May 17
17th May is Shine A Light On NF 2026 đź’™and buildings and landmarks lighting up in NF blue to raise awareness of Neurofibromatosis! #EndNF Nerve Tumours UK #ShineALightOnNF #DoSomethingBlue #MakeNFVisible #WorldNFDay @NervetumoursUK
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Thanks @dgcouncil for this support Happy #WorldNFDay, can't wait to see the HQ all lit up! We want to get many more people talking about NF, to increase understanding of it or even learn about it for the first time. #ShineALightOnNF #DoSomethingBlue #MakeNFVisible
Tonight we’re lighting up our council's HQ blue for World NF Awareness Day (17 May), joining others across the country in support of @nervetumoursuk and the #ShineALightOnNF campaign.
More information: đź”—orlo.uk/0EH1n
ALT Various landmarks and a sculpture illuminated in blue for the 'Shine a Light on NF' campaign.
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Today, the Shipbuilders of Port Glasgow sculpture and the Lyle Fountain in Greenock will light up blue in support of World NF Awareness Dayđź’™
To find out more information about NF, visit: nervetumours.org.uk/
#NerveTumoursUK
#MakeNFVisible
#ShineALightOnNF
ALT Image of the Shipbuilders in Port Glasgow lit up blue.
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Over 220 UK buildings and landmarks, including @AtkinsonThe in Southport, will be lit up blue tonight, to raise awareness to help those living with NF đź’™
#StandUpForSouthport #southport #shinealightonnf #WorldNFDay #makeNFvisible
standupforsouthport.com/the-…
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Thanks @NFIreland team and Happy #WorldNFDay! We're looking forward to an amazing day, it's our chance to get many more people talking about NF, to increase understanding of it or even learn about it for the first time. #ShineALightOnNF #DoSomethingBlue #MakeNFVisible
May 15
đź’™ NF Ireland is proud to partner with Nerve Tumours UK for the #ShineALightOnNF campaign this 17th May
Over 200 landmarks across Ireland & the UK will light up blue to raise awareness for Neurofibromatosis
📍Full list: nervetumours.org.uk/get-invo…
@NervetumoursUK @centralbank_ie
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Maria Ioannou, MD of @HopkinsMedicine presents “MEK Inhibitor Induces an Exploitable DNA Damage Repair Deficiency in NF1 Deficient Gliomas”
#NFYIF25 #makenfvisible #endnf #MedEd #MedTwitter #MedX @ChildrensTumor
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@oztosungorkem of @washumedicine presents “Exploring Chromosome 8 Gain in NF1-/-Schwann Cell Precursors Using a hiPSC-Based Model”
#NFYIF25 #makenfvisible #endnf #MedEd #MedTwitter #MedX @ChildrensTumor
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12 Aug 2025
“I want to be the girl I wish I had to look up to when I was little...I want to prove that you can live a full life—and that NF1 doesn’t have to define you.” Learn more about Whitney’s story and approach to living with NF1: go.ctf.org/whitney
#EndNF #MakeNFVisible
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30 Jul 2025
Diagnosed with NF at 2 months old, Aria is now a fearless advocate. With support from her family and NF community, she’s raising awareness and loves connecting with kids just like her. 💙💚
Read Aria’s story of NF: 🔗 ctf.org/news/story-of-nf-ari…
#EndNF #MakeNFVisible
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26 Jun 2025
Have you ever wondered: What is NF2-related schwannomatosis? You’re not alone — and we’re here to help.
Click here for the answer to a Big Question ➡️ youtube.com/shorts/38XTNzEIg…
#EndNF #NF2 #NF2SWN #MakeNFVisible
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22 Jun 2025
Excited to hear about future options for patients with NF2-Schwannomatosis from my colleague Dr. Jeremie Vitte. #NFConference #endNF #makeNFvisible
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16 Jun 2025
Just 1 week to go until the start of @SmallCharity_Wk 🎉
Share your #NF Story and let's celebrate Small Charities Week Together.
Send in your story of how @NervetumoursUK has supported you via info@nervetumours.org.uk
#SmallCharityWeek2025 #MakeNFVisible #NFStories
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15 Jun 2025
To every father, stepfather, grandfather, and father figure in the NF community—thank you. We see you. We honor you. And we’re grateful for your love, your strength, and everything you do. 💙💚
#FathersDay #EndNF #NFStrong #MakeNFVisible
ALT Promotional image for Father's Day by the Children's Tumor Foundation featuring an adult and a child smiling and embracing, with text encouraging support to end Neurofibromatosis (NF).
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30 May 2025
New hope for NF2-related schwannomatosis đź’ˇ
Watch our latest #NFKnowledgeSeries webinar on the bold science driving research forward.
🎥 Watch here: youtu.be/rsn3vxt0xE0
#EndNF #MakeNFVisible #NF2 #Schwannomatosis #NFKnowledgeSeries
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27 May 2025
Thank you to NF Club Thailand and British Embassy Bangkok for helping Shine a Light on NF in Thailand! 💙💚
Check out the full list of landmarks and communities worldwide joining the movement here: ctf.org/shinealight
#EndNF #MakeNFVisible
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22 May 2025
Today is NF2-SWN Awareness Day!
We recognize the strength of the NF2-SWN community and raise our voices for greater awareness, research, and support. Visit makenfvisible.org and spread the word.
#EndNF #MakeNFVisible #NF2 #NF2SWN
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17 May 2025
Tonight council offices & @TheAlleyTheatre will be lit up blue in support of @NervetumoursUK's Shine a Light campaignđź’™
We should all take this opportunity to learn more about these conditions and the resilience of those in our communities affected by them #makeNFvisible
ALT The Alley lit up blue
ALT Council offices lit up blue
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17 May 2025
17th May is World Neurofibromatosis Awareness Day, and landmarks are been lit up in blue and green raising awareness of the condition. Again, I’d like to like to add my support! Please visit nervetumours.org.uk/ Thank you! #EndNF #MakeNFVisible #WorldNFDay @SunderlandDiane
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16 May 2025
Tower 42 will light up tomorrow night for World NF Awareness Day!
@nervetumoursuk
#ShineALightOnNF #WorldNFAwareness #WorldNFDay #MakeNFVisible
#Neurofibromatosis #NF #NFAwareness #NFSupport #Building #LookUp #Surprise #TakeALook #Proud #ProudToWorkHere #Tower42 #Lights
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12 May 2025
May is #WorldNFAwarenessMonth and I'd like to raise awareness for the condition! Ta @SunderlandDiane and Ella supplying the t-shirt and wrist band! @NervetumoursUK #EndNF #MakeNFVisible #WorldNFDay To find out more about NF please follow the link below. nervetumours.org.uk
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