddie’s life phenomenally. We were told that the first 6 months is vital in diagnosing and treating the condition. There’s no telling at what point it would have been discovered if we hadn’t taken part.”.
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Join the Generation Study!
This important research is helping scientists understand how early life impacts long-term health, from allergies to chronic diseases.
How it works:
⭐ Sign up during pregnancy
⭐ Blood sample taken at birth (umbilical cord or heel prick)
⭐ Get results in a few months
It’s quick, easy, and your participation could help improve children’s health for generations to come.
Sign up now 👉 orlo.uk/5GKUh
#GenerationStudy #pregnancyuk #pregnancyjourney
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10 Jul 2025
Congratulations to the amazing team at @UHDBTrust working on the #GenerationStudy. In just over 6 months they've recruited 1000 families to take part. Babies in the study will be screened for over 200 genetic conditions. @GenomicsEngland
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20 Jun 2025
On #Red4Research day we wear red to celebrate all those that participate in and enable ground-breaking research. ❤️ Here are photos of some of our regional #GenerationStudy 👶 teams celebrating at @CUH_NHS and @NNUH. Find out about the study: eastgenomics.nhs.uk/for-heal…
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25 Apr 2025
This convo was not to be missed.
We dived into the #GenerationStudy and health equity in Black communities.
Watch the session featuring the live Q&A & share!
🧬youtu.be/JYPhFbO3rl4
Tagging: @BLMSouthWest @cahn_uk @ReachSociety @SickleCellUK @NHS @NHSEnglandLDN
#HealthResearch #Genomics #BlackHealthMatters #HealthEquity #DNA #genome #healthequity
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6 Feb 2025
📢 Exciting news! Leeds is 3rd in the UK for Generation Study recruitment! 🎉
Since Dec, 160 families have signed up for free new-born genetic testing. A huge shout-out to our team & participants! 👏
More info: shorturl.at/SrQSo
#Genetics #Healthcare #GenerationStudy
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We are delighted to be taking part in the Generation Study to research the use of genome sequencing to help diagnose and treat rare conditions in newborn babies.
To register your interest in the Generation study go to orlo.uk/RUk5H or email generationstudy@lwh.nhs.uk
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14 Jan 2025
Really pleased to talk to @GenomicsEngland about the #GenerationStudy, in which @UniofExeter is a core partner.
It will trial a process to identity rare genetic conditions at birth for 100,000 babies.
This will be revolutionary & will help us to treat conditions much earlier.
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30 Dec 2024
If you missed our fascinating interview with @AmandaPichini, Clinical Director @GenomicsEngland & Genomic Counsellor who chats about her current role, the #GenerationStudy & genomic counselling - then take the opportunity to to catch up now
Listen in: eu1.hubs.ly/H0fwVt50
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23 Oct 2024
As part of a PET research report the public were asked ‘Would you support or oppose the NHS offering this ‘whole genome test’ to all newborn babies in the UK?’ The result showed 53% supported and only 10% opposing.
progress.org.uk/engagement/r…
#GenerationStudy #Genomics #Genetics
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Amazing to see NHS England's CEO @AmandaPritchard talking about the #GenerationStudy 🧬🧬🧬
A ground breaking newborn whole #genome sequencing study coordinated by the NHS in the UK
@NHSuk @East_Genomics @NHSEngland @GenomicsEngland @genomicsedu
3 Oct 2024
We have begun testing newborns for over 200 rare genetic conditions as part of a world-leading study in NHS hospitals.
If we can diagnose and treat children for rare genetic conditions years earlier and help stop them in their tracks — it will be transformational for patients.
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11 Oct 2024
It was excellent to see NHS England's CEO @AmandaPritchard meeting some of those making the #GenerationStudy happen.
To find out more about this landmark project, check out our #GeNotes resource: genomicseducation.hee.nhs.uk…
3 Oct 2024
We have begun testing newborns for over 200 rare genetic conditions as part of a world-leading study in NHS hospitals.
If we can diagnose and treat children for rare genetic conditions years earlier and help stop them in their tracks — it will be transformational for patients.
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4 Oct 2024
@ImperialNHS delighted to be part of this groundbreaking research study #GenerationStudy #EarlyDetection #EarlyIntervention @TinaPrendeville @cathwilliamson5 @yveymuwalo @MandishDhanjal @obstetricmedic @danithornton123
4 Oct 2024
So please @ImperialNHS @ImperialPeople @susiecath @CathyHughes0803 #maternity are part of this programme @Duncan_CNO @AcosiaNyanin @CSOSue
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We are delighted to be taking part in the #GenerationStudy to research the use of genome sequencing to help diagnose and treat rare conditions in newborn babies.
orlo.uk/qy40M
@GenomicsEngland
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3 Oct 2024
My husband is one of the NHS experts who helped design this 👇🏻
I’m ridiculously proud, what a brilliant beautiful thing!
#Genomics #NHS #Genetics #GenerationStudy
3 Oct 2024
The questions are urgent. They’re also complex
That’s why we’ve taken time to design and roll out the study with experts across the NHS, patients and the public
The evidence we generate will help understand the clinical impact, the costs and public attitudes and expectations
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3 Oct 2024
We are pleased to have so far reviewed patient information leaflets for two rare parathyroid conditions for @GenomicsEngland which will soon be available for HCPs in the #GenerationStudy workspace in #FutureNHS. #newborn #genetic
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3 Oct 2024
We are delighted to be taking part in the #GenerationStudy, screening for more than 200 rare genetic conditions from the moment of birth.
Hear more from Laura, whose baby daughter Cassie was one of the first to take part in the study: orlo.uk/G7YZu
@GenomicsEngland
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3 Oct 2024
Did you see that genomics is in the news today? @NHSEngland and @GenomicsEngland are working together to screen 100,000 newborns across England to check for for 200 genetic conditions. The #GenerationStudy is one of a few exciting pioneering projects: buff.ly/3zq87jU
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7 Aug 2024
Great #patient #advocacy opportunity here (not that I'm biased)! Please share. Applications open now: see link for further details.
#RareDisease #CancerGenomics #GenOMICC #Genomes100k #GenerationStudy
@GenePeopleUK @GeneticAll_UK @Cancer52org @Unique_charity
7 Aug 2024
The Participant Panel at Genomics England is recruiting for a new Chair. Applications close on 30 September.
Apply here: ow.ly/7oPr50ST0Vy
ALT Green and yellow illustration with a group photo of people talking, with the text 'The Participant Panel is recruiting.
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