6 Mar 2025
Flashback to our #rFSGSConference in December! We brought together a diverse group of patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned for more! #KidneyMonth #KidneyMonth2025 #KidneyTransplant @SannaCherchiLab
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4 Mar 2025
Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.
#rFSGSConference #KidneyTransplant #KidneyMonth2025
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20 Dec 2024
Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
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9 Dec 2024
At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.
The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
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9 Dec 2024
We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
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9 Dec 2024
We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC
View our program to see what's in store: scgcorp.com/rFSGS2024/Agenda #rFSGSConference
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3 Dec 2024
🚨 #rFSGSConference registration closes today! 🚨
Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: scgcorp.com/rFSGS2024/Regist… #KidneyTransplant #RareDisease
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2 Dec 2024
We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: scgcorp.com/rFSGS2024/Agenda
➡️Don't forget to register: scgcorp.com/rFSGS2024/Regist…
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2 Dec 2024
At the upcoming #rFSGSConference, you can meet 150 attendees including patients, researchers, members of congress, senators, and more! 🤝
If you want to participate, check out more info on the first ever conference all about #rFSGS! scgcorp.com/rFSGS2024/Defaul… #RareDisease
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29 Nov 2024
You're in luck! It's not too late to register for the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference. Visit our website and submit your registration today to join us on Dec. 9: scgcorp.com/rFSGS2024/Regist… #rFSGS #rFSGSConference
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26 Nov 2024
🚨 We are officially two weeks out from the #rFSGSConference! 🚨
Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: scgcorp.com/rFSGS2024/Regist…
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23 Nov 2024
The Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference is approaching! If you want to join patients with #rFSGS or meet with rFSGS specialists, register & we will see you on Dec. 9, 2024, in Washington, DC! scgcorp.com/rFSGS2024/Regist… #rFSGSConference #RareDisease
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18 Nov 2024
📣 Attention all patients with recurrent focal segmental glomerulosclerosis (#rFSGS)!
Secure your spot soon! Join us and other patients on Dec. 9, 2024, at our #rFSGSConference. Let’s work together to raise awareness and increase funding. scgcorp.com/rFSGS2024/Regist…
ALT Connect with patients, families, and researchers at the Recurrent Segmental Glomerulosclerosis (rFSGS) Conference! Register today! www.scgcorp.com/rfsgs2024/Registration
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14 Nov 2024
Registration is filling up for the first-ever Recurrent Focal Segmental Glomerulosclerosis Conference and you don't want to miss it! Register today to join us on Monday, Dec. 9, 2024, in Washington, DC. scgcorp.com/rFSGS2024/Regist… #rFSGS #rFSGSConference
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5 Nov 2024
➡️Do you have Recurrent Focal Segmental Glomerulosclerosis (rFSGS)?
➡️Do have questions about #rFSGS that specialists could help with?
Join the #rFSGSConference on Dec. 9 to talk with leading experts in the field & have your questions answered! Register: scgcorp.com/rFSGS2024/Regist…
ALT Join us at the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference! Who: rFSGS patients, family members, specialist. Where: Washington, DC. When: Monday, December 9, 2024. #rFSGSConference. www.scgcorp.com/rfsgs2024/
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29 Oct 2024
Do you have Recurrent Focal Segmental Glomerulosclerosis (rFSGS) and want to meet other patients like you? 👋
We’re connecting #rFSGS patients from across the globe at the first ever #rFSGSConference on Dec. 9! Register today to secure your spot: scgcorp.com/rFSGS2024/Regist…
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28 Oct 2024
Do you, a family member, or someone you know have recurrent FSGS (rFSGS)? The @rFSGSInitiative is hosting a conference on #rFSGS with leading doctors, patients, and families. Please view the website and register by Nov. 9: buff.ly/3TVy2qR #rFSGSConference
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22 Oct 2024
.@nephcure CEO Josh Tarnoff is our final #rFSGSConference moderator! He spent 34 years in the pharmaceutical & biotechnology community, moving new therapies closer to reality. He engages with rare kidney disease stakeholders to help advance cures for rare #KidneyDiseases. #rFSGS
ALT Josh Tarnoff, CEO. Moderator at the #rFSGS. www.scgcorp.com/rFSGS2024/
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21 Oct 2024
Let's welcome #rFSGSConference moderator Astrid Weins, M.D., Ph.D.! 👋
Dr. Weins is an Assistant Professor of Pathology at @harvardmed & the Chief of Renal Pathology at @MassGenBrigham. Her research includes recurrent focal & segmental glomerulosclerosis (#rFSGS).
ALT Astrid Weins M.D., Ph.D. Moderator at the #rFSGS. www.scgcorp.com/rFSGS2024/
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19 Oct 2024
Join Laura Mariani, M.D., at the #rFSGSConference! Dr. Mariani is a nephrologist & clinical researcher at @UMich. She is involved in several clinical & translational NIH-funded research studies in kidney diseases including the Nephrotic Syndrome Study Network (NEPTUNE). #rFSGS
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