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We are proud to have MedGenome as our Diagnostic Partner, supporting the cause with their commitment 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM 🔗 Register now: registration.racefor7.com 📞 91 9343511011 📧 madhan@ordindia.in #RaceFor7 #RunForRare #ORDIndia
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🎉 She did it! @cat_rachael completed the Edinburgh Half Marathon and raised £1,127 for people living with eosinophilic diseases! 💜🏃‍♀️ 👉 It’s not too late to support: ow.ly/swaK50VZRuM #EAM2025 #eosnetwork #eoe #RunForRare #RunForEOS #edinburghmarathonfestival
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Für alle Zweifler: Immer noch zweimal wöchentlich im Fitness-Studio. 💪 #RunForRare #RareDiseaseDay #FitnessStattFatness
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Ich habe es getan. Was sagt ihr zu meiner Zeit? Danke an alle, die mitgemacht haben oder noch mitmachen. #RunForRare #RareDiseaseDay2024 laufenmachtgluecklich.de/lae…
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Running for a cause! To spread awareness about rare diseases! Join us! #Runforrare #ORDI #Racefor7 #Mysuru
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19 Nov 2023
#RunForRare and #Awareness for #RareDisease everybody can be part of this event- running or walking on his/her favourite distance. todos pueden ser parte de este evento- corriendo o caminando en su distancia favorita. rarediseasesrun.net #FAOD #VLCAD #LCHAD #MTP
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14 Nov 2023
#RunForRare- trotz 🌦-Wetter habe ich mich (weil ausnahmsweise mal mehr als zeitig zu Hause) dazu motivieren können, laufen zu gehen. Alles Training für den #rarediseasesrun- der Lauf für #SelteneErkrankungen, nächstes Jahr rund um den seltensten Tag des Jahres, den 29.Februar
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25 Sep 2023
We had a ball at our #ButterflyRun at @noordinarypark cure-eb.org/news/butterfly-r… Find out your run times & see if you can spot yourself in our gallery We’d love to see your photos – please tag us if you share them #CureEB #ResearchtheCure #TimetoFly #RunforRare #RareDisease #EB 💙
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7 Sep 2023
Run, walk, or wheel at our #ButterflyRun on 24th September at @noordinarypark 🦋 👉 cure-eb.org/event/butterfly-… We're thrilled to have @4Lilyfoundation supporting the event this year! #CureEB #ResearchtheCure #TimetoFly #StopthePain #RareDisease #RunforRare #FamilyFun
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29 Aug 2023
Join us at our #ButterflyRun butterflyrun2023.eventbrite.… 🦋 Run, walk, or wheel to complete a #1k, #5k or #10k race, while having fun & raising awareness of #EB 📅 24/09/23 📍 @noordinarypark #CureEB #ResearchtheCure #TimetoFly #RareDisease #RunforRare #FamilyFun #RunwithFriends
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26 Aug 2023
Run, walk, or wheel #10k #5k or #1k at our #ButterflyRun on 24th September at @noordinarypark 🦋 👉 cure-eb.org/event/butterfly-… Thank you to @4Lilyfoundation for supporting the event this year! #CureEB #ResearchtheCure #TimetoFly #StopthePain #RareDisease #RunforRare #FamilyFun
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THANK YOU to our FANTASTIC Napa Race for a Cure race sponsors! We appreciate your support more than we can ever say! 🤩 #MPSML #RaceForACure #NapaRun #CureSupportAdvocate #5k #FunRun #RunCA #KennedyPark #RunForRare #CourageousTogether #Virtual5K #NapaCA #NapaValley
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Der Sohn ist auch schon für #runforrare gelaufen. Auch er hat eine Behinderung, auch wenn sie mit ca 100x im Jahr pro geborene Babys nicht wirklich selten ist. Wir sind sehr froh das es ihm so gut geht, wir bzw er hatte sehr viel Glück.
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10 Jan 2023
Melde dich JETZT an für den diesjährigen #RareDiseasesRun vom 28.Februar bis 5.März 2023 rarediseasesrun.net #RunForRare #SelteneErkrankung #RareDisease #RareDiseaseDay
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RSCS & @DebraSingapore will be running its inaugural #RunforRare fundraiser to effect positive change for those living with #EB & rare skin conditions. Nearly S$46,000 has been raised by individuals & teams having run over 1,600km so far! #EBAwarenessWeek bit.ly/runforrare2022eb
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28.02.2022 #RareDiseaseDay Wear your stripes and stand for the 300 million with a visible or invisible disease. Because each rare disease carries a distinct story coupled with physical and mental pain. Remember: Alone I am Rare, Together we are Strong. #runforrare
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Wonder why you should participate in our #HCURaceforResearch2021 ? Well, here is just the very tip of the iceberg! Register now: bit.ly/hcurace2021 #Homocystinuria #CobalaminDisorders #SevereMthfr #VirtualRace #RunforRare #CycleforLife #RareDisease
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Separated by miles, connected virtually! This rare disease day, join us on a virtual platform for Racefor7 and support the Rare Cause! To register: registration.racefor7.com/ #ordi #racefor7 #charityevent #rarediseaseint #rarediseaseindia #risingrare #runforrare #health #humanity
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