29 Sep 2024
It's a wrap! The CASK UK meetup 2024 was a blast! Old and new friends united to support, chat and make and strengthen friendships.
#toabsentfriends #caskgene #caskmutation #caskresearch #caskdisorder #familysupport #familymeetup #kickingcasktogether
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25 Jul 2024
130 CASK patients are now enrolled on the @RARE_X_ registry providing us with invaluable data.
Watch the twenty minute talk now on our YouTube
#caskmeeting #caskgene #caskresearch #caskmutation #patientregistry #patientcare #datacollectionprogram #cask
youtu.be/f6t2RaG2Ir8?si=3Ei6…
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47
15 Jul 2024
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17 Apr 2024
Follow us all week to learn about the incredible gene revolution that is sweeping the world and giving genetic diseases so much hope 💞
#CASKCoalition #caskresearch #genetechnology #geneediting #genetherapy #caskmutation #caskgene
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28 Feb 2024
Our researchers here in the UK use the @RARE_X_ database to help their research. They might even be creating CASK flies using the genotypes they find on your generic reports!
#patientregistry #caskgene #cask #KickingCASK #caskmutation #CASKResearch
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