Mar 18
ALS has taken my strength and my voice but I can still fly down a mountain. I was supposed to die 8 years ago. But I’m still here. And having an awesome time.
#NotTodayALS
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🗓️ It's that time of year again! 🧊 In a couple of weeks, many of our Mitsubishi Electric Automation (Americas) employees will be taking the ice bucket challenge. Donations can be made here 👉 okt.to/JOFX7E
#IceBucketChallenge #DefeatALS #NotTodayALS
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21 Jan 2025
Today marks four years since my #ALS diagnosis. I am weaker but my heart is stronger. I am slower but my chair can do six mph. I am less verbal but I can speak volumes with my eyes. I love my life. #NotTodayALS Not today.
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28 Nov 2024
Happy Thanksgiving Y’all! I am thankful that I am still here and able to spend time with my family! #NotTodayALS
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16 Oct 2024
Yesterday was the first day in a long time I felt somewhat good aftèr #ALS clinic.
Since July:
- I gained 6 pounds.
- My SVC is up 8%.
And we capped it off with a butchers hill from Di Pasquale's Marketplace 🤤
#NotTodayALS #YouDontWin
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30 Aug 2024
LIVING legend.
Love you pal.
Keep fighting.
#NotTodayALS
29 Aug 2024
On this day six years ago, I heard those words that nobody should have to hear… You have ALS!
Well, I am still here thriving in spite of the disease that tries to keep me down.
#NotTodayALS
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29 Aug 2024
On this day six years ago, I heard those words that nobody should have to hear… You have ALS!
Well, I am still here thriving in spite of the disease that tries to keep me down.
#NotTodayALS
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24 Aug 2024
And I'll tell you, I'd get a lot more love if I did the same as that person. But I won't. And I can't. Because I actually care. And I know what it's like to watch this disease crush my loved one, my life, my friends. And because ultimately we need more science. #NotTodayALS
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21 Jul 2024
Good reasons to be silent:
•to protect your peace
•you consciously choose the high road
Bad reasons to be silent:
•you are told you don’t matter
•you are bullied into it
#NotTodayALS
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18 Jul 2024
Workout Wednesday!
These are the moments we pray for every single day!
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv #ALS #ion363 #Jacifusen #ALSawareness #joshua1v9 #ButGod
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26 Jun 2024
AMP ALS
Proud to have had the chance to share my lived experience with this public private partnership created to bring together orgs in the pursuit of better biomarker and drug development for ALS.
#EndALS #NotTodayALS
bio.news/health/amp-als-fnih…
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16 Jun 2024
EYEGAZE (Assistive Technology) Using Google Nest Mini
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen #GoogleNest #ALSawareness #joshua1v9 #ButGod
youtu.be/RK_tWchQ9gY
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6 Jun 2024
@SteveGMedia is an ALS Superhero 🦸♂️. His strength and determination to #ENDALS is inspiring. I can’t think of a better ambassador for ALS awareness month!! #NotTodayALS
4 Jun 2024
For ALS Awareness Month, I am sharing a few videos to give you a glimpse of life with the disease. This one is about how the amazing team @HotelDieuShaver gave me a voice after ALS robbed me of my speech. #EndALS
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29 May 2024
Legs are getting stronger! It’s gonna be a long road to recovery, but we know… #Godsgotthis
Could all ALS possibly be genetic? This Clinical Trial could open so many possibilities!
#EndALS #wheelinforals #nowhiteflags #nottodayals #teamjacobwv #ALS #ion363 #Jacifusen #ButGod
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24 May 2024
Get your tissues handy... I've watched it twice and cried both times. Jacob is such a warrior!
youtu.be/0WHuy4KwuyE
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
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23 May 2024
THE BEST PT TEAM IN THE BUSINESS!
They all wore blue for #ALSAwarenessMonth to honor Jacob today! 💙
We LOVE @teaysptcenter
(and they love us)
#EndALS #wheelinforals #nowhiteflags #nottodayals #Godsgotthis #teamjacobwv
#ALS #ion363 #Jacifusen
#ALSawareness #joshua1v9 #ButGod
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15 May 2024
Fun evening at @PetcoPark with friends & family. Unfortunately we didn’t get the W but memories were made. #NotTodayALS
15 May 2024
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