28 Oct 2023
#fakepromises by pb govt and #aappunjablies #cfprotest kuch eda de hashtags must ne with every post please have a look on this and try to create daily 4pm to 6pm a different hashtag and the repost it as much as we can so dat we ll b able to trend it on top of trending chart🙏
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30 Apr 2018
Great crowd & story on @sunriseon7 this morning - thanks for highlighting the 1300 young kids & adults waiting for #Orkambi! #CFprotest @GregHuntMP @CatherineKingMP @VertexPharma
29 Apr 2018
You may've noticed a large crowd at Brekky Central this morning — they’re seeking PBS access to Cystic Fibrosis medication ORKAMBI.
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30 Apr 2018
30 Apr 2018
#WeNeedOrkambi #CFProtest @GregHuntMP @VertexPharma I hope you’ve been watching. facebook.com/sonialmarshall/…
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30 Apr 2018
#CFProtest #WeNeedOrkambi We made the news today Over 1000 Australians with CF have waited for Orkambi since 2015 Begging @VertexPharma & @GregHuntMP @healthgovau to come to an agreement Dying 4 a decision @Huntyroyal @bugwannostra facebook.com/aleta.phillipsg…
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30 Apr 2018
Our virtual placard for the #CFprotest! Please support the 1300 people still waiting for Orkambi with a RT #WeNeedOrkambi #LivesBeforeProfit
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30 Apr 2018
Did you look the other way today when Sunrise was on today? There was a sea of red supporting CF and Orkambi. #WeNeedOrkambi ##CFProtest
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30 Apr 2018
#CFProtest #WeNeedOrkambi @VertexPharma @GregHuntMP We’re making noise! Negotiate a deal now Lives are at stake facebook.com/aleta.phillipsg…
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30 Apr 2018
#CFProtest #WeNeedOrkambi #Sunrise Every month without Orkambi our lives will be one month shorter @CFAware @strawfie @RouleReport
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30 Apr 2018
#CFProtest #WeNeedOrkambi On the way Marching to @VertexPharma Sydney office with 2 young girls who are waiting @GregHuntMP @healthgovau @Lisa_Wilkinson @theprojecttv facebook.com/sonialmarshall/…
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27 Apr 2018
Syd CF Mums battle to get CF drug #Orkambi on the PBS It adds years of life & we are being denied #CFProtest on Monday Martin Place @smh @sunriseon7 A facebook.com/WeNeedOrkambi/p…
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27 Apr 2018
Syd Mum fights for access to CF drug #Orkambi to be placed on the PBS #CFProtest Monday Martin Pl @9NewsSyd @abcnews facebook.com/WeNeedOrkambi/p…
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19 Feb 2017
Thanks @RossHartMP for supporting the young kids & adults waiting for Orkambi at the #CFprotest last week! #CysticFibrosis #WeNeedOrkambi
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19 Feb 2017
Thanks @GaiBrodtmannMP for supporting the 1000 aussies waiting for Orkambi at the #CFprotest last week! #CysticFibrosis #WeNeedOrkambi
19 Feb 2017
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19 Feb 2017
@PaulineHansonOz Thanks for supporting the 1000 aussies waiting for Orkambi at the #CFprotest last week! #CysticFibrosis #WeNeedOrkambi
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8 Feb 2017
Orkambi saves lives !!! @BBreggie @SMarshallCFmum @LeeleeDotCom @bugwannostra @RouleReport @GregHuntMP #AustraliaNeedsOrkambi #CFprotest
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Great wrap of yesterday's #cfprotest in Canberra. Thanks to everyone involved! #WeNeedOrkambi facebook.com/WINNewsCanberra…
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7 Feb 2017
Our virtual placard for the #CFprotest! Showing unity around aus in our mission for Orkambi now, with negotiations later #WeNeedOrkambi
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7 Feb 2017
@CFAustralia 's Live Video today #CFProtest
6 Feb 2017
Tuesday 7 Feb, we rally for every Australian living with CF!
#CFprotest #Australians4orkambi #Kalydeco4kids thndr.me/JBSjuf
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