@ipiainfo profile picture
Primary Immunodeficiency Support (IPIA) @ipiainfo

Primary Immunodeficiency Support (IPIA) supports patients & parents affected by a #primaryimmunodeficiency in Ireland. #PI #rarediseases #PID

Joined May 2014
  • Tweets 827
  • Following 1,449
  • Followers 638
119 Photos and videos
@Baxalta @HSElive @irishexaminer @Irish_health #PID #PI patients in Ireland need Medical Card/Right to home Therapy
0:20
4
9
Explore the toolkit here: ipiainfo.org/toolkit Thank you for supporting World PI Week and helping us share the IPIA Patients Toolkit, Together, we can raise awareness, support one another, and grow a stronger PID community in Ireland. #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
12
Become part of the IPIA community: ipiainfo.org/toolkit No one should face primary immunodeficiency alone. This World PI Week, we’re highlighting the importance of connection, support, and belonging through the IPIA Toolkit #WorldPIWeek #IPOPI #IPIA #PIDCommunity #JoinIPIA
21
Explore the toolkit and help grow IPIA: ipiainfo.org/toolkit Getting a diagnosis and understanding treatment can be overwhelming, Patients Toolkit, helps patients and families learn more about testing, diagnosis, and treatment options.#WorldPIWeek #IPOPI #IPIA #PatientRights
1
1
18
Living with PID ipiainfo.org/i-control-the-i… can affect everyday life, practical support is so important. IPIA Toolkit, shares guidance. join IPIA to support our work #WorldPIWeek #IPOPI #IPIA #PID #PatientSupport #JoinIPIA
1
33
During #WorldPIWeek, IPIA celebrates St James’s Hospital milestones! ANP Aoife rep the team at IPOPI’s PID Forum in Brussels on "Growing Older with PID." Plus, their #Immunodeficiency Service earned QPIDS accreditation—first outside the UK! #StJamessHospital #IPIA #IPOPI #PID
1
1
41
Join IPIA today to connect, advocate, and build strength together! ipiainfo.org/toolkit This World PI Week 2026 Patients Toolkit – your guide to understanding PID, daily support, diagnosis, treatment, advocacy, research and much more #WorldPIWeek #IPOPI #IPIA #PID #JoinIPIA
0:40
1
2
17
World PI Week is here, and we’re delighted to launch the IPIA Patients Toolkit that brings together trusted information and practical support for people living #PID Explore the toolkit and join IPIA #WorldPIWeek #IPOPI #IPIA #JoinIPIA ipiainfo.org/toolkit
1
1
12
World PID Week starts today! introducing the new IPIA Tool Kit — trusted information, practical support and community resources for PID. Read here: mailchi.mp/f9ea5562e549/ipia… #WorldPIDWeek #PIDAwareness #PrimaryImmunodeficiency #IPIA #ToolKit #RareDiseaseAwareness #IPOPI
6
“I control the illness — not the other way around.” A powerful member story about resilience, courage, and living fully with PID. Read more here: #IPIA #PID #WorldPIWeek #WeCantWait #IPOPI #CVID #PatientStory #PIDAwareness ipiainfo.org/i-control-the-i…

“I control the illness – not the other way around”

This anonymous story captures one man's journey with CVID - a silent battle marked by years of unanswered questions, resilience, and ultimately finding a way to live fully with PID. Living with...

ipiainfo.org
11
Primary Immunodeficiency Support (IPIA) retweeted
Primary Immunodeficiency Support (IPIA)@ipiainfo
Apr 15
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
3
1
23
🌐 Our new IPIA website is now live — featuring a fresh look, easier navigation, and our new email address to help you stay connected. #IPOPI #WorldPIWeek #ThinkPI #WeCantWait #PrimaryImmunodeficiency #PIAwareness #NewWebsite
8
Calling all PID Patients and supporters! Every story counts — let’s make sure the Government hears ours. 💪 #PIDawareness #InvisibleIllness #DisabilityRights #Ireland #IPOPI #HSE #healthministry Have your say here: gov.ie/en/department-of-soci…
12
👉 Take the survey here: ec.europa.eu/eusurvey/runner… Let’s make sure the Irish patient voice is heard across Europe! 🇮🇪💙#IPIA #PrimaryImmunodeficiency #PatientVoice #RITA #RareDiseases
22
Happy Holidays everyone !!
5
Thank you @stjamesdublin for making this possible and supporting IPIA #worldPIweek
St James's Hospital@stjamesdublin
28 Apr 2025
Today members of the Immunology Team met with patients and staff to mark #WorldPrimaryImmunodeficiencyWeek 🏥 The team celebrated the occasion and raised awareness of Primary Immunodeficiency🩺 #WorldPIWeek2025 #SeeTheUnseen
1
1
26
👀 #WorldPIWeek2025 #SeeTheUnseen #IPOPI #Ireland #IPIA 💙"
9
#NewProfilePic
9
ipia.info/ipias-new-year-vis… #IPIA #IPOPI #PID #Primayimmunodeficiencies #PIDawareness
17
Every year we join with @stjamesdublin to celebrate WPIW - Thank you for your support ❤️
St James's Hospital@stjamesdublin
26 Apr 2024
This week is World Primary Immunodeficiency (PI) Week, a campaign which aims to raise awareness and improve diagnosis and treatment of PIs. Our Immunology Team have been celebrating #WPIWeek by promoting the five key principles of patient-centred care in PI.
47
Load more