@rFSGSFoundation profile picture
Recurrent FSGS Foundation @rFSGSFoundation

Dedicated to advancing research, supporting the development of effective treatments & building collaborative partnerships for rFSGS. #RecurrFSGS

Joined August 2024
  • Tweets 113
  • Following 207
  • Followers 105
53 Photos and videos
🌟 Proud to share the new Recurrent FSGS Foundation logo! Its repeating pattern represents the difficult journey of disease recurrence—and our mission to end that cycle. Website, mission, and ways to get involved coming soon. #RecurrentFSGS
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👀 Something BIG is coming Monday. We’re launching the Recurrent FSGS Foundation to change the future of rFSGS. Watch this space. #RecurrentFSGS #StayTuned
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As #KidneyMonth ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️ #KidneyMonth2025 #rFSGSConference #KidneyTransplant
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Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. Transplant patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS. #KidneyMonth #rFSGS #rFSGSConference
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Help us understand why! If you or someone you know has recurrent FSGS (#rFSGS) and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu. #KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant
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Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: facebook.com/groups/57871973… #KidneyMonth #KidneyMonth2025 #rFSGSConference
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Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS & you want to learn how to help by providing a biosample, email mb5150@cumc.columbia.edu. #KidneyMonth #rFSGSConference #KidneyTransplant
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It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure. #KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant
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Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: facebook.com/groups/57871973… #KidneyMonth #KidneyMonth2025 #KidneyTransplant
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Flashback to our #rFSGSConference in December! We brought together a diverse group of patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned for more! #KidneyMonth #KidneyMonth2025 #KidneyTransplant @SannaCherchiLab
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Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates. #rFSGSConference #KidneyTransplant #KidneyMonth2025
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Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS
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At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS. The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚
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We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant
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We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference! 🔹7:30 a.m.–5:30 p.m. 🔹Hyatt Regency Washington on Capitol Hill 🔹Washington, DC View our program to see what's in store: scgcorp.com/rFSGS2024/Agenda #rFSGSConference
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@Moinsaleem @rheault_m @KidneyFund @nephcure @nkf @ISGDtweets @GlomCon @kidsfirstDRC @GREGoR_research @CUIMCGlomCenter @ASPNeph @IPNA_PedNeph @thePNRC @ESPNSociety @CureGn @ASNKidney @ISNkidneycare @ERAkidney @EuRefNetwork #rFSGS #rFSGSConference #KidneyTransplant #RareDisease
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📣REGISTRATION DEADLINE EXTENDED📣 There's still time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: scgcorp.com/rFSGS2024/Regist…
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@Moinsaleem @rheault_m @KidneyFund @nephcure @nkf @ISGDtweets @GlomCon @kidsfirstDRC @GREGoR_research @CUIMCGlomCenter @ASPNeph @IPNA_PedNeph @thePNRC @ESPNSociety @CureGn @ASNKidney @ISNkidneycare @ERAkidney @EuRefNetwork #rFSGS #rFSGSConference #KidneyTransplant #RareDisease
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🚨 #rFSGSConference registration closes today! 🚨 Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: scgcorp.com/rFSGS2024/Regist… #KidneyTransplant #RareDisease
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@Moinsaleem @rheault_m @KidneyFund @nephcure @nkf @ISGDtweets @GlomCon @kidsfirstDRC @GREGoR_research @CUIMCGlomCenter @ASPNeph @IPNA_PedNeph @thePNRC @ESPNSociety @CureGn @ASNKidney @ISNkidneycare @ERAkidney @EuRefNetwork #rFSGS #rFSGSConference #KidneyTransplant #RareDisease
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