26 Jul 2019
We are proud to announce that, in partnership with the NHS, we are jointly funding the worldβs first #EDS specialist nurse. Keep reading to find out more about our exciting news! buff.ly/2YndWGC
#EhlersDanlosSyndrome #EhlersDanlos
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24 Jun 2017
I feel completely the same, my #EDSZebraFriends are family to me; a large extended family ππ w/ β€οΈ& support #BlessedwithEDS #ZebraSupport
24 Jun 2017
So very true! I'd be lost without my EDS friends. π
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23 Jun 2017
That's a brilliant response! Thank you so much 4 sharing with me! ππ»πππ»ππ#ZebraSupport #IAmALuckyEDSZebra #EDSZebrasDoEXIST
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21 Jun 2017
I'm so glad to hear you're relaxing as much as possible, love! My love & #ZebraSupport your way, always! Gentle hugs& cuddles π€ππππ·
15 Jun 2017
Completely understand that! Glad I can provide some #ZebraSupport 2 you, honey! Sending Zebra hugs & β€οΈ your way. #ZebraTribe
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10 Jun 2017
Great ideas, honey! Distraction can be the best medicine sometimes, eh? You're so thoughtful, thank you for the #ZebraSupport sweetheart! π
10 Jun 2017
Wonderful hearing u have great support at ur side-I'm still sending #ZebraSupport & #ZebraHugsandLove ur way! βΊοΈβ€οΈππ€ Have a lovely wkend!
9 Jun 2017
Of course, beautiful! Thank you so much for the support & encouragement! #EhlersDanlosSyndrome #HipReconstructiveSurgery #ZebraSupport πβ€οΈβΊοΈ
3 Jun 2017
Aw thank you so very much, Amber! My gentle Zebra hugs & love to you, too! #ZebraSupport #ZebraStrong ππ»ππβ€οΈπ€xoxo!
2 Jun 2017
Aw thank you, gorgeous, you're so thoughtful & kind! #ZebraSupport #EhlersDanlosSyndrome βΊοΈππ
9 May 2017
Absolutely! Sending all my #ZebraLove and #ZebraSupport your way, always! I hope your GP helps u pronto! ππ»β€οΈπ€π»Gentle Zebra hugs till help!
28 Apr 2017
Prayers and #ZebraSupport and #ZebraLove to you both! Us Zebras have to stick together through this struggle-hugs n' love, ladies! βΊοΈπππ·
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28 Apr 2017
Aw honey, yes. Please do try & get some sleep, rest, and take it easy! One zebra day at a time, eh? Gentle hugs & love to u! #ZebraSupport
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28 Apr 2017
I'm so sorry Rachel! I wish I could help more! πππ·#ZebraSupport #ZebraStrong
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20 Apr 2017
Aw thank you for the #ZebraSupport I'm hanging in there-really looking forward 2 my hip surgery May 12tg to fix defect & stabilize #EDSLife
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11 Apr 2017
Hope it wasn't interesting in any kind of unsuccessful way! ππ»β€οΈπ€π» #ZebraSupport #EDSHugs
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9 Apr 2017
#EDS #RealStruggles I have the same sentiment about too many specialists & doctors! So sorry! #ZebraHugs #ZebraSupport Sending gentle hugs!
6 Apr 2017
We're more powerful in numbers, and a community of support only benefits us all. β€οΈπ#ZebraPride #ZebraSupport #POTS #SpooniePride
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