24 Apr 2023
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28 Feb 2023
Watch -#RareinTimesSquare today on #RareDiseaseDay Thanks to Patricia Weltin of @BeyondtheDx & also to the team @H4BBoston & @havashealth for bringing rare to so many! Thank you to Graham Tierney for painting Dylan's portrait & of course to all the artists for painting these kids
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28 Feb 2023
.@BeyondtheDx presents #RareinTimesSquare! Artists donated their talent to create memorable portraits of children living with a #raredisease. Haleigh and Avee's portrait is raising awareness of #EhlersDanlosSyndrome by artist Robert Whelan! #RareDiseaseDay
28 Feb 2023
We have an amazing, new video of our newest family member and more!! We are incredibly grateful to the team at H4B Boston and Havas Health & You for giving us the best #raredisease Month ever!!! #RareDiseaseDay2023
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28 Feb 2023
π¦ #ShowYourStripes, itβs #RareDiseaseDay! π₯³
#RareInTimesSquare is featuring portraits of kids with #RareDiseases
Can't make it to NYC? Celebrate by listening to one of our 40 #raredisorder episodes of DNA Today!π
π DNAtoday.com π
#reframerare #careforrare
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25 Feb 2023
#RareInTimesSquare
Thrilled to have @beckettthebean portrait by Ian Mohan representing the #SYNGAP1 Community in @timessquarenyc NE Corner of 1500 Broadway & West 43rd Street! A dream come true for the #SYNGAP1 community to be featured for all the world to see #rarediseaseday
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22 Feb 2023
Ford is HUGE and in TIMES SQUARE! #RareDiseaseDay #RareinTimesSquare
22 Feb 2023
The faces of #raredisease children are on the Jumbotron in Times SQUARE from @BeyondtheDx
#RareInTimesSquare #RareDiseasDay #CTNNB1
#rarediseasechat
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22 Feb 2023
The faces of #raredisease children are on the Jumbotron in Times SQUARE from @BeyondtheDx
#RareInTimesSquare #RareDiseasDay #CTNNB1
#rarediseasechat
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22 Feb 2023
Our rare star, Eliza, dazzles at Times Square! Eliza has #Sanfilippo syndrome and was painted by artist Ian Mohon. #rareintimessquare #RareDiseaseDay #RareDiseases #rarediseaseday2023
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21 Feb 2023
This was a special outing! If you are in NYC, help me show support for families affected by #raredisease and share your picture too!
#rareintimessquare
21 Feb 2023
CPN's @ChrissySalley visited Times Square to check out all the beautiful faces sending a powerful message about the #resiliency, #strength, and #beauty of the children with #rarediseases. #RareinTimesSquare #artforgood #raredisseaseday #advancingmedicinethroughart
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21 Feb 2023
CPN's @ChrissySalley visited Times Square to check out all the beautiful faces sending a powerful message about the #resiliency, #strength, and #beauty of the children with #rarediseases. #RareinTimesSquare #artforgood #raredisseaseday #advancingmedicinethroughart
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19 Feb 2023
#RareinTimesSquare So exciting to get to see the awesome billboard featuring these awesome kiddos from @BeyondtheDx !!! Happy Rare Disease Month π
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13 Feb 2023
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11 Feb 2023
#RT @aHUSAllianceAct: RT @BeyondtheDx: Kicking off Rare Disease Month in a BIG way!!! Thanks to @havashealth and @H4BBoston for this dream come true!! #RareInTimesSquare #RareDiseaseDay #RareDisease
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2 Feb 2023
1 Feb 2023
It's Feb 1st and I've got my first selfie from one of my favorite gals in Industry, @secacciatore
@BeyondtheDx @H4BBoston @ctnnb1cc
#RareDisease #CTNNB1 #RareInTimesSquare
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1 Feb 2023
It's Feb 1st and I've got my first selfie from one of my favorite gals in Industry, @secacciatore
@BeyondtheDx @H4BBoston @ctnnb1cc
#RareDisease #CTNNB1 #RareInTimesSquare
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1 Feb 2023
#RareDisease @BeyondtheDx: 'Kicking off Rare Disease Month in a BIG way!!! Thanks to @havashealth and @H4BBoston for this dream come true!! #RareInTimesSquare #RareDiseaseDay #RareDisease ' x.com/BeyondtheDx/status/162β¦, see more tweetedtimes.com/search/#Rβ¦
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1 Feb 2023
Kicking off Rare Disease Month in a BIG way!!! Thanks to @havashealth and @H4BBoston for this dream come true!! #RareInTimesSquare #RareDiseaseDay #RareDisease
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31 Jan 2023
Rare is taking to #TimesSquare all the month of February! Our rare kiddos will be up on the jumbotron! Please share pics, tag #RareInTimesSquare, and share this #RareDiseaseTruth
30 Jan 2023
ATTN Rare Disease Peeps: I have some amazing news!!!! Our amazing friends at @H4B have offered to sponsor this program. Our BTD kids will be on a Jumbotron in Times Square for the ENTIRE MONTH of February, running most of the day!!!!! #RareInTimesSquare #RareDiseaseDay
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30 Jan 2023
ATTN Rare Disease Peeps: I have some amazing news!!!! Our amazing friends at @H4B have offered to sponsor this program. Our BTD kids will be on a Jumbotron in Times Square for the ENTIRE MONTH of February, running most of the day!!!!! #RareInTimesSquare #RareDiseaseDay
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27 Jan 2023
27 Jan 2023
@BeyondtheDx is having its exhibit of beautiful rare paintings on the jumbotron in TimesSquare. You won't want to miss that!
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