@CFNSW profile picture
CF NSW @CFNSW

We support people with cystic fibrosis (CF) and their families in NSW through services, lobbying and contribution to research.

Joined December 2009
  • Tweets 661
  • Following 362
  • Followers 750
161 Photos and videos
CF NSW @CFNSW
23 Mar 2017
Attn. all CFNSW members. The deadline to send in your proxy/consent forms for the upcoming CFvic merger meeting is March 28th. Thanks!
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CF NSW @CFNSW
19 Mar 2017
New parking concessions for frequent hospital visits are being rolled out :) dailytelegraph.com.au/news/n…
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CF NSW @CFNSW
27 Feb 2017
Thanks for the support guys, glad you had fun :)
65k 65 Roses for @cfnsw #Facepainting on that gloomy Saturday. Shout out to all the amazing… instagram.com/p/BQ_V8Y3Dx70/
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CF NSW @CFNSW
24 Feb 2017
What do I do when I go to to Australia for work. Find a CF walk. #curecf #65k465roses 📷: @sluggers09
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CF NSW @CFNSW
24 Feb 2017
Team Leash claiming their territory at the @65K_4_65Roses Walkathon. Welcome back team! #65kroses #teamLeash
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CF NSW @CFNSW
24 Feb 2017
Team Libby and Kenzie powering through the 65k 4 65 Roses Walkathon 👏 #65kroses #cf #walkforcf
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CF NSW @CFNSW
24 Feb 2017
Ruby and Co. doing the rounds at the @65K_4_65Roses Walkathon ^_^ #65kroses
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CF NSW @CFNSW
24 Feb 2017
The brave souls about to kick off the 65km @65K_4_65Roses Walkathon. Good luck guys! #65kroses #cf
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CF NSW retweeted
Chloe Dougherty @chloedougherty_
23 Feb 2017
Hi friends! walking to help find a cure for cystic fibrosis this weekend! Help me reach my goal of $700! @cfnsw 65kroses2017.everydayhero.co…
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CF NSW @CFNSW
23 Feb 2017
And the offical registration # for the @65K_4_65Roses Walkathon is 1156! You can still register on the day, visit 65kroses.com
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CF NSW retweeted
Westmead Kids @westmeadkids
21 Feb 2017
Social worker Lauren is doing #65kfor65roses to help raise awareness for the incurable condition. Help by visiting 65kroses.com
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CF NSW @CFNSW
21 Feb 2017
Online registrations for Saturday's @65K_4_65Roses Walkathon are closing MIDNIGHT TOMORROW (Wednesday). Register at 65kroses.com
CF NSW @CFNSW
18 Feb 2017
We're looking volunteers to help out at the @65K_4_65Roses Walkathon this Sat Feb 25th. If you're keen, contact us via events@cfnsw.org.au
CF NSW retweeted
Jamie Apps @JamieAppsMedia
16 Feb 2017
Just renewed my @CFNSW membership & highly encourage others to join & support the cause too.
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CF NSW retweeted
Lauren Rowe @RejectingRowe
12 Feb 2017
Vlog of the #Orkambi and #kalydeco protest for #cysticfibrosis at Parliament. Check it out. youtu.be/UEL132rgfqw
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CF NSW @CFNSW
8 Feb 2017
Great wrap of yesterday's #cfprotest in Canberra. Thanks to everyone involved! #WeNeedOrkambi facebook.com/WINNewsCanberra…
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CF NSW retweeted
YesToTrikafta @TrikaftaAus
7 Feb 2017
Official statement from @VertexPharma, confirming that the 30 young kids waiting for Kalydeco will have it this week! #YesToKalydeco
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